#arthritisathome

In this episode of Arthritis At Home, Cheryl Koehn and Dr. Marie Westby discuss about the EQUIP-TJR study they are working on. The study is studying patient experiences and the quality of care during their rehabilitation (rehab) after total joint replacement (TJR). 

Dr. Westby’s team is now creating an online toolkit of resources called the EQUIP-TJR toolkit. It includes a variety of print and electronic resources created with patient input. Before testing the toolkit in clinical settings, they would like to know your views on the quality indicators related to rehab after discharge from the hospital. They are also interested in your overall rehab experience and satisfaction.

Your responses will help the research team to refine the questionnaire and capture a ‘snap shot’ of current rehab practices across Canada.

If you would like to complete the 20-25 minute survey, go to: http://tiny.cc/PatientQISurvey.

The survey closes Feb. 28, 2024. Two $50 Indigo gift cards will be offered as prize draws!

In this episode of Arthritis At Home, we are sharing the #CRArthritis interview with Dr. Timothy Kwok, resident rheumatologist at the University of Toronto, about gout.

Gout is a form of arthritis which is caused by a build-up of a crystal called uric acid in the body. Normally, uric acid is processed by the kidneys and eliminated from the body through urine. In the case of gout, the kidneys do not eliminate uric acid well enough, or in some people with gout, too much uric acid is produced. 

Additional learning resources

• Arthritis Consumer Experts’ About Gout page
• Gout and other crystal arthropathies in Canada

In this episode of Arthritis At Home, we are sharing the #CRArthritis interview with Drs. Lisa Lix and Lily Lim, about artificial intelligence (AI) in practice and the pattern mining of healthcare data for complex chronic conditions. Dr. Lix is professor and associate head of community health sciences at the University of Manitoba and currently serves on the board of directors of the Canadian Statistical Sciences Institute. Dr. Lim is a pediatric rheumatologist at Children’s Hospital Research Institute of Manitoba.

Additional learning resources

• The Pan-Canadian AI Strategy
• Building equitable AI for public health

In this episode of Arthritis At Home, we are sharing the #CRArthritis interview with Dr. Mollie Carruthers, academic rheumatologist practicing at Artus Health Centre in Vancouver, British Columbia, about IgG4-related disease.

IgG4-related disease describes a group of fibroinflammatory diseases that affect a variety of tissues resulting in tumor-like effect and/or organ dysfunction.

Additional learning resources

• IgG4-related disease: An introduction
• How to diagnose IgG4-related disease

In this episode of Arthritis At Home, we are sharing the #CRArthritis interview with Dr. Michelle Batthish, Associate Professor, Pediatric Rheumatology, at McMaster University’s Faculty of Health Sciences. Dr. Batthish discusses about transitioning from pediatric to adult arthritis care and shares transitioning tips for patients and their family members.

Additional learning resources

• MyTransition App
• Canadian Rheumatology Association Paper: Bridging the Gaps – Optimizing the Transition from Pediatric to Adult Rheumatology Care

In this episode of Arthritis At Home, we are sharing the #CRArthritis interview with Dr. Sasha Bernatsky, rheumatologist, a James McGill professor, and a senior scientist in the Centre for Health Outcomes Research and Division of Clinical Epidemiology at the Research Institute of the MUHC. Dr. Bernatsky discusses about air pollution and its relationship with systemic autoimmune rheumatic diseases like arthritis.

Additional learning resources

• Fine particulate air pollution and systemic autoimmune rheumatic disease in two Canadian provinces
• Study Finds Association Between RA Biomarker and Certain Air Pollutants

In this episode of Arthritis At Home, Dr. Terri-Lynn Fox and Cheryl Koehn discuss the Arthritis Call to Action website, which has been launched by the Arthritis Community Learning Circle. As an important entry point into Truth and Reconciliation for the arthritis community in Canada, the website covers key topics such as Colonization, Indigenous Health, the Truth and Reconciliation Commission’s Calls to Action on Health (#18 to 24), and the Arthritis Community Learning Circle. Website visitors will also find current information on successful programs that incorporate traditional healing, and the latest arthritis research involving, and led by, Indigenous Researchers and Indigenous Participants in Canada.

Dr. Fox is from the Blood Tribe, within the Blackfoot Confederacy, and practices her Siksikaitsitapi ways. Dr. Fox has a bachelor’s degree in psychology; a master’s degree in sociology; and a doctoral degree in education. 

Additional learning resources

• Arthritis Call to Action website
• More about the Arthritis Community Learning Circle

Made up of rheumatoid arthritis patient organizations and leaders from 18 countries, the Global RA Network (GRAN) was formed to build international relationships and identify and work on common goals and initiatives to improve the lives of people living with rheumatoid arthritis (RA) around the world. Arthritis Consumer Experts co-founded the Network in 2017 and serves as its Secretariat.

This episode of Arthritis at Home features Kelly Lendvoy, ACE’s VP Communications and Public Affairs and Isabelle Troïtzky, Programs Manager of the GRAN discussing the Network’s recent one-day annual Workshop held during the annual scientific meeting of the European Alliance of Associations for Rheumatology.

Additional learning resources

• Globa RA Network
• ACE National Survey on Arthritis and Health Inequities
• Inequities in Arthritis Care in Canada: An intersectional analysis of BIPOC women

Arthritis Consumer Experts (ACE) is thrilled to launch its new blog Joint Journeys, life with arthritis by Carrie. Insightful, inspirational, heart-warming and fun, Carrie’s pieces are beyond living with arthritis – they are about life’s everyday moments, the ups and downs of a life worth living. A brief pause to look at life with a fresh lens, a breath of fresh air in our day and that reminds us we are not our arthritis; we are human beings living life, with arthritis. Carrie’s pieces will touch on travel, gardening, raising a family, exercise, and adventuring, among other life moments.

In this episode of Arthritis At Home, Cheryl Koehn, ACE’s President, speaks with Carrie Barnes about her new blog, Joint Journeys, life with arthritis. They will talk about the origin of the blog concept and riff on why they think it fills a void in the current arthritis blogging scene.

Additional learning resources

• Joint Journeys, life with arthritis by Carrie
• About Carrie Barnes

In this episode, Kelly Lendvoy, VP Communications & Public Affairs speaks with Ellen Wang, ACE Programs Coordinator and Research Trainee at Arthritis Research Canada, about the presentation of an ACE research presentation (Abstract) at the annual scientific meeting of the European Alliance of Associations for Rheumatology (EULAR). 

The Abstract - Inequities in Arthritis Care in Canada: An intersectional analysis of BIPOC women – presents detailed findings from the ACE National Survey on Health Inequities on barriers to access, discrimination and healthcare provider interaction among BIPOC (Black, Indigenous, and Person of Colour) women living with arthritis in Canada.

Additional learning resources

• PowerPoint Presentation and Summary
• Arthritis Consumer Experts Survey on Arthritis and Health Inequities

In this episode, Kelly Lendvoy, VP Communications & Public Affairs speaks to ACE’s Founder and President, Cheryl Koehn, about the long and winding road towards drug development, review and public reimbursement in Canada. They discuss the highlights from a recently published JointHealth™ insight: the phases of drug development, the drug review process, price negotiations, and how it affects the lives of people living with inflammatory arthritis.

Additional learning resources

• JointHealth™ insight – From discovery to the patient: The long and winding road towards drug development, review and public reimbursement in Canada
• Infographic: Canada drug review process at a glance
• ACE Arthritis Medications Report Card

In this episode of Arthritis at Home, Ellen Wang, ACE’s Programs Coordinator speaks with Megan Thomas, a PhD candidate at the University of British Columbia in the Department of Pharmaceutical Sciences. Megan is under the supervision of Dr. Mary De Vera and Dr. Mark Harrison. She completed both her MSc in Community Health Sciences and her Bachelor of Health Sciences honours degree at the University of Calgary. Megan’s work is focused on patient preferences, health equity, and patient-oriented research. More specifically her thesis aims to addresses equity considerations that impact access to research and care for patients with inflammatory arthritis. She plans do this through interviews with heath care providers and patients, as well as using a survey much like the one that ACE conducted!

Additional learning resources

• More about PROGRESS-Plus
• About Megan Thomas

In this episode of Arthritis at Home, Mr. Kohle Merry, PhD candidate at the University of British Columbia, member of Arthritis Patient Advisory Board of Arthritis Research Canada, and a person living with osteoarthritis (OA) discusses the profound impact of OA on patients, the healthcare system, the economy, and the launch of ACE’s National Survey on Living with Osteoarthritis. 

The Survey deadline is April 14, 2023. Click here to take the Survey.

Rheumatoid arthritis (RA) is the most common form of inflammatory arthritis and affects women twice as often as men, striking people in the prime of their lives. February 2, 2023 is the annual Rheumatoid Awareness Day that helps raise awareness of the disease and improve the lives of approximately 380,000 Canadians living with the disease. To mark this special day, Arthritis at Home speaks with Cheryl Koehn, ACE President and a person living with RA, to learn more about the importance of early diagnosis and self-care and the advances in treatment options, medication and non-medication, over the past 25 years.

Additional resources

• JointHealth™ Education: Rheumatoid Arthritis
• ACE Survey Report on Arthritis and Mental Health
• Global RA Network – RA Today: Canada Dashboard

On today’s episode of Arthritis at Home, Kelly Lendvoy, ACE’s VP Communications and Public Affairs and Ellen Wang, Programs Coordinator, takes a deeper look ACE’s latest JointHealth™ insight newsletter on osteoarthritis in Canada. Learn more about the cost of osteoarthritis to the healthcare system, the connection between sport injury and osteoarthritis, treating and managing osteoarthritis, and equity considerations for osteoarthritis care.

Additional learning resources:

• JointHealth™ insight – Osteoarthritis in Canada: Prevention, treatment and management
• 3 fab facts for happy joints
• Talk to Your Doctor About Joint Pain Handout

After two years of virtual meetings, the American College of Rheumatology (ACR) will hold its annual meeting in Philadelphia and provide five days of opportunities for scientists, rheumatologists, arthritis health professionals, industry, educators, patient advocates and trainees to learn about cutting-edge science and engage with colleagues from around the world.

In today’s episode of Arthritis At Home, learn more about ACE’s participation at the ACR conference when we speak to ACE team members, Ellen Wang, Programs Coordinator, and Cheryl Koehn, President, about the exciting work they are presenting at the meeting.

To follow our #ACR22 coverage, please subscribe to receive our JointHealth™ express newsletter and follow us on Twitter and Facebook.

In this episode of Arthritis At Home, ACE president Cheryl Koehn, and VP of communications and public affairs, Kelly Lendvoy, discuss the ACE Survey on Arthritis Health Inequities.
 
The ACE Survey asks people living with arthritis to share details of inequities or discrimination they have experienced or witnessed as well as report on the impact of those incidents and how people care for themselves and others in the face of health inequities.
 
 The Survey is open to people living with any form of arthritis and will take approximately 15 minutes to complete. Your identity will not be known and your responses will remain anonymous. Survey results are stored in a secure, accredited data centre. The Survey deadline is August 23, 2022.

Click here to take the Survey.

People living with arthritis often must be their own best advocate. No one knows arthritis better than those who live with it every day. 

In this episode of Arthritis at Home, Cheryl Koehn and Kelly Lendvoy discuss Arthritis Consumer Experts’ recently launched national survey on arthritis self-advocacy. Learn how your participation in this community-led research will help ACE better understand what effects self-advocacy has on a person’s quality of life at home, at work and on the healthcare they receive from their healthcare team. Survey findings will help ACE develop information tools and education programming to best support people in their journey with arthritis and role as self-advocate. The survey deadline is July 24, 2021.

Take the survey: https://www.surveymonkey.com/r/ACENationalSurveyArthritisSelfAdvocacy

In this episode, Kelly Lendvoy and Cheryl Koehn discuss a national survey on arthritis medications reimbursement ACE has launched for Canadians living with arthritis to help identify challenges patients are experiencing in getting reimbursement for needed medications. The survey deadline is April 30, 2021.

Follow this link to take the survey: https://www.surveymonkey.com/r/ACENationalSurveyArthritisMedsReimbursement

About the survey:

• Open to Canadian residents using the Canadian Healthcare system as their primary health care insurer;
• You can also answer this survey on behalf of someone you provide care to (for example, a child, spouse, or parent living with inflammatory arthritis);
• The survey takes approximately 10 minutes to complete;
• Your answers will be anonymous and will be pooled for analysis to maintain anonymity;
• Your identity will never be known, and the results will remain in a secured database.