boston_children's_hospital

Explore "boston_children's_hospital" with insightful episodes like "Living with HLHS & Evolving Diagnoses" and "In Utero Surgery for Babies with HLHS" from podcasts like ""Heart to Heart with Anna" and "Heart to Heart with Anna"" and more!

Episodes (2)

Living with HLHS & Evolving Diagnoses

Annie Ulchak is a unique Heart Warrior. Born in Lima, Peru in 1979 with nomenclature HLHS, she came to the United States for life-saving surgery, after she was adopted. She joins Anna on this episode of "Heart to Heart with Anna" to talk to her about what her medical journey has been like, what complications she has encountered as an adult, and how she has taken control of her medical life.

In the 3rd segment, Annie mentions creating a medical history that Heart Warriors can keep with them. Here is a link to the Adult Congenital Heart Association page which helps adults build a convenient History Passport: https://www.achaheart.org/media/1215/php2018web.pdf

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Heart to Heart with Anna

enJune 09, 2020

In Utero Surgery for Babies with HLHS

Now, more than ever before, parents are finding out in utero if their baby will be born with some kind of congenital birth defect. One potentially fatal congenital heart defect is hypoplastic left heart syndrome (or HLHS). According to Texas Children's Hospital, this occurs in about 1 in 6,000 live births when the fetus's left side of the heart does not develop normally. Boston Children's Hospital led the way for babies diagnosed in utero with HLHS by creating an in utero procedure to reduce the severity of HLHS or, in some cases, to prevent the critical congenital heart defect from actually occurring -- allowing the baby's heart to eventually work with four pumping chambers (instead of the 2 chambers so many HLHS babies have). Today's show will feature a couple who traveled to Boston when they discovered their unborn child would have HLHS. How dangerous was the surgery? How many surgeries did their son need? What is their son's prognosis? Listen to this show for answers to these questions and more!Support the show

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

Social Media Pages:

Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website

Heart to Heart with Anna

enApril 07, 2015

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boston_children's_hospital

Episodes (2)

Living with HLHS & Evolving Diagnoses

In Utero Surgery for Babies with HLHS