#downsyndrome

Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.

In this episode I had the pleasure of interviewing Rachel Mast. 

Rachel Mast is 24 years old and a graduate of Olathe South High School and Project SEARCH and attended Missouri State University. Rachel is active in her local church, a local theatre program, and Improvaneers online. She has been in 26 plays and has spoken at many conferences. 

Rachel worked to pass the federal ABLE Act and went on to open the first Kansas ABLE account. She is a member of the National Down Syndrome Congress Policy and Advocacy Coalition and a past ABLE National Resource Center Advisor.  Rachel received the 2019 Laura Lee Self-Advocate Leadership Award for her leadership and advocacy activities. Rachel works for the University of Kansas Hospital as a patient greeter in the patient transport department. Rachel. who is passionate about advocating for people with Down syndrome, says she loves her life and hopes to get married and live in a pink house someday. 

As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.

You can become a Supporter of the Show by clicking on the link below. Your Funds will allow us to keep sharing these valuable, heartfelt stories and resources!

https://www.buzzsprout.com/1827471/support

If you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com  

Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.

Want to be a guest on the show?!  Then be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls.

Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. 

Our daughter, Faith Guilbault directed a documentary called Faith’s World a
bout her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link:
 https://www.pbs.org/video/faiths-world-ozblht/

Our words are powerful. They can inspire us to do great things. They can remind us of our importance, or simply remind us to breathe and live in the moment.

Be sure to tune into Rachel Mast's full interview on 2.27.24 via The Guilbault Girls Show podcast and on 3.1.24 @6pm on our Guilbault Girls YouTube Channel!

If you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com 

Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US. 

You can become a Supporter of the Show by clicking on the link below. Your Funds will allow us to keep sharing these valuable, heartfelt stories and resources!

https://www.buzzsprout.com/1827471/support

Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.

In this episode I had the pleasure of interviewing Jawanda Mast. 

Jawanda is the National Down Syndrome Congress (NDSC) Grassroots Advocacy Manager. She has been involved in disability policy advocacy since her daughter Rachel was born with Down syndrome over 24 years ago. 

Jawanda has graduate and undergraduate degrees from the University of Arkansas and was honored with the 2017 Alumni Community Service Award for her body of advocacy work.  She spent eight years advocating for the passage of the federal ABLE Act. She has provided written and oral testimony on a variety of federal and state policy issues and has served on many state-appointed committees.  

Jawanda believes we all have a story, and we can use those stories to impact change at all levels. She is passionate about the meaningful inclusion of individuals with Down syndrome and other intellectual disabilities in all aspects of the community and has presented at many conferences.  

Jawanda says her work is a #laborofloveandconviction. To learn more about NDSC got to: https://www.ndsccenter.org/

As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.

You can become a Supporter of the Show by clicking on the link below. Your Funds will allow us to keep sharing these valuable, heartfelt stories and resources!

https://www.buzzsprout.com/1827471/support

If you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com  

Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.

Want to be a guest on the show?!  Then be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls.

Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. 

Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: https://www.pbs.org/video/faiths-world-ozblht/

Our words are powerful. They can inspire us to do great things. They can remind us of our importance, or simply remind us to breathe and live in the moment.

Be sure to tune into Jawanda Mast's full interview on 2.13.24 via The Guilbault Girls Show podcast and on 2.16.24 @6pm on our Guilbault Girls YouTube Channel!

If you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com 

Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US. 

You can become a Supporter of the Show by clicking on the link below. Your Funds will allow us to keep sharing these valuable, heartfelt stories and resources!

https://www.buzzsprout.com/1827471/support

Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.

Todays Guest is Angela Sittler, You may recognize her from our last episode, as we dove into her personal story. Today we are going to share more of what Angela’s role is as the Family Supports Manager at The Arc Northern Chesapeake Region.

Angela came to The Arc NCR from the Maryland Office for Genetics and People with Special Health Care Needs (OGPSHCN) where she was the family resource coordinator since 2011. While she was there, she created a searchable resource database for families and providers statewide and gave presentations on finding resources, caregiver stress, and supporting the families of Children/youth with differing abilities. 

She is also the mother of two sons that have differing abilities. One with Asperger’s, ADHD, and anxiety, and the other with Au-Kline Syndrome. In caring for them throughout their life she learned how to find needed resources and was able to use her knowledge to serve other families on her local SECAC, the Mount Washington Pediatric Hospital Family Advisory Council, Johns Hopkins Pediatric Family Advisory Council, and as a past member of the Maryland Caregivers Commission. 

She earned her Master’s in Health Science, with a dual concentration in Community health and health administration from Towson University in 2018. In her free time, she volunteers with her local fire department and is the Vice President of the Au-Kline Syndrome foundation.

 To learn more visit: https://arcncr.org/ 

As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach others to be kind to one another.

Become a supporter of The Guilbault Girls Show today by clicking on the following link:

https://www.buzzsprout.com/1827471/support

If you would like to be on our show, be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls! 

Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. 

Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: 

https://www.pbs.org/video/faiths-world-ozblht/

“It takes a village to raise a child” is an African proverb that means an entire community of people must interact with children for those children to grow in a safe and healthy environment.

“We live in a world in which we need to share responsibility. It’s easy to say it’s not my child, not my community, not my world, not my problem. Then there are those who see the need and respond.” -Fred Rogerss

Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.

Back with us today are high school sweethearts Kim and Justin Waszkiewicz of Havre de Grace Maryland. In this episode we are going to go a little deep about Isaac’s aNORAble Home which is an Air BnB and Art Gallery dedicated to their children and the disability community.

Isaac's aNORAble Home was transformed into a blue house that welcomes you with a bright yellow door.  The colors represent Down syndrome. The house is open to guests who will know they are loved, welcomed, celebrated, and accepted. They hope that their guests enjoy a walk on a real yellow brick road!  They will be taken from black and white steps to a life with color!  The spacious rooms are themed around disability, courage, love, and kindness. Isaac's aNORAble Home has initiated important conversations that promote inclusion, advocacy, understanding, and change.  They look forward to opening their doors to guests around the world.

 To Learn More go to: www.isaacsanorablehomes.com

As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.

If you would like to support the Guilbault Girls on another level, click on following link in the to make a donation in any amount, https://donorbox.org/guilbault-girl-s and you will receive a hand-stamped token with the word "VILLAGE" on it in appreciation. If you would like to be on our show, be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls! 

Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls, YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. 

Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: https://www.pbs.org/video/faiths-world-ozblht/

Our words are powerful. They can inspire us to do great things. They can remind us of our importance, or simply remind us to breathe and live in the moment.

Be sure to tune into Kim and Justin's full interview on Isaac's aNORAble Homes, which is an art gallery and Airbnb dedicated to their children and the disability community on 6.27.23 via The Guilbault Girls Show podcast and on 6.30.23 @6pm on our Guilbault Girls YouTube Channel!

If you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com 

Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.

Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.

In this episode we had the pleasure of interviewing Kim and Justin Waszkiewicz founders of Isaac's aNORAble Homes. 

 Justin and Kim are high school sweethearts from two different worlds who were meant to be. They have watched each other grow and transform through their journey, but what remains the same is their love. Kim likes to keep Justin on his toes with all her dreams and spontaneous ideas and he goes above and beyond to make them happen.

They became parents at 28 and found out that their daughter had Down syndrome. This caught them by surprise and opened doors to a community that taught them how to love with compassion. They then had their second child Isaac who taught them how to love everyone. He also taught them a lot about grace. 

Nora and Isaac have been advocating since they were both 3 months old. They have done this through advocating on Capitol Hill, modeling to promote inclusive marketing, and now through travel and Art with Isaac’s aNORAble Home. 

They are a family who simply want to spread awareness about life with disability in order to embrace everyone as an individual. They also want to emphasize that everyone is worthy and worth does not come from what someone can or cannot do.

You can follow them on Facebook at https://www.facebook.com/aNORAble. To learn more go to: isaacsanorablehomes.com

As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.

If you would like to support the Guilbault Girls on another level, click on following link in the to make a donation in any amount, https://donorbox.org/guilbault-girl-s and you will receive a hand-stamped token with the word "VILLAGE" on it in appreciation. If you would like to be on our show, be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls! 

Facebook: @Guilbault Girls, Instagram: @GuilbaultGirls YouTube: @Guilbault Girls, Email: GuilbaultGirls@gmail.com, and Website: www.GuilbaultGirls.com. 

Our daughter, Faith Guilbault directed a documentary called Faith’s World about her journey of living with a disability which aired on PBS in April of 2020. You can watch the documentary in full at the following link the link: https://www.pbs.org/video/faiths-world-ozblht/

Our words are powerful. They can inspire us to do great things. They can remind us of our importance, or simply remind us to breathe and live in the moment.

Be sure to tune into Kim and Justin's full interview on the birth of their daughter Nora who has Down Syndrome on 6.13.23 via The Guilbault Girls Show podcast and on 6.16.23 @6pm on our Guilbault Girls YouTube Channel!

If you would like to order a token with your word hand stamped and inked email me at GuilbaultGirls@gmail.com 

Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.