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    Laura E

    enMay 22, 2022
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    About this Episode

    Video with transcript: https://youtu.be/Su9LTiwiyGQ

    Laura, a young woman with Down syndrome talks about her life and goals.

     For more information about Down syndrome, see here.

    FROM THIS EPISODE:

    DEC - Disability Equity Center

    WINGS Transition Program

    Unified Sports - Special Olympics

    Oregon Health & Science University

    George Estreich

    BOOK:

    The Shape of the Eye by George Estreich

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson
    • Production Assistant: Becki Leigh

    Recent Episodes from Wisdom Shared with Carole Blueweiss

    One More Day: A Father's Gratitude

    One More Day: A Father's Gratitude

    Episode Summary

    In this poignant episode, Jacob Moench shares the challenges and joys of parenting his son Samuel, who has epilepsy and autism. The episode explores how Jacob and his wife support each other and prioritize time for their other children. Jacob also talks about his company, which offers genetic testing for preventative illness, and we discuss the ethical considerations surrounding the use of DNA analysis for family planning. Despite the challenges, Jacob reflects on the profound impact Samuel has had on their lives, considering him an enormous blessing. This episode offers  a powerful exploration of the unique challenges and love that characterize Jacob's journey as a parent of a child with special needs.

    About Jacob Moench

    Jacob Moench is an entrepreneur in the medical industry devoted to preventative genetic testing.  He is a devoted husband to his wife of 12 years.  He and his wife have four beautiful children, including their oldest, Samuel, who has Autism and Epilepsy. Jacob enjoys playing with his children, basketball, hiking, piano, cooking, and creative writing.

    Jacob's blog: https://fathertospecialneeds.blogspot.com/

    Jacob's business: https://physiogenomic.com/

    Contact Jacob

    From This Episode

    Finding Cooper's Voice

    Forever Boy: A Mother's Memoir of Autism and Finding Joy

    Mark Rober's Video about his autistic son

    Steele's Army - Facebook page  of an epilepsy family that Jacob recommends

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson
    • Production Assistant: Becki Leigh

    A Taxi With Dyslexia?

    A Taxi With Dyslexia?

    Episode Summary

    In this episode, Lynn Greenberg and her son Jonathan, co-authors of Robby the Dyslexic Taxi and the Airport Adventure, share insights into Jon's journey with dyslexia. Emphasizing the transformative impact of education post-diagnosis, they discuss the power of creativity and the hidden gifts of neurodiversity. Jon, who views dyslexia as a superpower, aims, along with his mother, to inspire and empower neurodiverse children through their storytelling. This episode is a valuable resource for parents and teachers, offering insights and guidance for a more inclusive and understanding approach.

    For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video on YouTube:  https://youtu.be/qYBVQJqdfo8

    From This Episode

    About Lynn and Jonathan

    Lynn Greenberg is the happiest wife, mom, and grandma. A very retired attorney who loves to cook, exercise, and read, she has seen how positivity with feelings and differences can allow children to grow into happy, productive adults. During COVID-19, when many families were living together with an abundance of unscheduled free time, Lynn and her son Jonathan, who has dyslexia, began to work on the concepts and ideas for Robby. As ideas developed, they became increasingly invested in the character, his story, and the impact this endeavor could have on others. 

    Born with dyslexia, Jonathan Greenberg could not read and write like many other children his age. So, instead of giving in to frustration, Jonathan used his struggle as a catalyst for creativity, expressing his ideas through art. Having overcome his learning difficulty, Jonathan has fallen in love with reading. Robby the Dyslexic Taxi And The Airport Adventure exemplify Jonathan’s passion for writing and illustration. Together with Lynn, his mother, and his writing partner, they are already thinking of other stories featuring neurodiverse characters that complement this book. 

    Facebook: Creative Cab Co.

    Instagram: @creativecabcompany

    Website: robbythetaxi.com

    Buy the Book:

    Robby the Dyslexic Taxi and the Airport Adventure on Amazon

    Robby the Dyslexic Taxi and the Airport Adventure on Bookshop.org

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson
    • Production Assistant: Becki Leigh

    The Covid That Wasn't: Surviving Toxic Shock Syndrome

    The Covid That Wasn't: Surviving Toxic Shock Syndrome

    Episode Summary

    Join me as I welcome back Amy and her daughter, Lizzie, for an insightful discussion. In this episode, we delve into Lizzie's harrowing encounter with toxic shock syndrome (TSS), exploring the severe implications and her journey to recovery. Amy shares the critical moments that led to her life-saving discovery of Lizzie's condition and her quick response. We also discuss Lizzie's candid reflections on managing her menstrual health post-TSS, the challenges she faced during her recovery, and the significant changes in her life post-illness, including the recommendation to avoid tampon use. This episode serves as an eye-opener on the crucial aspects of TSS and menstrual health awareness.

    For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video on YouTube: https://youtu.be/F_rYxdV3Qwc

    Resources

    Days for Girls

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson
    • Production Assistant: Becki Leigh

    The Dye-lemma: Autism, Behavior, and Food

    The Dye-lemma: Autism, Behavior, and Food

    Episode Summary

    Join us in a touching conversation with Amy and her daughter Lizzie as they share their experiences with 18-year-old Mathew, who was diagnosed with autism. Amy discusses the challenges of raising Mathew, including how eliminating certain food dyes helped reduce his aggressive behavior. Lizzie shares insights on being an older sister to a sibling with autism, highlighting the unique bond they share. This episode offers a candid look into a family's journey with autism, filled with challenges, love, and resilience.

    For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/NLxFbGl-0vY

    Resources

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson
    • Production Assistant: Becki Leigh

    Tough Love: A Blind Man Tells His Story (Replay)

    Tough Love: A Blind Man Tells His Story (Replay)

    EPISODE SUMMARY

    This is a  replay of a previously released episode, for Blindness Awareness Month. In this episode, we meet Josh Burch, a 48-year-old man who was born with Optic Nerve Hypoplasia. Josh talks about the challenges of growing up blind and shares how he navigates a world built for sighted people with the help of technology and his guide dog, Lou. We also hear more from Josh's stepmother, Julie Burch, and learn how they inspired and learned from each other, and how their relationship has changed over time. 

    Some learning gems from this episode: Don't pet a guide dog, (he or she needs to focus on guiding). Once out of harness, you can pet the dog; iPhones have an option called "VoiceOver"  which anyone can use; If you meet a blind person, don't assume they need help, ask first; Do not spoon-feed or coddle people who are blind, they are like sighted people and just need more assistance; Support groups are great like Lighthouses for the Blind; Encourage independence and build confidence; Good manners, awareness of posture and exercise matters; Tough love sometimes requires patience but it beats sympathy.

    For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://www.youtube.com/watch?v=SIy4DpLWE94

    RESOURCES:

    PEOPLE MENTIONED:

    FIND AND FOLLOW JOSH: 

    FIND AND FOLLOW JULIE:

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson
    • Production Assistant: Becki Leigh

    Blind from Birth: A Stepmother Shares (Replay)

    Blind from Birth: A Stepmother Shares (Replay)

    EPISODE SUMMARY

    This is a  replay of a previously released episode, for Blindness Awareness Month. Julie Burch is an accomplished author (pen name: Juliet Brilee) and stepmother to Josh, who was born blind. Now 48 years old, he lives independently with his seeing-eye dog, Lou. In this episode, Julie shares what it was like to raise a blind child. She introduces us to how she helped Josh spatially map his environment,  and talks about how the brain's map differs for people who have vision versus people with no vision. Julie is a mindfulness coach, and she emphasizes the importance of patience, embracing "failure," using tough love to support independence, and enhancing the senses through mindful practice.

    For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here:  https://www.youtube.com/watch?v=8PNWizDEn30

    In the next episode, Dr. Blueweiss interviews Josh, who shares his perspective on life in a world built by sighted people.

    FIND AND FOLLOW JULIE

    Julie's Mindfulness Art Facebook Page
    https://www.facebook.com/julieburch4art

    Julie's Author Facebook page
    https://www.facebook.com/Jbrileeauthor

    Julie's Author Website
    https://julietbrilee.com/

    Subscribe to Julie's mailing list for information about upcoming books, nature, recipes, and life with Josh.

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson
    • Production Assistant: Becki Leigh

    FBI Stories From Retired Agent

    FBI Stories From Retired Agent

    Episode Summary

    In part 2 of my conversation with retired FBI Special Agent Aaron Weeter, we learn more about life as an FBI agent. Aaron explains how he got started, what it was like to work on high-profile cases like 9/11, the DC Sniper, and January 6th, and how he ultimately specialized in drug-related crimes for most of his career. It was fascinating to learn about how Aaron and his colleagues used informants and undercover officers to take down doctors in the opioid epidemic.

    Be sure to listen to the previous episode with Aaron to learn how the opioid epidemic of the 90s spread to become the fentanyl epidemic we have today: Retired FBI Agent Reflects On Opioid Crisis

    For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/sDVbaz9FHbM

    Related Episodes

    Retired FBI Agent Reflects On Opioid Crisis

    Overdose Awareness: A Sister's Tribute

    Addiction to Sobriety: A Mother's Journey

    Anonymous Sister

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson
    • Production Assistant: Becki Leigh

    Overdose Awareness: A Sister's Tribute

    Overdose Awareness: A Sister's Tribute

    Episode Summary

    Since 1999, more than one million people have died from a drug overdose in the United States. On International Overdose Awareness Day, we reflect on these senseless preventable deaths. Today, we hear from previous Wisdom Shared guest Anne Pratt on the loss of her brother Daniel from an accidental overdose. May this powerful personal story help spread awareness and compassion for all those affected by the devastating impact of today's out of control epidemic.

    Resources

    How to use Narcan training video: https://www.anonymoussister.com/resources

    Find Naloxone near you

    Fentanyl Test Strips

    If you or someone you know is struggling with substance use disorder, SAMHSA's (Substance Abuse and Mental Health Services Administration) National Helpline, 1-800-662-HELP (4357), (also known as the Treatment Referral Routing Service) or TTY: 1-800-487-4889 is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information. You can also visit https://www.samhsa.gov

    Related Episodes

    Addiction to Sobriety: A Mother's Journey

    Anonymous Sister

    Retired FBI Agent Reflects On Opioid Crisis

    Anne's previous episode: A Mother Shares Her Journey of the Joys and Challenges of Raising a Child with Cerebral Palsy

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Social Media and Marketing Coordinator: Kayla Nelson
    • Production Intern: Cassidy Rozencwaig

    Find and Follow Carole and Wisdom Shared:

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson
    • Production Assistant: Becki Leigh

    Retired FBI Agent Reflects On Opioid Crisis

    Retired FBI Agent Reflects On Opioid Crisis

    Episode Summary

    Our last episode explored addiction from the perspective of loved ones. In this episode, we are looking at the opioid crisis from the point of view of a retired FBI agent, Aaron Weeter, who spent 25 years specializing in drug-related crimes. From his frontline perspective, we learn how the opioid epidemic of the 90s spread to become the fentanyl epidemic we have today. 

    For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/oXq6XJ_z-HI

    About Aaron Weeter

    Beginning in 1998, Aaron served for over 23 years as a Special Agent in the Federal Bureau of Investigation's Washington, D.C. Field Office.  He served for twenty years as a case agent and three years as a supervisor investigating matters primarily involving white-collar/financial crimes in the areas of healthcare fraud and prescription drug diversion and distribution.  During this time, Aaron also worked on a variety of national/office-wide cases including the 9-11, D.C. Sniper and January 6th investigations among others.  Aaron is a licensed Certified Public Accountant (CPA) and a Certified Fraud Examiner.  He retired from the FBI in late 2021 and recently started a fraud consulting business.  Much of Aaron's FBI investigative work focused on the illegal distribution of pharmaceutical narcotics and other controlled substances by physicians, pharmacists and street-level dealers.  He opened his first "pill case" in early 1999 in the early stages of what would become the pill epidemic and through dozens of cases thereafter, had a window into the evolution of the pill epidemic and its influence on the current fentanyl epidemic gripping the U.S.  

    More to Watch and Read

    Chasing the Dragon: The Life of an Opiate Addict - a documentary made by the FBI & DEA

    Dr. Feelgood: Dealer or Healer? - a documentary about Dr. William Hurwitz, a Virginia physician who served nearly five years in prison for drug trafficking

    Anonymous Sister - a documentary where director Jamie Boyle explores her family's collision with the opioid epidemic

    All the Beauty and the Bloodshed - a documentary about artist and activist Nan Goldin and her personal fight to hold the Sackler family accountable for the opioid overdose crisis

    Demon Copperhead by Barbara Kingsolver - a novel that shows the devastating impact of the opioid epidemic on a young boy in Appalachia

    Dopesick: Dealers, Doctors, and the Drug Company that Addicted America by Beth Macy - the definitive account of America's opioid epidemic

    Raising Lazarus: Hope, Justice, and the Future of America’s Overdose Crisis by Beth Macy - a sequel to Dopesick

    Dopesick - Hulu limited series remake of Beth Macy's book 

    Empire of Pain: The Secret History of the Sackler Dynasty by Patrick Radden Keefe - a book that describes the Sackler family and their role in the opioid epidemic

    The Family That Built an Empire of Pain - article by Patrick Radden Keefe that led to the book

    What Can Be Done?

    Words Matter - Terms to Use and Avoid When Talking About Addiction

    https://www.cdc.gov/opioids/basics/fentanyl.html: 

    https://www.cdc.gov/drugoverdose/prevention/index.html

    Fentanyl Test Strips

    Find Narcan Near You

    If you or someone you know is struggling with substance use disorder, SAMHSA's (Substance Abuse and Mental Health Services Administration) National Helpline, 1-800-662-HELP (4357), (also known as the Treatment Referral Routing Service) or TTY: 1-800-487-4889 is a confidential, free, 24-hour-a-day, 365-day-a-year, information service, in English and Spanish, for individuals and family members facing mental and/or substance use disorders. This service provides referrals to local treatment facilities, support groups, and community-based organizations. Callers can also order free publications and other information. You can also visit https://www.samhsa.gov

    How opioid addiction occurs - Mayo Clinic

    List of Treatment Facilities and Support Groups

    Drug Takeback Programs

    Safe Drug Disposal

    Related Episodes

    Addiction to Sobriety: A Mother's Journey

    Anonymous Sister

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson
    • Production Assistant: Becki Leigh

    Anonymous Sister

    Anonymous Sister

    Episode Summary

    In this episode, I'm joined by two special guests, harm reduction activist Julie Stampler and award-winning documentary filmmaker Jamie Boyle.  We discuss the opioid epidemic through the frame of the incredible documentary Anonymous Sister, directed by Jamie Boyle, produced by Marilyn Ness, and executive produced by Julie Stampler. This is the story of one American family, but what happened to them could happen to any family.  We learn about Julie's brother, Jonathan,  who died from a heroin overdose, and how his death led Julie into her life of activism and harm reduction work. We see two different paths to managing addiction and substance abuse disorder. This is a story told by two women who watched their siblings suffer.  This show is dedicated to all the siblings out there who are anonymous witnesses.

    For the visually-minded who prefer to listen and read or for those who need closed captioning, watch the transcript video here: https://youtu.be/oD0vVqw-w6w

    About Anonymous Sister

    When a young woman turns to the camera for refuge, she ends up with a firsthand account of what will become the deadliest man-made epidemic in United States history. From the producers of Dick Johnson Is Dead and Summer of Soul, Anonymous Sister is two-time Emmy Award winner Jamie Boyle's chronicle of her family's collision with the opioid epidemic.

    Anonymous Sister will be playing at IFC Center in New York June 2nd - 8th and Laemmle Theater in Los Angeles June 16th - 22nd, with more cities to follow.  

    Select screenings will be accompanied by special events and panels. For details and info about upcoming events: 

    About Jamie Boyle

    Jamie Boyle is a two-time Emmy Award winning documentary filmmaker. Her work has played at Sundance, Tribeca, and SXSW. In 2019, she was part of the inaugural Sundance Talent Forum & Catalyst Lab and on DOC NYC’s 40 Under 40 list. She is the writer and editor of BREAKING THE NEWS, premiering Tribeca Film Festival in June 2023. She is the director and editor of ANONYMOUS SISTER, a personal feature documentary coming to theaters in summer 2023 and produced by Big Mouth Productions (DICK JOHNSON IS DEAD, CAMERAPERSON) and Vulcan Productions (SUMMER OF SOUL, THE REASON I JUMP). She was the editor, producer, and cinematographer of JACKSON (Showtime), winner of the 2018 Emmy® Award. She was the editor of TRANS IN AMERICA: TEXAS STRONG, winner of the 2019 Emmy® for Outstanding Short Documentary and two Webby Awards. TEXAS STRONG premiered at SXSW and launched on them. She was the associate editor and production manager of E-­TEAM (Netflix), which won the 2014 Sundance Cinematography Award and was nominated for two News & Documentary Emmys®, including Best Documentary. She was the director, cinematographer, and editor of the short documentary TAKE A VOTE, which premiered at DOC NYC in 2020. She was the in-house editor for The American Civil Liberties Union and Human Rights Watch. She taught at the Bronx Documentary Center, as a guest lecturer at Columbia University, and served as a judge for the News & Documentary Emmy Awards.

    https://www.jamielboyle.com/

    About Julie Stampler

    Julie Stampler is a voiceover actress and harm reduction activist who is a National Harm Reduction Coalition Board Member. Julie's harm reduction advocacy work aims to help people who use drugs stay alive rather than pushing for abstinence-only approaches. She advocates for the importance of overdose prevention programs, training people on when and how to use and distribute naloxone/Narcan, and advocating for overdose prevention centers that focus on keeping people alive with access to social service resources. Julie's life-saving work stems from her brother Jonathan's untimely death from a heroin overdose 20 years ago. In a twist of irony, her stepfather Jack Fishman was the scientist credited with inventing naloxone which can reverse an overdose from heroin, fentanyl, and prescription opioid medications—when given in time. 

    https://juliestampler.com/

    From This Episode

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson

    Find and Follow Carole and Wisdom Shared:

    The Wisdom Shared Team

    • Audio Engineering by Steve Heatherington of Good Podcasting Works
    • Production Assistant and Marketing Coordinator: Kayla Nelson
    • Production Assistant: Becki Leigh

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