ehlers danlos

I am so glad to be back doing podcasts again! I have been through a very difficult 7 months with my health, and we are still not through it yet, but I am feeling better!
So welcome back! Join me and my thoughts on health, neurodiversity, Autism, trauma, Ehlers-Danlos Syndrome, and Cancer. 

I hope you enjoy the update and some of the thoughts that have occurred to me as I have been fighting through these health issues!
Show Notes: https://amybodkin.com/podcast-episode-44

For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website:
Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!

Episode 80 of the Long Covid Podcast is a chat with Dr Anjali Agarwal, consultant Physiotherpist, lifestyle consultant , EDS Hypermobility-specialised Physio, Advocacy Co-Director of long covid physio & women's health specialist.

We dig deep into the relationship between EDS, Long Covid, PoTS & MCAS - it's fascinating to hear how all these things can fit together - as well as what we can do to help.

Anjali's website
Knee pain
Long Covid Physio Board

Dr Anjali Healthy Tales Podcast episode on EDS, MCAS, PoTS Trifecta

Dr Anjali Youtube video on health

Pre & post natal classes
More here

Follow Dr Anjali on Facebook   Instagram   LinkedIn   Twitter 

For more information about Long Covid Breathing, their courses, workshops & other shorter sessions, please check out this link

(music - Brock Hewitt, Rule of Life)

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The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Transcripts are available on the individual episodes here

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Please get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Ple...

En BDA hablamos de inflación y sus efectos sobre la canasta familiar con el dueño de un supermercado desde Nueva York
Hoy en lo mejor de Buenos Días América conversamos sobre el costo de vida, los precios de la canasta familiar todo desde el punto de vista de un tendero quien tiene su propio supermercado en New York. Además, hablamos de la importancia para las mujeres de hacerse los exámenes ginecológicos periódicamente, la conmovedora historia de una paciente que padece del síndrome de Ehlers Danlos, Eds, más conocida como la enfermedad de la piel elástica y por supuesto de deportes.
Hablamos con Marvin Cruz, dueño de un supermercado de New York quien nos cuenta desde su perspectiva como la inflación esta afectado los precios de la canasta básica, los productos que más se han encarecido y las alternativas que tenemos actualmente.
También nos acompaña El Dr. Mejia Torres y su recomendación para que las mujeres no dejen de hacerse el papanicolaou.
Y Arlen Daza y su madre, quienes nos comparten la conmovedora historia que ha vivido Darlen desde que padece del síndrome de Ehlers Danlos, más conocido como la enfermedad de la piel elástica, los retos que tiene cada día y como ha aprendido a vivir con esta rara enfermedad.
En Contacto Deportivo, Antonio Camacho con todos los deportes y la historia de la camiseta diseñada en honor a Juan Gabriel.
Y Cesar Procel desde Houston, como siempre.
Te invitamos a compartir con tus amigos. Envíanos tus comentarios, inquietudes o sugerencias, a nuestras redes sociales en Facebook @buenosdiasam, Instagram buenosdiasamericaam o escríbenos a Infoudradio@UNIVISION.NET estaríamos encantados de recibirlas.

Entérate de  las últimas noticias con el mejor análisis de nuestros especialistas invitados. 

Ponte los audífonos y escucha el podcast del Buenos Días América en Uforia App, Apple Podcast, Youtube, Spotify o donde sea que escuches podcasts. 

“God wastes nothing, even disability. He has a purpose for you right where you are.”

After receiving her EMT certification, Cady Bell was on the path to becoming a doctor to use her skills in service overseas. But when she began experiencing severe pain, seizures, stomach issues, and fainting, her life's plan dramatically changed. As Cady searched for the cause of her symptoms, her intensifying health challenges forced her to drop out of school and quit her job.

On the Joni and Friends Ministry Podcast, Cady is sharing her journey to finding a diagnosis for Ehlers-Danlos syndrome (EDS), a rare connective tissue disorder that affects mobility and strength. This invisible disability that has no cure has brought physical and emotional ups and downs, but has also beautifully deepened her relationship with God—something she wouldn't trade for perfect health. Hear how EDS helped Cady discover new joy and purpose and how she’s using her struggles to reach other women who might feel hopeless in their hardships.
 

Follow Cady on Instagram
Get your copy of Doing Life Together
See all podcast resources

 

Questions or comments? Email Crystal at podcast@joniandfriends.org
Support Joni and Friends to help make this podcast possible.

Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Join us in answering the call in Luke 14:21-23... until his house is full! 

Founded by author and international disability advocate Joni Eareckson Tada, the ministry provides Christ-centered care that serves needs and transforms hearts through Joni's House, Wheels for the World, and Retreats and Getaways. Joni and Friends also equips individuals and churches with disability ministry training and provides higher education courses and internships through the Christian Institute on Disability. Find more encouragement through Joni's radio podcast, daily devotional, or by following us on Facebook,  Instagram, and YouTube.

Girl talking while Shana is on her way to Brooklyn for a big sold out show opening for Yeasayer. Somehow we meander from aromatic invasive plants to fairytale capitalism to tick prevention and finally fat positivity. Welcome to our world! Post show NOTE: Caller John let Theresa know that the aromatic plants may be honeysuckle or creeping arbutus.

Shana's Links:

Shrill https://m.youtube.com/watch?v=JyUr_-jxWZA

Listen to Stopping a Lifetime of Dieting with Savala Trepczynski, Anti-Diet Writer and Social-Justice Lawyer from Food Psych Podcast with Christy Harrison in Podcasts. https://podcasts.apple.com/us/podcast/food-psych-podcast-with-christy-harrison/id700512884?i=1000433868766

Listen to She's All Superfat from She's All Fat: A Body Positive Podcast in Podcasts. https://podcasts.apple.com/us/podcast/shes-all-fat-a-body-positive-podcast/id1275942047?i=1000419664857

Our first guest is Amy Gonzalez-Nelsen, founder of Bravery Brigade, a movement of collective and collaborative work that aims to acknowledge and highlight the brave, the strong, the changemakers, and the seed planters who are creating new beginnings. Amy is someone who has experienced many levels of highs, lows, successes, and defeats. She's journeyed through divorce, cancer, and death of loved ones and traversed the incredible world of anxiety and mental health. Through all of this she learned to see her bravery and use that to help her find her peace and her joy. She shares her process initiated by NIA, and expanded through intuitive energy healing, reiki and her own form of personal coaching, and she uses this process to help other women step into their new beginnings. She's teaching with Theresa on May 2nd at Anahata to welcome in the New Moon in Taurus. Hudson Valley peeps, come soak up her goodness in person while she's in town!

Our second guest is Holly Glogau Morgan . She is the author of two military adventure novels, Sunrise to Shadows and Midnight to Morning.  Incredibly she’s been writing since she was eight years old from her highly creative imagination. She was diagnosed with Ehlers Danlos after graduating college in the beginning of her teaching career.  Her alacrity and self determination is stunning. When she is not writing her book, teaching students, or caring for her husband and herself she is also quilting and volunteering. She is happy to announce that her third novel, Evening to Eternity, is set to be released in June of 2019. She will also be apart of OWS CyCon in May, an indie publishing book show. Best of luck to you Holly!!!

FULL MOON alert! Friday's a double "Pink" Moon in Libra. Get your moon gazing selves ready and your moon rituals in order...

Next week's guests are writer, Aimee Herman and musician and PR goddess Heidi Vanderlee. Until next week, love yourself and uplift one another.

Today’s show was engineered by Manuel Blas and Ben Benton of Radio Kingston, www.radiokingston.org.

We heard music from Shana Falana, http://www.shanafalana.com/

Feel free to email us, say hello: she@iwantwhatshehas.org,

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In deze aflevering spreek ik met Ryan (23). Hij vertelt over de lange omweg die leidde naar zijn diagnoses: POTS en Ehlers Danlos Syndroom. Al op jonge leeftijd leefde hij elke dag met pijn, maar werd hij niet serieus genomen. Artsen gebruikten herhaaldelijk Ryan's autisme om zijn klachten te bagatelliseren, maar ook het feit dat Ryan - die transman is - destijds voor de buitenwereld nog als vrouw door het leven ging, speelde een grote rol.

Schrijver en columnist Asha ten Broeke, die deze week haar columnbundel Calm. The. Fuck. Down. uitbracht, leidt deze podcast in met een voorgelezen column over genderbias in de geneeskunde.

Meer weten?

• Posturaal Orthostatisch Tachycardie Syndroom (POTS)
• Ehlers Danlos Syndroom
• Asha ten Broeke
• Het boek "Doing Harm" van Maya Dusenbury
• Wij Staan Op