hypoplastic_left_heart

Matt Creedon is featured in this touching interview with Host Michael Liben. Matt shares what it was like to have two sons born with congenital heart defects, the surgeries they endured and how they affected the family and finally, he remembers Chase and speaks about when Chase passed away. This episode is a glowing tribute to a little boy who touched many lives.

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What is it like to grow up with critical congenital heart defects requiring surgery in the first year of life? How does having multiple surgeries through a person's life affect their career choices? How are two amazing adult survivors giving back?Support the show

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What is healthcare like in Australia? What support group is there for children born with congenital heart defects (CHDs) in Australia? Is there hope for children born with critical congenital heart defects Down Under? Tune in to hear two heart parents' perspectives on raising a child with hypoplastic left heart syndrome in Australia.Support the show

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What is health like in Italy? How does a father, who is also a doctor, deal with having a son with a critical heart defect? What advice does the father of an adult with a heart defect have for other Italian heart parents?Support the show

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Is it possible to find true love even if you're born with a broken heart? What kind of people are willing to marry a person with a congenital heart defect? What advice do adults with CHDs have for others looking for love?Support the show

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What should parents do if they're told their unborn children will be born with a heart defect? What professionals can help pregnant women who have babies with heart defects? Is there hope for babies born with broken hearts?Support the show

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How does being a caregiver for a baby with a congenital heart defect affect mothers? What challenges do mothers face when their babies have a heart defect? What do these mothers wish others knew about caregiving for a child with a heart defect?Support the show

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What causes congenital heart defects? How has the field of genetics evolved? What advancements have been made in genetics regarding congenital heart defects?Support the show

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How difficult is it to go through the teenage years when you have a congenital heart defect? How does having had open-heart surgery set a person apart from their peers? What advice do these Guests have for other teens with congenital heart defects?Support the show

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What is the number one birth defect? How have grandparents, survivors and parents felt about being part of the congenital heart defect community? Tune in to hear the answer to these questions and more!Support the show

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How does a 32-year old HLHS Survivor seize the day? Why would such a young woman write her memoirs? What advice does this multiple-transplant survivor have for others? Tune in to hear the answer to these questions and more!Support the show

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How does a 30-year-old HLHS Survivor "seize the day"? How does she seize the day with her husband? What advice does she have for parents of HLHS babies and HLHS Survivors? Tune in to hear Maribeth Poole share this information and more!Support the show

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How does a 25-year-old HLHS Survivor "seize the day"? What makes Myles Schweitzer exceptional? How does being a musician affect his philosophy of life? Tune in to discover the answer to those questions and more!Support the show

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Chris Perez is a Heart Dad from North Carolina. His son Nolan was born in 2012 with Hypoplastic Left Heart Syndrome. For almost 2 years he's written a blog called Half Heart. Whole Life: an HLHS Dad's blog, where he lays out the life of a Heart Dad with honesty and humor. On today's episode, Chris will be presenting an update to the well-known essay "Welcome to Holland." This essay has been read by many since it was written in 1987: today Chris will give it a fresh new spin!Support the show

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What happens when you are a nurse and the father of a child who is perfectly healthy when all of a sudden you are the father of a baby with a chronic illness but nobody believes you when you say something is wrong? What lessons can be learned from a situation like that? What events transpired? How is it that the baby's survival could be viewed as a miracle? What conditions existed to allow the "miracle" to occur? Frank Jaworski is a certified registered nurse anesthetist who experienced this situation. In this show he'll reflect on what happened when his second son was born with a critical congenital heart defect which went undiagnosed until the baby was in congestive heart failure. He'll also share, as a medical professional, what he learned as a nurse and how others can benefit from his experience.Support the show

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Now, more than ever before, parents are finding out in utero if their baby will be born with some kind of congenital birth defect. One potentially fatal congenital heart defect is hypoplastic left heart syndrome (or HLHS). According to Texas Children's Hospital, this occurs in about 1 in 6,000 live births when the fetus's left side of the heart does not develop normally. Boston Children's Hospital led the way for babies diagnosed in utero with HLHS by creating an in utero procedure to reduce the severity of HLHS or, in some cases, to prevent the critical congenital heart defect from actually occurring -- allowing the baby's heart to eventually work with four pumping chambers (instead of the 2 chambers so many HLHS babies have). Today's show will feature a couple who traveled to Boston when they discovered their unborn child would have HLHS. How dangerous was the surgery? How many surgeries did their son need? What is their son's prognosis? Listen to this show for answers to these questions and more!Support the show

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Dr. Woody Benson has been practicing in the field of pediatric cardiology for 43 years. He is a pioneer in the field of pediatric electrocardiology and for the last 20 years he has been training or researching the molecular genetics of pediatric heart disease. Clearly few pediatric cardiologists have experienced or even been partially responsible for some of the amazing changes we have seen in pediatric cardiolgy like Dr. Benson has. Tune in to hear Dr. Benson talk about the changes he has seen in the advancement of genetics to understand congenital heart defects.Support the show

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What happens when you are pregnant and go in for a routine ultrasound only to discover your baby has a heart defect? How do you handle the news? What options are you given? Even though congenital heart defects are the number one birth defect, there aren't many people who talk about it and it's not a widely known fact. Today we'll talk with three mothers who have been there -- who found out in utero, not only that their babies would be born with a heart defect, but that they would be born with critical congenital heart defects requiring surgery in their first year of life. (Thanks to David Castillo Dominici at FreeDigitalPhotos.net for the beautiful photo.)Support the show

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