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    bleedingdisorders

    Explore "bleedingdisorders" with insightful episodes like "#41 - Sickle Cell in Jamaica and Around the World w/ Graham Serjeant", "#40 - Think COVID Through with Dr. Lewis Hsu.", "Best of BloodStream @ BDC 2021", "Period Poverty + Pink Tax" and "#39 - "Just Get Out of My Way": Mapillar is Making Moves" from podcasts like ""Cheat Codes: A Sickle Cell Podcast", "Cheat Codes: A Sickle Cell Podcast", "BloodStream", "FLOW - straight talk about extreme periods" and "Cheat Codes: A Sickle Cell Podcast"" and more!

    Episodes (100)

    #41 - Sickle Cell in Jamaica and Around the World w/ Graham Serjeant

    #41 - Sickle Cell in Jamaica and Around the World w/ Graham Serjeant

    Graham Serjeant, a British-born medical researcher best known for his multi-decade study of sickle cell disease in Jamaica, joins Cheat Codes to share stories and learnings from across his storied career.

     

    Show Notes:

    Episode Sponsor: Novartis,  For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers.

     

    Graham Roger Serjeant on Wikipedia: https://bit.ly/GRSwiki

    Link to Jamaican Cohort Study Article: https://bit.ly/38auoRO

     

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

     

    Subscribe to and rate Cheat Codes

    BloodStream Media

    For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

    #40 - Think COVID Through with Dr. Lewis Hsu.

    #40 - Think COVID Through with Dr. Lewis Hsu.

    Dr. Z and Dr. C chop it up with Dr. Lewis Hsu, CMO of Sickle Cell Disease Association of America to get an update on COVID-19 and sickle cell disease!

     

    Show Notes:

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

    BloodStream Media

    For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

    Subscribe to and rate Cheat Codes

     

    Connect with BloodStream Media:

    Find all of our bleeding disorders podcasts on BloodStreamMedia.com

    BloodStream on Facebook

    BloodStream on Twitter

    Period Poverty + Pink Tax

    Period Poverty + Pink Tax

    In episode 09, the Flow team speaks with Damaris from The Period Movement. Dama shares the multiple ways that EVERYONE can get involved in The Period Movement - including how to advocate for new legislation, how to host a community product drive and how Period.org’s resources can help young people to normalize speaking about the experience of having a period! 

    PLUS the pink tax - is it affecting your state? Check out links in our show notes to get involved. 

    Program Notes:

    Recommended articles and resource-links mentioned in the episode:

     

     

     

     

     

     

     

    FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/jR2O 

     

    Connect with BloodStream Media:

    Find all of our bleeding disorders podcasts on BloodStreamMedia.com

    BloodStream on Facebook 

    BloodStream on Twitter 

     

    Check out Believe Limited’s Other Work:

    BloodFeed: bloodfeed.com

    Bombardier Blood: bombardierblood.com

    Hemophilia: The Musical: breakingthroughhemophilia.com

    My Beautiful Stutter: mybeautifulstutter.com/

    Stop The Bleeding!: stbhemo.com

    Teen Impact Awards: teenimpactawards.com

    The Science Fair: thesciencefair.org

    #39 - "Just Get Out of My Way": Mapillar is Making Moves

    #39 - "Just Get Out of My Way": Mapillar is Making Moves

    Mapillar Dahn is a woman on a mission. Her organization, MTS, is not going to be stopped by anyone.  She is advocacy personified.  Dr. Z and Dr. C spend some time gleaning insight from this immense figure in sickle cell advocacy.

    Learn more about My Three Sicklers 

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

    BloodStream Media

    For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

    Subscribe to and rate Cheat Codes

    Subscribe to and rate The BloodStream Podcast

    Subscribe to and rate The Ask The Expert Podcast

    Subscribe to and rate BloodStream Journeys

    Connect with BloodStream Media:

    Find all of our bleeding disorders podcasts on BloodStreamMedia.com

    BloodStream on Facebook

    BloodStream on Twitter

    BDC Preview Party w/ NHF Staff

    BDC Preview Party w/ NHF Staff

    Patrick and guest co-host Mel Forrest welcome on members of National Hemophilia Foundation's staff to preview the community's biggest annual meeting of the year. 

    Show Notes:

    PRESENTING SPONSOR: Takeda 

    EPISODE SPONSOR: MyFactorFam.com

    REGISTER for BDC: https://bit.ly/3jT9SdJ

    CHECK out BDC Interactive program: https://bit.ly/3iJEcIJ

    LISTEN to The Pain Podcast

    SUBSCRIBE to BloodStream on Apple Podcasts

    CHECK out all our stuff

     

    Endo is Complex, Part 2

    Endo is Complex, Part 2

    In episode 08, the Flow team talk about the complexity of Endometriosis (part 2, cause Endo is Complex!)  

    Dr. Jocelyn Fitzgerald, Urogynecologist and Pelvic Reconstructive Surgeon, joins Jessica and Christie to unpack the complexity of endometriosis - symptoms, diagnosis and treatment options. 

    PLUS: the importance of having women working in ALL parts of the medical field, the obstacle of insurance coverage when seeking treatment, the lack of comprehensive research into female reproductive health - AND a prediction of what will be different in 5-10 years from now for those suffering from endometriosis. 

    Program Notes:

    Dr. Jocelyn Fitzgerald, Assistant Professor of Urogynecology and Pelvic Reconstructive Surgery, joins Jessica and Christie to unpack complexity of endometriosis. 

    Recommended articles and resource-links mentioned in the episode:

     

    PROGRAM NOTES / LINKS:

     

    • Dr. Jocelyn Fitzgerald

    https://www.obgyn.pitt.edu/people/jocelyn-fitzgerald-md

     

    • Find Dr. Fitzgerald on Twitter!

    https://twitter.com/jfitzgeraldMD

     

    • Doctor Recommended Article: 

    https://www.nytimes.com/2021/04/27/health/endometriosis-griffith-uterus.html

     

    • Christie’s Tips / Resource List

    https://www.cdc.gov/

    https://www.mayoclinic.org/

    https://my.clevelandclinic.org/

    https://www.acog.org/

     

    • You’re Not Crazy segment article: 

    https://www.kff.org/report-section/beyond-the-numbers-access-to-reproductive-health-care-for-low-income-women-in-five-communities-executive-summary/

     

     

    FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/X1Oa 

     

    Connect with BloodStream Media:

    Find all of our bleeding disorders podcasts on BloodStreamMedia.com

    BloodStream on Facebook 

    BloodStream on Twitter 

     

    Check out Believe Limited’s Other Work:

    BloodFeed: bloodfeed.com

    Bombardier Blood: bombardierblood.com

    Hemophilia: The Musical: breakingthroughhemophilia.com

    My Beautiful Stutter: mybeautifulstutter.com/

    Stop The Bleeding!: stbhemo.com

    Teen Impact Awards: teenimpactawards.com

    The Science Fair: thesciencefair.org



    #38 - You Bet Your Assay: A New Lab Test for Sickle Cell Disease

    Baby on Tour, Shared Decision Making + the ACA is here to stay!

    Baby on Tour, Shared Decision Making + the ACA is here to stay!

     Patrick and Amy catchup during the Lynch family’s east coast tour and discuss recent articles on California v Texas, shared decision making models, and safety related to AAV gene therapy.


    Show Notes:

     

    PRESENTING SPONSOR: Takeda 

    CONNECT with Genentech

    SUBSCRIBE to BloodStream on Apple Podcasts

    CHECK OUT all our stuff

    NEW BloodStream Media Website

    JD Supra Article - California v. Texas

    Article on Shared Decision-Making

    Gene Therapy Article

     

    Endo is Complex, Part 1

    Endo is Complex, Part 1

    In episode 07, the Flow team talk Endometriosis (part 1 - because Endo is Complex!)

    BloodStream Podcast host.Amy Board joins hosts Jessica and Christie to unpack complex experiences of endometriosis. 

    The Flow team speak to Lauren from Endo Black about her journey as a patient and advocate (rallying for patient led research and for accurate representation), and to Alison about her patient journey of coping with pain and dismissal for 7 years before finding treatment - AND the team talks about what it means to be on such journeys of seeking medical support for the extreme experience of “endo”.

    PLUS, as always, a reminder that You’re Not Crazy (ie: in instances of medical gaslighting...) 

    Program Notes:

    Our patient interviews discuss their respective journeys with endometriosis - including instances of ruptured cysts, fibroids, adenomyosis, extreme pain - and the arduous task of continuing to seek adequate medical support. Our Flow team is looking forward to sharing part 2 next month... Learn more about the advocacy organizations mentioned in this episode below: 

    PROGRAM NOTES / LINKS:

    • ENDO BLACK

    WEBSITE | INSTAGRAM | FACEBOOK | TWITTER

    YouTube

    • Lauren: YOUR FAVORITE ENDOMETRIOSIS COACH

    WEBSITE | INSTAGRAM

    Book

    • The White Dress Project

    WEBSITE | INSTAGRAM | FACEBOOK | TWITTER

     

     

     

    FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/dC2H

     

    Connect with BloodStream Media:

    Find all of our bleeding disorders podcasts on BloodStreamMedia.com

    BloodStream on Facebook 

    BloodStream on Twitter 

     

    Check out Believe Limited’s Other Work:

    BloodFeed: bloodfeed.com

    Bombardier Blood: bombardierblood.com

    Hemophilia: The Musical: breakingthroughhemophilia.com

    My Beautiful Stutter: mybeautifulstutter.com/

    Stop The Bleeding!: stbhemo.com

    Teen Impact Awards: teenimpactawards.com

    The Science Fair: thesciencefair.org



    #37 - Impact Players on Third and Long: Santonio Holmes and Martenzie Johnson

    #37 - Impact Players on Third and Long: Santonio Holmes and Martenzie Johnson

    Santonio Holmes, Super Bowl XLIII MVP and founder of the III & Long Foundation is joined by Martenzie Johnson, writer for ESPN's "The Undefeated", on this week's episode as they discuss the importance of Sickle Cell screening and advocacy within sports organizations, as well as their close and personal connections to Sickle Cell Disease and Trait.

     

    Dr. Ahmar Zaidi on Twitter

    Dr. Michael Callaghan on Twitter

    BloodStream Media

    Connect with BloodStream Media:

    Find all of our bleeding disorders podcasts on BloodStreamMedia.com

    BloodStream on Facebook

    BloodStream on Twitter

    Howlin' Rays, coffee's the new vitamins, and Two Disabled Dudes!

    Howlin' Rays, coffee's the new vitamins, and Two Disabled Dudes!

    Patrick and Amy are LIVE and discuss some unfortunate lunchtime mishaps and new studies on coffee before Josh leads the latest Let's Talk mental health segment and Patrick leads a talk with Sean and Kyle, hosts of the Two Disabled Dudes Podcast.  

    Notes:

    Presenting Sponsor: TAKEDA - bit.ly/TakedaBDsite

    Let’s Talk Segment Sponsor: SANOFI GENZYME - http://bit.ly/LetsTalkMHBSP

    CHECK OUT Two Disabled Dudes Podcast: https://bit.ly/3cPcM0z

    READ The Health Benefits of Coffee: https://nyti.ms/3gGrl7J

    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

    SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP

    What do hormones do?

    What do hormones do?

    In episode 06, Christie and Jessica sit back down with Girlology’s Dr. Melissa Holmes to ask “What are hormones?” and “What do hormones do in the body?” More hard hitting questions include:

    How do hormones regulate menstruation?

    Can hormones cause abnormal physical symptoms?

    What are the benefits and risks of hormone replacement therapy (birth control)?

    What hormones shift during menopausal years?

    When is hormone replacement the right treatment course for menopausal years?

    ...Is it true that menstruators can ‘sync up’ their cycles because of hormones?

    PLUS - tips for tracking your cycle, upcoming events, and (as always) a reminder that you’re not crazy! 

    Program Notes:

    Hormones are messengers in the body, helping to regulate menstruation and menopause. What do hormones do in the body? How do they do what they do? Our Flow team asks hard-hitting questions of OB-GYN and co-founder of Girlology, Dr. Melissa Holmes!

    LINKS:

    GIRLOLOGY: https://girlology.com/

    Christie’s Course: https://howtotalktoyourdoctor.thinkific.com/courses/healthdisparities

    “The Controversial History of Hormone Replacement Therapy”: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6780820/

    Find our Hosts on Instagram:  @jessicalaurenrichmond @christie_publichealth

    FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/HUcR 

     

    Connect with BloodStream Media:

    Find all of our bleeding disorders podcasts on BloodStreamMedia.com

    BloodStream on Facebook 

    BloodStream on Twitter 

     

    Check out Believe Limited’s Other Work:

    BloodFeed: bloodfeed.com

    Bombardier Blood: bombardierblood.com

    Hemophilia: The Musical: breakingthroughhemophilia.com

    My Beautiful Stutter: mybeautifulstutter.com/

    Stop The Bleeding!: stbhemo.com

    Teen Impact Awards: teenimpactawards.com

    The Science Fair: thesciencefair.org



    #36 - This is Why We Call it Advanced Practice

    BloodStream LIVE is BACK! - Concerns in Hemophilia & Asking for Help

    BloodStream LIVE is BACK! - Concerns in Hemophilia & Asking for Help

    Patrick and Amy are live, in-studio, for the first BloodStream LIVE of the year!  Join the hosts and a variety of special guests for segments on patient education, the return of in-person patient meetings, asking for help, and so much more- including an announcement about a major rare disease podcast joining BloodStream Media!

     

    Notes:

    Presenting Sponsor: TAKEDA - bit.ly/TakedaBDsite

    Let’s Talk Segment Sponsor: SANOFI GENZYME - http://bit.ly/LetsTalkMHBSP

     

    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

    SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP

    SUBSCRIBE to Once Upon A Gene Podcast: bit.ly/OUAGspot

     

    SUBMIT to the BIG BLOODY TALENT SHOW: bit.ly/BigBloodyTalentShow

    SIGNUP for our FIRST-EVER NEWSLETTER: bit.ly/NewslettterSignups



    #35 - Neighborly Love: Indiana is Changing the SCD Landscape

    First patient dosed with SubQ inhibitor treatment + guest Bob Falkenberg

    First patient dosed with SubQ inhibitor treatment + guest Bob Falkenberg

    Patrick and Amy catch up on some recent community news then speak with leukemia survivor and bone marrow transplant recipient Bob Falkenberg as he’s set to kick off his 10th Lifeblood cycling ride to support Be The Match.

     

    Notes:

    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

     

    SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP

    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

     

    BloodStream LIVE May 26th - Event link: http://bit.ly/BloodStreamIsBack

     

    Bob’s Team Lifeblood: http://bihttps://bit.ly/3yaPj2U

    NHF’s Community Voices in Research: http://bit.ly/CVRNHF

    CSL and uniQure close agreement: http://bit.ly/CSLuni

    Experimental SubQ Inhibitor Treatment: http://bit.ly/SubQinhib




    What is the patient experience?

    What is the patient experience?

    In episode 05 “What is the patient experience?” our Flow team takes a look at patient stories from three different menstruators:

    How does a doctor miss a woman’s second vagina? 

    What is a near-death first period experience like?

    What does it look like to face racism when seeking treatment?

    Christie and Jessica speak with Brittany Jacobs, Michelle Ryzak, and Teonna Woolford about their varied experiences of extreme menstruation.

    Program Notes:

    In episode 05, Christie and Jessica focus on the patient experience. They speak with Britany Jacobs about uterus didelphys; share some of their conversation about extreme first menstruation with von Willebrand's disease patient MIchelle Ryzak; and talk to Teonna Woolford - patient advocate on a mission to shine light on sickle cell’s impact on reproductive health.

     

    LINKS:

     

    @britsburg on Tik Tok: https://www.tiktok.com/@britsburg?lang=en

     

    What is Uterine Didelphys? https://www.nationwidechildrens.org/conditions/uterine-didelphys

     

    Michelle Ryzak: https://www.howtotalktoyourdoctor.com/blog1/patient-spotlight-meet-michelle

     

    Teonna Woolford: https://www.howtotalktoyourdoctor.com/blog1/patient-spotlight-meet-teonna

     

    Teonna’s organization “SC RED”: https://sicklecellrhed.org/

     

    Find our Hosts on Instagram:  @jessicalaurenrichmond @christie_publichealth

     

    FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/26KF



    “You don’t have a bleeding disorder, do you?”

    “You don’t have a bleeding disorder, do you?”

    Patrick and Amy speak to Kathy Raufi on the brink on International Thalassemia Day, get input from the Coalition for Hemophilia B on some recent news, and discuss how von willebrand factor may be key to helping treat clotting disorders, too!

     

    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

     

    SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP

    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

     

    International Thalassemia Day #ITD2021

     

    To learn more about iron overload, treatments, comorbidities with Thalassemia, and more, visit:

     

    Thalassemia Foundation of Canada:

    https://bit.ly/33zlLOB

     

    Cooley’s Anemia Foundation:

    https://bit.ly/2RudLeX

     

    Patients’ Stories:

    https://bit.ly/2SvzLqe




    Donated medicine and what’s “youth empowerment” mean, really?

    Donated medicine and what’s “youth empowerment” mean, really?

    Patrick and Amy are joined by Julie Kim, President of the Plasma-Derived Therapies Business Unit for Takeda, to discuss Takeda’s 5-year commitment to the WFH Humanitarian Aid Program. Then later in the show they’re joined by frequent contributor Alexa Abreu and her sister Juliemar - a former Teen Impact Honoree - to discuss the uncelebrated accomplishments of our youth and what supporting young people should actually look like.

     

    Notes:

    PRESENTING SPONSOR: Takeda - bit.ly/TakedaBDsite

     

    SUBSCRIBE to BloodStream on Apple Podcasts: bit.ly/BSPAP

    CHECK OUT all our stuff:  bit.ly/AllBloodStreamStuff

     

    NOMINATIONS for the Teen Impact Awards: http://bit.ly/TIA2021bsp

    TAKEDA joins WFH’s Humanitarian Aid Program: bit.ly/WFHTakeda2021



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