hypoplastic_right_heart

Gabriel Santana was born in São Paulo Brazil in 1988 with hypoplastic right, single ventricle, ventricular septal defect and a heart murmur. At first the doctors thought Gabriel only had a heart murmur and sent him home. After almost a year Gabriel’s condition worsened as he developed pneumonia and started experiencing fluid in the sac around his heart. What is healthcare like in Brazil? What assistance is there for children born with congenital heart defects (CHDs) in Brazil? What new challenges is this adult survivor facing now?Support the show

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Is it possible to find true love even if you're born with a broken heart? What kind of people are willing to marry a person with a congenital heart defect? What advice do adults with CHDs have for others looking for love?Support the show

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How does the mother of a daughter with HRHS seize the day? How does her job also help her to seize the day? What advice does she have for other parents?Support the show

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Seizing the day, or Carpe Diem, can be a difficult concept for people in the throes of extreme distress and few experiences are as distressing as having to hand over a child for open-heart surgery. Now imagine doing it twice. Now imagine one of the surgeries doesn't work as planned and one of your babies needs a heart transplant. That's what happened to our Guest, Katina Robalino. The mother of three, she had two babies born with heart defects and even though both babies had life-saving surgeries, one of them finally needed a heart transplant. How does Katina seize the day? How has having two younger sisters with heart defects affected her older daughter? What advice does this Guest for other families facing a similar situation to the ones she's faced? Tune in to discover the answers to these questions and more!Support the show

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Baby Blue Sound Collective

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How does a 49-year-old HRHS Survivor "seize the day"? What makes Tracey Grasty exceptional? How does being a nurse affect her philosophy of life? Tune in to discover the answer to those questions and more!Support the show

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Baby Blue Sound Collective

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How do a mother and daughter duo seize the day when they're dealt the blow of a chronic illness? How does their perspective change over time? What advice do they have for others?Support the show

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

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