trisomy 21

Kylee was gracious enough to come on our podcast this week and share the story of her little boy, McKrae. Kylee and her husband, Kale were so excited in March of 2022 to bring a new baby into their family. What they didn't know, was that they were delivering a baby with down syndrome into a hospital that didn't have the staff or a NICU to give them the right kind of care.

McKrae's health was also put to the test during his first few months of life, when he started to have unexplained seizures. Kylee tells us about how she recognized what his seizures were, and how they have been working with doctors to make sure his health continues to improve.

Every year in the US, 6,000 babies are born with Down syndrome. It's a genetic condition when a baby is born with an extra copy of chromosome 21. It can be diagnosed through prenatal screenings, and can also be diagnosed after birth with a physical exam, and a blood test.

McKrae is going to be one year old this month, and we couldn't help but share his story with all of our listeners. His diagnosis doesn't change how perfect and special he is, and Kylee won't let it hold him back from accomplishing anything he wants to!

Overcoming life's adversities, challenges and tragedies... Drunk Driver, Divorce, Cancer, Down Syndrome... All are possible with a conservative perspective and belief in God. Doug shares 4 true stories of overcoming adversity, challenge and tragedy and how to find Wonder, Joy and Meaning in life. 
For through life's challenges, blessings are born to us.

Please help Doug support his son, Michael, and to continue producing his show.
www.DougBillings.us -- all content is FREE. Please consider a voluntary subscription when you go to the website.
We're in this together.
God bless you.

Video with transcript: https://youtu.be/Su9LTiwiyGQ

Laura, a young woman with Down syndrome talks about her life and goals.

 For more information about Down syndrome, see here.

FROM THIS EPISODE:

DEC - Disability Equity Center

WINGS Transition Program

Unified Sports - Special Olympics

Oregon Health & Science University

George Estreich

BOOK:

The Shape of the Eye by George Estreich

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In this final episode in our Stay The Course topic arc, we are reminded that when all else fails, we need only remain standing. Rachael shares some personal testimony of trying times in today’s episode and we are sharing more testimony and encouragement on how to remain standing in the fight against the enemy.

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In this episode, Daniel Kang explores the importance of play with physical therapist Ryan Jacobson. How do playing and learning work together in kids' development? What does play have to do with stewarding our souls?

Ryan Jacobson is an assistant professor of physical therapy at George Fox University. He has formerly worked as a pediatric rehab supervisor with Providence Children's Development Institute in Portland, an inpatient physical therapist at Providence St. Vincent Hospital in Portland, and as a program supervisor with PRIDE for Kids in Vancouver, Washington.

The host for this episode, Dr. Daniel Kang, joined George Fox’s Department of Physical Therapy as an assistant professor of physical therapy in 2013. Previously, he worked for nine years as owner and lead physical therapist of Kang Physical Therapy Inc. of Ventura, California. His teaching experience includes stints as an instructor of kinesiology at California State University of Channel Islands and as a teaching assistant of anatomy and physiology at Loma Linda University. He is in the process of earning a graduate certification of medical physiology with a specialization in cardiovascular/renal physiology and pathophysiology from the University of Florida. He holds a doctor of physical therapy degree (2004), a master’s degree in physical therapy (2002) and a bachelor’s degree in health science (2002), all from Loma Linda University.

These podcasts are also all video recorded and on our YouTube channel! You can also visit our website at https://georgefox.edu/talks for more content like this. 

Thanks so much to Caren-Christin for talking to me about her difficult pregnancy and remaining wholly positive in the face of a Down syndrome diagnosis. Please keep the family in your thoughts as they face open heart surgery for their little baby boy this summer.

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In this episode we interview Olivia Masih White, a retired professor of biology and genetics from the University of North Texas. We discuss her journey of immigrating from India to the United States when she was 25, her circuitous path from seminary school to working in the medical field to pursuing her PhD in genetics, and her research regarding adults with Trisomy 21, commonly referred to as Down Syndrome.   

In honor of Down Syndrome Awareness Month, Crystal is talking with Nicole Pollastrini, a wonderful mama to three kids. When Nicole and her husband first decided to grow their family, it wasn’t on their radar that their daughter Sage might be born with a disability. Listen as Nicole walks through the thoughts and emotions that she experienced following her daughter’s diagnosis of Down syndrome, and how her outlook has changed over the past three years. Don’t miss this open conversation about the real fears, challenges, and blessings of being a special needs mama.

See a photo of Sage at www.joniandfriends.org/podcast

Download the booklet My Baby Has a Disability: Life-Giving Questions and Answers

For questions, email podcast@joniandfriends.org

*Joni and Friends was founded in 1979 by Joni Eareckson Tada who in a diving accident was left a quadriplegic at 17 years old. Ministry began as Tada, joined by friends around her kitchen table, responded to letters she received from people with disabilities in search of support. Over the past 40 years, the ministry has grown to serve thousands of people impacted by disability worldwide: Joni and Friends has delivered more than 150,000 wheelchairs and Bibles through Wheels for the World and provided Christian care to 63,000 special needs family members through Family Retreats. The organization also equips individuals and churches with disability ministry training and provides higher education courses through the Christian Institute on Disability. For more encouragement, download the Joni and Friends radio podcast in English or Spanish, and view inspirational videos on the Joni and Friends website.

www.joniandfriends.org*

When Shauna arrived at the doctor’s office for her four-month ultrasound, the question on her mind was what color to paint the nursery. But after an unexpected diagnosis of Down syndrome, she and her husband left with more questions than answers.

“I pinched myself. I literally pinched myself. The one and only time I’ve done that in my life. Because it was so surreal. This is not supposed to be happening to me. This is not supposed to be happening to my baby.”

Where do we turn when it seems that God has given us more than we can handle? Today on the Joni and Friends Ministry Podcast, Crystal is celebrating World Down Syndrome Day with Shauna Amick, the mother of a now teenage daughter with Down Syndrome. Listen as Shauna shares her heartaches, joys, and why today she can genuinely celebrate World Down Syndrome Day.

Download the free booklet From Fear to Hope at www.joniandfriends.org/podcast

Joni and Friends was founded in 1979 by Joni Eareckson Tada who in a diving accident was left a quadriplegic at 17 years old. Ministry began as Tada, joined by friends around her kitchen table, responded to letters she received from people with disabilities in search of support. Over the past 40 years, the ministry has grown to serve thousands of people impacted by disability worldwide: Joni and Friends has delivered 150,000 wheelchairs and Bibles through Wheels for the World and provided Christian care to 63,000 special needs family members through Family Retreats. The organization also equips individuals and churches with disability ministry training and provides higher education courses through the Christian Institute on Disability.

www.joniandfriends.org