heart_survivor

This panel discussion includes four adults who were born with congenital heart defects and one parent of a twin daughter who was born with a heart defect. Host, Anna Jaworski, is the mother of an adult son who was born with a congenital heart defect. Together, these six women talk about some of the different terms and labels that are commonly used in the congenital heart defect community.

How do terms and labels affect those born with congenital heart defects? Do terms define a person? Do labels hurt? Can labels cause bullying? What are the pros and cons of using abbreviations and labels when referring to people who were born with congenital heart defects?

Panelists include return Guests Laura Ryan, Kathy Ware, Aubyn Baker-Riley and new "Heart to Heart with Anna" Guests Jen Hart Mulder and Felisha Jarschke. Tune in to hear how these panelists refer to themselves, refer to others in the heart community, and what terms are considered acceptable and which terms or labels are disliked by panelists.

Other "Heart to Heart with Anna" episodes mentioned in this podcast:

Laura Ryan's podcast:
Heart Warrior Mom Raising Children to Adulthood
Living with a Bi-directional Glenn Heart

Laura Ryan and Kathy Ware's podcast:
A Heart Warrior’s Early Onset Menopause

Kathy Ware's podcast:
From Learning Disabled to College Professor

Aubyn Baker-Riley's podcast:
When a Heart Warrior is Living in Heart Failure

Jen Hart Mulder's podcast:
Hartfelt: Living Life with Congenital Heart Disease

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Premiering August 6, 2019, Silent Cries: Breaking Through CHD Awareness is Phillip Wolf's latest documentary. With over forty types of CHDs, Silent Cries: Breaking Through CHD Awareness is produced to focus on children and adults born with heart defects and how they have inspired other families and individuals to never give up and continue their fight. There is hope, and advancements in technology are evolving rapidly, yet a cure seems elusive. Many CHDs (congenital heart defects) go undetected until later in adult life.

Join Anna today as she interviews the creator and producers of Silent Cries. Phillip Wolf was inspired to create this documentary due to the death of his son, Jeremiah, from his congenital heart defect. Executive Producer/Producer Nicole Vickery was born with a congenital heart, as was Co-Producer David Franco. They share with Anna why they became involved with this project and why it's important for everyone to watch this documentary.

Silent Cries: Breaking Through CHD Awareness will be available on Amazon Prime Video. For more information, check out Phillip Wolf's website: http://www.pwfilms.net/

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Baby Blue Sound Collective

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Allison Holmes is a 46-year-old survivor of CHD. She has seven defects and is also a cancer survivor. She feels that she is thriving with CHD.  She has been evaluated twice for the heart and lung transplant list but is not on the list at this time. Allison has Situs Inversus and her doctors are not sure how to hook up a healthy heart and lungs to the rest of her organs. She works as an ESL tutor from home and volunteers with Meals on Wheels and Carolina Waterfowl Rescue. She is also a North Carolina Adult Congenital Heart Association Ambassador.

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

Social Media Pages:

Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

Social Media Pages:

Apple Podcasts
Facebook
Instagram
MeWe
Twitter
YouTube
Website