bloodstream

Mason Bobro shares his experience as a transgender man with a bleeding disorder, including his views on preferred pronouns, gender dysmorphia, monthly periods, and safe spaces for LGBTQ+ patients.

Hosted by Drama Del Rosario

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

Mel Forrest, host of The Pain Pod, is joined by guest Jeff Johnson to discuss what it means to be a blood brother and how it’s changed over the years. 

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

Singer, songwriter, and community member Max Feinstein shares the recent journey with his new record, Redefine. Max hopes to do his part to normalize chronic conditions and influence those around him to view those who live with them through a more compassionate lens through his art. Listen in to hear his compelling story and see how you can be involved in Max’s work! We’ll also hear more about the Better You Know campaign - a great episode this week!

Program Notes: 

Better You Know Campaign: https://www.cdc.gov/ncbddd/blooddisorders/women/materials/index.html

Women with Bleeding Disorders Risk Assessment Tool: https://www.betteryouknow.org/i-want-to-know-for-women

Breaking Through: www.breakingthroughhemophilia.org

Nominate a Teen Today!: www.teenimpactawards.org 

Support Max Feinstein here: https://fundraising.fracturedatlas.org/redefine-hemophilia

The Speakpipe Link: givemeanh.com 

Listen to Max here: https://maxfeinstein.bandcamp.com/

Mel Forrest, host of The Pain Pod, is joined by guest Rebecca Hill to discuss HIV and HepC, the community today and Blood of the Paladin for National Women and Girls HIV Awareness Day. 

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

Dr. Z and Dr. C hang out with Blaze Eppinger and learn about his journey with sickle cell disease.  

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

BloodStream Media

For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

Subscribe to and rate Cheat Codes

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Subscribe to and rate The Ask The Expert Podcast

Subscribe to and rate BloodStream Journeys

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook

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Gayathri Rajaram talks about being the mother of Swedha Rajaram, a teenager with hemophilia. She shares her first experiences finding out about her daughter’s bleeding disorder, plus her family’s love for Indian classical dance.

Learn more about how you can get involved during Bleeding Disorder Awareness Month with NHF: https://www.hemophilia.org/give/join-us/bleeding-disorders-awareness-month

Show your pride for Bleeding Disorders Awareness Month with these resources from HFA: https://www.hemophiliafed.org/for-patient-families/meetings-events/bleeding-disorders-awareness-month/ 

We introduce Doug Kerr to the community! Doug is the chief medical officer at Generation Bio, the company investigating non-viral gene therapy. Listen in to learn more about this fascinating science AND Jessica Richmond, co-host of FLOW, will join us to share a preview of her conversation with Dr. Paula James, hematologist, and founder of Let’s Talk Period during the March FLOW episode. A great listen!

Program Notes: 

Check out Generation Bio: https://generationbio.com/ 

Subscribe/listen to FLOW, straight talk about extreme periods: https://www.bloodstreammedia.com/shows/flow 

Let’s Talk Period: https://letstalkperiod.ca/ 

Follow Amy on Instagram

Follow Jessica on Instagram

In this episode, Katharine, Jonathan, and Patrick are joined by Chief Creative Officer Ryan Gielen of Believe Limited who helped Jonathan turn his life story into a graphic novel. Ryan takes us behind the scenes of what it took to bring the story to life, and they are joined by legendary illustrator Larry Elmore to hear a bit of his life story and how he became the visionary artist of the Dungeons and Dragons game itself.

Program Notes:

Want to follow more of our Journey? Subscribe here! 

Blood of the Paladin is exclusively sponsored by BioMarin: www.biomarin.com

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook 

BloodStream on Twitter 

Check out Believe Limited’s Other Work:

BloodFeed: bloodfeed.com

Bombardier Blood: bombardierblood.com

Hemophilia: The Musical: breakingthroughhemophilia.com

My Beautiful Stutter: mybeautifulstutter.com/

Stop The Bleeding!: stbhemo.com

Teen Impact Awards: teenimpactawards.com

The Science Fair: thesciencefair.org

Dr. Krish, a world-renowned bone marrow transplant/sickle cell physician from Children’s Healthcare of Atlanta, breaks down bone marrow transplant while talking about his road to prominence in the field. 

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

BloodStream Media

For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

Subscribe to and rate Cheat Codes

Subscribe to and rate The BloodStream Podcast

Subscribe to and rate The Ask The Expert Podcast

Subscribe to and rate BloodStream Journeys

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter

When we last left our hero, Jonathan had just gotten the news that he was in line for a new liver. But he's not out of the woods just yet. In fact, he's quite literally heading deeper into the woods for some well-needed R&R with his Dungeons and Dragons guild, Mike, Dan and Ian. Follow along through this final chapter as Jonathan fights for his life, comes face to face with his Paladin, and journeys through opioid withdrawal. 

Program Notes:

Want to follow more of our Journey? Subscribe here! 

Blood of the Paladin is exclusively sponsored by BioMarin: www.biomarin.com

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook 

BloodStream on Twitter 

Check out Believe Limited’s Other Work:

BloodFeed: bloodfeed.com

Bombardier Blood: bombardierblood.com

Hemophilia: The Musical: breakingthroughhemophilia.com

My Beautiful Stutter: mybeautifulstutter.com/

Stop The Bleeding!: stbhemo.com

Teen Impact Awards: teenimpactawards.com

The Science Fair: thesciencefair.org

Katharine is joined by Jonathan, Rebecca, and their D&D friends Mike, Dan and Ian, to discuss what an HIV diagnosis really looks like, the right time to disclose to your friends, and of course, they’ll nerd out about some of the most memorable moments from their Dungeons and Dragons adventures. All this and more on today's episode of Blood of the Paladin.

Program Notes:

Want to follow more of our Journey? Subscribe here! 

Blood of the Paladin is exclusively sponsored by BioMarin: www.biomarin.com

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook 

BloodStream on Twitter 

Check out Believe Limited’s Other Work:

BloodFeed: bloodfeed.com

Bombardier Blood: bombardierblood.com

Hemophilia: The Musical: breakingthroughhemophilia.com

My Beautiful Stutter: mybeautifulstutter.com/

Stop The Bleeding!: stbhemo.com

Teen Impact Awards: teenimpactawards.com

The Science Fair: thesciencefair.org

You met their characters in episode two, now meet the real life people that inspired the graphic novel. Katharine is joined today by Jonathan, his wife Rebecca, and his three D&D buddies Ian, Dan and Mike. They discuss their love of Dungeons and Dragons, and what it was like to have a friend living with hemophilia and an HIV positive diagnosis. 

Program Notes:

Want to follow more of our Journey? Subscribe here! 

Blood of the Paladin is exclusively sponsored by BioMarin: www.biomarin.com

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook 

BloodStream on Twitter 

Check out Believe Limited’s Other Work:

BloodFeed: bloodfeed.com

Bombardier Blood: bombardierblood.com

Hemophilia: The Musical: breakingthroughhemophilia.com

My Beautiful Stutter: mybeautifulstutter.com/

Stop The Bleeding!: stbhemo.com

Teen Impact Awards: teenimpactawards.com

The Science Fair: thesciencefair.org

Sit back, close your eyes and allow yourself to go on a journey through time as Jonathan (played by Patrick James Lynch) takes us through his formative years of life as a young boy living with hemophilia. Through the power of a 360 degree soundscape and a full cast of characters, we will venture on Jonathan’s first big hike, learning to self infuse, and find out first hand exactly how Dungeons and Dragons became such an important part of his life. 

Program Notes:

Want to follow more of our Journey? Subscribe here! 

Blood fo the Paladin is exclusively sponsored by BioMarin: www.biomarin.com

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook 

BloodStream on Twitter 

Check out Believe Limited’s Other Work:

BloodFeed: bloodfeed.com

Bombardier Blood: bombardierblood.com

Hemophilia: The Musical: breakingthroughhemophilia.com

My Beautiful Stutter: mybeautifulstutter.com/

Stop The Bleeding!: stbhemo.com

Teen Impact Awards: teenimpactawards.com

The Science Fair: thesciencefair.org

Dr. C and Dr. Z sit down with SCD advocate extraordinaire and reproductive health superstar Teonna Woolford, as well as public health expert Christie VanHorne.

Let the epic journey begin! Today we join our host Katharine as she guides us down the path of Jonathan Hill’s life. We hear about his early days, his love of Dungeons and Dragons, and discuss the power and importance of the game with our special guest, the Creator and Dungeon Master of Dimension 20 Brennan Lee Mulligan. 

Program Notes:

Want to follow more of our Journey? Subscribe here! 

Blood of the Paladin is exclusively sponsored by BioMarin: www.biomarin.com

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook 

BloodStream on Twitter 

Check out Believe Limited’s Other Work:

BloodFeed: bloodfeed.com

Bombardier Blood: bombardierblood.com

Hemophilia: The Musical: breakingthroughhemophilia.com

My Beautiful Stutter: mybeautifulstutter.com/

Stop The Bleeding!: stbhemo.com

Teen Impact Awards: teenimpactawards.com

The Science Fair: thesciencefair.org

In episode 01, our Flow team reviews the anatomy of “inside and outside parts”, answers patient questions and offers tips for parents preparing to support their child's first period. 

Public health advocate Christie VanHorne & intersectional feminist writer Jessica Richmond are joined by Girlology's Dr. Melissa Holmes to unpack the range of variables that occur during female reproductive years. 

Program Notes:

Why do we menstruate? What is menstruation made of? What is the normal range of pain that accompanies menstruation? What is the normal range of color, amount of blood and amount of time it takes to menstruate?

GIRLOLOGY Anatomy PDF

Find our Hosts’ on IG:  @jessicalaurenrichmond @howtotalktoyourdoctor

Learn more about Dr. Holmes work: GIRLOLOGY https://www.girlology.com/ Find Girology on Instagram @girlology

FLOW is sponsored by Takeda, the manufacturer of a treatment for adults with von Willebrand disease. To see if this treatment might be right for you and your needs, visit: https://ssshare.it/bgIr

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook 

BloodStream on Twitter 

Check out Believe Limited’s Other Work:

BloodFeed: bloodfeed.com

Bombardier Blood: bombardierblood.com

Hemophilia: The Musical: breakingthroughhemophilia.com

My Beautiful Stutter: mybeautifulstutter.com/

Stop The Bleeding!: stbhemo.com

Teen Impact Awards: teenimpactawards.com

The Science Fair: thesciencefair.org

Dr Julie Kanter is a force to be reckoned with.  Her passion, desire, and expansive to-do list is unmatched.  She’s working constantly to improve access to and quality of care for sickle cell patients.

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

BloodStream Media

For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

Subscribe to and rate Cheat Codes

Subscribe to and rate The BloodStream Podcast

Subscribe to and rate The Ask The Expert Podcast

Subscribe to and rate BloodStream Journeys

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter

Hertz Nazaire is our inspiration to be better doctors and, more importantly, better humans. Here is our most recent conversation with this Sickle Cell warrior.

Hertz Nazaire's work

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

BloodStream Media

For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

Subscribe to and rate Cheat Codes

Subscribe to and rate The BloodStream Podcast

Subscribe to and rate The Ask The Expert Podcast

Subscribe to and rate BloodStream Journeys

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter

Our theme this month is “The Life I Choose.”  So often, with a chronic condition, it can feel like nothing is within our control.  That can be challenging physically, mentally, emotionally. Our stories this month dive into those challenges, as well as the empowerment that comes by taking charge of the things we can control.  By reminding ourselves of the ways we can live the life we choose.

Program Notes:

Want to follow more of our Journeys? Subscribe here! 

BloodStream Journeys is exclusively sponsored by BioMarin: www.biomarin.com

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook 

BloodStream on Twitter 

Check out Believe Limited’s Other Work:

BloodFeed: bloodfeed.com

Bombardier Blood: bombardierblood.com

Hemophilia: The Musical: breakingthroughhemophilia.com

My Beautiful Stutter: mybeautifulstutter.com/

Stop The Bleeding!: stbhemo.com

Teen Impact Awards: teenimpactawards.com

The Science Fair: thesciencefair.org

Dr. Z and Dr. C sit down with Dr. Lewis Hsu of University of Illinois Chicago to talk about his ongoing work in implementation science in sickle cell disease.

Dr. Ahmar Zaidi on Twitter

Dr. Michael Callaghan on Twitter

BloodStream Media

For all inquiries: mailbag@bloodstreammedia.com (subject: Cheat Codes)

Subscribe to and rate Cheat Codes

Subscribe to and rate The BloodStream Podcast

Subscribe to and rate The Ask The Expert Podcast

Subscribe to and rate BloodStream Journeys

Connect with BloodStream Media:

Find all of our bleeding disorders podcasts on BloodStreamMedia.com

BloodStream on Facebook

BloodStream on Twitter