tetralogy_of_fallot

Baby Hearts Press People's Choice Award Winners, Dr. Brandon Lane Phillips and Jeremy Miller, return to "Heart to Heart with Anna' with an update on how their award-winning book is doing and all of the exciting news surrounding the book. Why would a cardiologist choose to write his life story about growing up with tetralogy of Fallot? How did his life intersect with his favorite childhood actor from the 1980s TV sitcom "Growing Pains"? What new project are these gentlemen working on?

You'll learn the answers to these questions and more in this episode of "Heart to Heart with Anna."

Helpful Links to Broadcast Episodes Mentioned in the Show:

Starlight Foundation (for wishes for kids with chronic illness) 

https://www.starlight.org/

Fox and Friends interview with Brandon and Jeremy: https://www.foxnews.com/entertainment/growing-pains-star-jeremy-miller-and-doctor-discuss-30-year-friendship

Dr. Brandon Lane Phillips’ Other “Heart to Heart with Anna” appearances:

8th Anniversary Special Part 1  https://www.buzzsprout.com/62761/9611160 

Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients https://www.buzzsprout.com/62761/3725774

Interwoven Lives and Congenital Heart Defects  https://www.buzzsprout.com/62761/1539262

Dr. Brandon Phillips and Jeremy Miller’s other joint appearance:

A Wish-Made Friendship https://www.buzzsprout.com/62761/4190255

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

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Mike Edenburn was born in 1943 with Tetralogy of Fallot (ToF). Mike was the 44th patient to receive the Blalock Taussig shunt. On October 2, 1945, Dr. Alfred Blalock, Vivian Thomas, and Dr. Denton Cooley performed heart surgery on Mike. After the surgery, Mike turned from blue to pink and was able to breathe freely for the first time in his life. Mike enjoyed good health until an auto accident at the age of 20 left him with subacute bacterial endocarditis, where it was discovered that the shunt was no longer sufficient. Dr. Horace Stansel performed another TOF repair on Mike's 21st birthday in 1964. Mike is a computer specialist, entrepreneur, family man, devoted Catholic, and volunteer with friends from everywhere. He is involved with the Rotary Club's Gift of Life program, which provides life-saving care to children with heart problems. Today, Mike is 77 years old and very grateful to Our Lord and medical professionals responsible for his good health. 

Today Mike will talk with Anna about the legendary doctors who worked with him, the choices he made in life and what kind of quality of life he has had, and what advice he has for others who are currently living with congenital heart defects. In the last segment, Mike shares with Anna what it's meant to him to be part of the Rotary Club's Gift of Life Program and how he has witnessed it change the lives of its recipients.

Links mentioned in the program:

Mike's Rotary club website: http://rotarycebu.org/
Mike's Rotary club Facebook page: https://www.facebook.com/rotarycebu
Gift of Life International website: https://www.giftoflifeinternational.org/

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Who is Eric Ankerud? Why would someone want to start a nonprofit organization to help the congenital heart defect community? What services does Heartfelt Dreams Foundation provide?

Eric Ankerud's wife, Lori, was born in 1958 with a serious heart defect called 'tetralogy of Fallot.' Lori was known as a "blue baby," and she had a ventricular septal defect or "hole in her heart. Her first open-heart surgery was a Blalock-Taussig shunt at the age of 2. At 3, her ventricular septal defect was closed and her pulmonary artery was repaired, which allowed her to have more normal blood flow to the lungs.

While Lori's early childhood was fraught with heart procedures and doctor's visits, it was also filled with the love of family and opportunities for her artistic abilities to blossom.

Lori and Eric married in 1985. They have two adult children. Although Lori has needed follow-up care including major heart reconstructive surgery, she has led a great quality of life. She and her husband felt inspired to start a nonprofit organization to help others in the CHD community.

In this episode of "Heart to Heart with Anna," Eric shares with Anna how his wife's congenital heart defect (CHD) journey has helped them to understand the needs of the CHD community and what their nonprofit is doing to help fill the needs they have witnessed over the course of their lives together.

To learn more about Eric and Lori's nonprofit organization, use this link: https://www.heartfeltdreamsfoundation.org/

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Do you have a child with tetralogy of Fallot (ToF)? Do you wonder what that child's life might be like? Do you ever worry about how you will help your child move beyond childhood into adulthood where your child will be in charge of his/her own healthcare?

Deborah Meisten and her husband are the parents of a baby who was born with tetralogy of Fallot (TOF). Deborah and her husband are in healthcare. She is a pediatric nurse practitioner and her husband is a pediatrician. Their son is now 16 years old. The family is preparing for the future to empower their son to transition to age-appropriate health care responsibilities.

In this episode of "Heart to Heart with Anna," Deborah shares with Anna what her heart journey has been like, some advice she's gained along the way, and ways she, her husband, and her son's cardiologist have worked to help him transition from cardiac care as a child to transferring that care onto him.

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What was it like to be born in 1965 with a severe congenital heart defect in Venezuela? What kind of care was available there? What was a parent to do?

Tune in to this week's episode of "Heart to Heart with Anna" to hear Belen Blanton talk with Anna about her heart journey, how she made it to the USA, and why she has started a nonprofit organization to help children with congenital heart defects in her native country - Venezuela.

Here is the foundation Belen has started for children with CHDs in Venezuela on Facebook:

@Fundacion Estrellita de Belen

and on the Internet:  www.fundacionestrellitadebelen.org

Find Belen on Instagram:

@youdonthavetolooksick


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Ten years ago, Chelsea King discovered that the twins she carried had a potentially deadly secret. The months that followed were full of doctor's appointments, a move to another city, bed rest, and concern. Tune in to hear Chelsea King talk with Host Anna Jaworski about what it was like for her to go from diagnosis through surgeries, and into 2020. Since Chelsea's twin was born with two major congenital defects (tetralogy of Fallot and Duane's Syndrome), she has had many medical procedures and she understands the importance of support. In this episode, she talks with Anna about where she found support, how she's giving support today, and the support she believes she still needs to find.

Pages and Episodes mentioned in this program:

CongenitalHeartDefects.com Camp Information Page

Siblings in the CHD Community -- "Heart to Heart with Anna" featuring Don Meyer and SibShops

SibShops information

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Brandon Lane Phillips and Jeremy Miller are unlikely friends. Brandon was born with tetralogy of Fallot and lived with his family in Louisiana. Jeremy was a child actor, perhaps best known for his portrayal of Ben Seaver on the hit 1980s sitcom "Growing Pains." The two men met when Brandon, at age 11, had a wish granted to him and he had a chance to meet Jeremy on the set of "Growing Pains" and theirs has been a friendship to transcend the years.

On this episode of "Heart to Heart with Anna," these long-time friends talk to Anna about how they were brought together, what transpired in their lives for them to be brought together time and again, and how they came to write a book together -- "When I Wished Upon a Star: From Broken Homes to Mended Hearts" and what it meant to them to win the Baby Hearts Press People's Choice Award.

Here are Brandon Lane Phillips other "Heart to Heart with Anna" appearances:

Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients 

Interwoven Lives and Congenital Heart Defects
 
To order the book "When I Wished Upon a Star: From Broken Homes to Mended Hearts," Use this link: https://wheniwisheduponastar.com/

The nonprofit organization responsible for granting Brandon's wish: https://www.starlight.org/

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Brandon Lane Phillips, M.D. and Chris Donald, RN are a unique doctor-nurse duo. Both of these professionals work with children born with heart defects -- just as both of them were born with heart defects themselves. In this episode of "Heart to Heart with Anna," this medical pair talks with Anna about how they met, why they work together, and why they choose to work with families like their own. Recorded during COVID-19, these medical professionals also talk about how viruses affect them and what they do to stay safe when faced with potential medical threats to the health of their patients and themselves.

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Brandon Lane Phillips, M.D. is a very special doctor -- he's a pediatric cardiologist who was also born with a severe congenital heart defect -- tetralogy of Fallot. In this episode of "Heart to Heart with Anna," Brandon talks to Anna about the people who have come in and out of his life and who have helped to shape him into the person he is today. He shares his medical journey with Anna, as well as his educational struggles and how he was able to overcome his learning disability to achieve his dream of becoming a pediatric cardiologist.

To purchase Dr. Phillip's book, use this link: https://tinyurl.com/y5grtz7v

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Roseann Franco is the mother of a Heart Warrior in his 50s. He was born when the field of pediatric cardiology was in its infancy. Tune in to hear Rosanne share stories with Anna about what it was like raising a Heart Warrior while working and going to school, not to mention raising four other children. Roseann shares her family history of congenital heart disease and the remarkable events surrounding David's birth.

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Dr. William Novick is a most unusual cardiothoracic surgeon who travels the world mending broken hearts in countries where many of these children would be left to succumb to their congenital heart defects. Together with his team, Dr. Novick does even more than mend broken hearts; however, since he also expends a great deal of time and energy teaching doctors, nurses and support staff in those countries how to care for their heart warriors and he even brings in life-saving technology to leave behind. Tune in to hear about how Dr. Novick got started on this mission, who helps him with this philanthropic endeavor and how you can get involved, too!

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Baby Blue Sound Collective

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Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

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Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

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Apple Podcasts
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Website

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

Social Media Pages:

Apple Podcasts
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MeWe
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Website

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

Social Media Pages:

Apple Podcasts
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MeWe
Twitter
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Website

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

Social Media Pages:

Apple Podcasts
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MeWe
Twitter
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Website

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

Social Media Pages:

Apple Podcasts
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MeWe
Twitter
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Website

Anna's Buzzsprout Affiliate Link

Baby Blue Sound Collective

Social Media Pages:

Apple Podcasts
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MeWe
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Website