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    • Doctors' Bedside Manner in Parkinson's DiagnosisEffective communication and empathy from doctors during Parkinson's diagnoses can significantly impact patients' experiences and long-term care. Sensitive bedside manner is crucial in delivering life-changing news.

      Key takeaway from this discussion on the Movers and Shakers podcast is the importance of good bedside manner by doctors, particularly neurologists, when delivering difficult news to patients. Many stories were shared about insensitive and uncaring behavior during Parkinson's diagnoses. For instance, Nick was told he might be in a wheelchair in five years with a mere 20% chance, leaving him feeling unimpressed and seeking a different neurologist. Rory's experience included a cold and uninformative initial diagnosis followed by a more compassionate consultant. The lack of empathy and follow-up care was a common theme, leaving patients feeling lonely and unsupported. The panelists rated their neurologists' bedside manners, with some receiving high marks for their compassionate and nurturing approaches. Overall, this conversation emphasizes the significance of sensitive communication and emotional support during medical consultations, especially when delivering life-changing news.

    • Healthcare professionals' communication style impacts PD patients' experienceClear, empathetic communication from healthcare pros during PD diagnosis and treatment is crucial for patients' emotional well-being and understanding of their condition.

      The quality and communication style of healthcare professionals during a Parkinson's disease diagnosis and ongoing treatment can significantly impact a patient's experience. Some individuals reported receiving clear and straightforward diagnoses, while others felt uninformed and neglected. The importance of attentive and empathetic healthcare professionals, who take the time to explain diagnoses and answer questions, cannot be overstated. Additionally, the inconsistency in the level of care and advice received from different healthcare professionals highlights the need for improved communication and standardization in the healthcare industry.

    • Patients express disappointment with initial NHS consultation experience for Parkinson's diagnosisPatients want a more empathetic, multidisciplinary approach during Parkinson's diagnosis in the NHS, including emotional support and comprehensive care.

      The initial consultation experience for people diagnosed with Parkinson's disease in the National Health Service (NHS) often falls short of their expectations. Many individuals express disappointment with the lack of information, emotional support, and multidisciplinary approach during their diagnostic journey. A common complaint is the cold and impersonal delivery of the diagnosis by neurologists. Some people reported feeling abandoned and vulnerable, leading to feelings of depression and even suicidal thoughts. A multidisciplinary approach, which includes traditional medicine, psychological support, and self-empowerment, is crucial for managing the complexities of Parkinson's disease. The NHS patient experience, as shared in the letters, has been described as poor, leaving many feeling unsupported and disconnected. It is essential for healthcare professionals to prioritize empathetic communication and comprehensive care during the diagnostic process to ensure the best possible outcomes for patients.

    • Multidisciplinary clinics for Parkinson's diseaseMultidisciplinary clinics bring together various disciplines to effectively manage and treat Parkinson's disease, addressing physical, emotional, and social aspects. Psychology is crucial due to anxiety and depression, but scarcity of neurologists and complexity pose challenges.

      Multidisciplinary clinics are crucial for effectively managing and treating patients with conditions like Parkinson's disease. These clinics bring together various disciplines, including psychology, physiotherapy, and neurology, to address the complex physical, emotional, and social aspects of the condition. The importance of psychology cannot be overstated, as anxiety and depression are common in Parkinson's patients, and early intervention is essential. However, the scarcity of neurologists and the complexity of the medical field make implementing multidisciplinary clinics a challenge. The need for more neurologists, especially those from diverse backgrounds, and the adoption of more effective training methods are necessary steps towards improving patient care. Additionally, frequent consultations are essential to ensure that patients receive the most up-to-date and personalized treatment plans. In summary, multidisciplinary clinics offer a more comprehensive and effective approach to managing conditions like Parkinson's disease, and addressing the challenges in implementing these clinics is essential for improving patient outcomes.

    • Shortage of Neurologists Leads to Long Wait TimesNeurologists are essential for diagnosing and treating neurological conditions, but their shortage leads to long wait times and non-specialist care. Home-based care and involving other healthcare professionals can help provide better care for patients.

      There is a significant shortage of neurologists in many parts of the world, including Europe, leading to long wait times for diagnosis and treatment of neurological conditions like Parkinson's disease. For instance, in the UK, there is one neurologist for every 97,000 people, which is a shocking ratio. This means that many patients are diagnosed and treated by non-neurologists or have to wait long periods to see a specialist. The speaker, who has experience working both in understaffed clinics and in a well-staffed national hospital, emphasizes the importance of having enough time to properly diagnose and care for patients. He is involved in an experiment called home-based care, which allows for more flexible and constant interaction between patients and healthcare professionals. While neurologists are important, the speaker also emphasizes the value of other healthcare professionals, such as neuro nurses, physiotherapists, occupational therapists, and speech therapists, who can provide specialized care for neurological conditions. There are standards for how long a neurologist should spend with a new patient, but beyond that, the approach to diagnosis and treatment is often left to the individual discretion of the neurologist. The speaker emphasizes the importance of taking the time to get to know the patient, listen to their story, and consider all possible tests and treatments.

    • Communication and listening key in healthcare, especially with difficult newsEffective communication and listening are essential for quality healthcare, especially when delivering difficult news like a Parkinson's diagnosis. Patients need support and access to resources, but current systems have gaps, requiring better resourcing and communication.

      Effective communication and listening are crucial in providing quality healthcare, especially when breaking difficult news like a Parkinson's disease diagnosis. Patients want to feel heard and understood, but time constraints and resource limitations can make this challenging, particularly in district general hospitals. The importance of having a supportive care team and access to resources like local Parkinson's UK groups cannot be overstated. However, the current system has gaps, with varying availability of Parkinson's nurses and resources depending on individual health authorities. The situation is further complicated by funding sources and coordination between different sectors. Ultimately, there is a need for better resourcing and communication to ensure that patients receive the care and support they deserve.

    • Enhancing communication and access to healthcare professionalsRegular follow-ups, access to allied neuro staff, and a more flexible approach to care can significantly improve the experience and outcomes for individuals with Parkinson's disease. Having a designated point of contact, like a nurse, is also beneficial.

      Improving communication and access to healthcare professionals, particularly Parkinson's nurses, can significantly enhance the experience and care for individuals diagnosed with Parkinson's disease. Regular follow-ups, access to allied neuro staff like physios and psychologists, and a more flexible approach to care are essential. Additionally, having a designated point of contact, such as a nurse, can be more effective than relying solely on doctors for information and support. Overall, prioritizing these improvements can lead to better care and outcomes for those living with Parkinson's.

    • Integrating communication skills training from medical schoolMedical students learn effective communication skills early on through interactive methods, patient interactions, and continuous practice throughout their training.

      Effective communication skills in healthcare are crucial and can be learned through early integration and practice during medical training. According to a consultant neurologist, the current generation of medical students and trainees are learning in a more interactive way than before, with a focus on empathy and active listening. Universities, such as the University of Glasgow, integrate communication skills training from the first year, allowing students to meet patients early on and learn how to take a patient's history. Communication skills training is not limited to specific courses but is integrated throughout the medical school years, including clinical blocks and sessions dedicated to breaking bad news. Students also get the opportunity to practice with actors and receive feedback from their peers. While this is not the complete solution to having doctors with good bedside manners, it is a significant step in the right direction.

    • Effective communication skills in medical fieldCommunication skills are vital in medical field, involve patients, assess understanding, deliver news gently, adapt to patients' reactions, and master continuously.

      Effective communication skills are crucial in the medical field, especially during patient consultations. These skills are not only evaluated during examinations but can also lead to failure if not executed properly. Techniques such as preparing a quiet and comfortable environment, identifying the patient's level of understanding, and delivering news gently are essential. Communication skills do not stop after graduation and are crucial for junior doctors and trainees as well. Patients may react differently to the same news, making it essential to assess each situation individually. Diagnosing diseases like Parkinson's, which have uncertainty and a wide range of symptoms, adds to the complexity of effective communication. Involving patients more in their care, as seen in programs like Oxford's expert patient tutors, can be beneficial. Overall, mastering communication skills is a continuous process that requires adaptability and sensitivity to each patient's unique needs.

    • Building Strong Connections with PatientsIncorporating an apprenticeship-like approach with longer appointments and regular follow-ups, early patient interaction, and empathy training can lead to effective patient care in complex medical conditions.

      Building a strong connection with patients is crucial in the field of medicine, especially when dealing with complex conditions such as Parkinson's disease, MS, Alzheimer's, stroke, and motor neuron disease. An apprenticeship-like approach to medicine, where doctors spend more time with patients, is advocated. This not only allows for a better understanding of the patient's symptoms but also for developing empathy. Regular follow-ups and longer appointments are essential for effective patient care. Medical students, like Oscar, who have personal experiences and a desire to make a difference, bring a fresh perspective to the profession and can contribute to this patient-centric approach. While medical education varies, incorporating early patient interaction and bedside manner training is beneficial. The changing societal attitudes towards empathy and patient care may also positively impact the medical field.

    • Effective communication in healthcareEffective communication between healthcare professionals and patients, especially older generations, is vital for better patient outcomes and experiences. A more flexible healthcare system, including increased nurse involvement and better use of technology, can help improve communication and reduce patient anxiety.

      Communication and understanding between different generations and healthcare professionals is crucial for effective consultations and patient care. Older generations may have had a more reserved approach to discussing feelings, but modern trends suggest a more holistic and open approach. Neurology, while less interactive with patients, is still an important field. The healthcare system could benefit from a more flexible approach, including increased nurse involvement and better use of technology, without necessarily increasing costs. Doctors face time constraints and the importance of early and accurate diagnoses cannot be overstated. Patients, especially those newly diagnosed, can benefit greatly from medical professionals' knowledge and reassurance, and it's essential that we continue to find ways to reduce their worry and anxiety. Ultimately, effective communication, a more flexible healthcare system, and a focus on early and accurate diagnoses can lead to better patient outcomes and experiences.

    • Turning Challenges into OpportunitiesAdapt, grow, and thrive in the face of adversity by staying positive, staying curious, and finding ways to connect with others.

      Key takeaway from today's episode of Movers and Shakers is that while facing challenges and difficulties can feel like a life sentence, it's important to make the best of the situation and turn it into an "open prison." This means finding ways to adapt, grow, and even thrive in the face of adversity. Throughout the episode, our guests shared their insights and experiences on various topics, from the importance of resilience and adaptability in the face of change, to the role of creativity and humor in navigating difficult situations. They emphasized the importance of staying positive, staying curious, and finding ways to connect with others, even when it feels challenging. So whether you're facing a personal challenge or navigating a complex professional situation, remember that it's possible to make the most of it and turn it into an opportunity for growth. And if you enjoyed today's episode, be sure to subscribe to Movers and Shakers, rate and review it on your podcast app, and follow us on Twitter @moversand6. We'd love to hear your thoughts and questions, so feel free to email us at feedback@moversandshakerspodcast.com. See you next week!

    Recent Episodes from Movers and Shakers: a podcast about life with Parkinson's

    Parky Profiles: Kevin Cahill

    Parky Profiles: Kevin Cahill

    For the next in our series of profiles of fascinating folk with Parkinson's, Paul introduces the gang to Kevin Cahill. For decades, Kevin was the Chief Executive of Comic Relief, a role that entitled him dubious honours, like employing Paul to write University Challenge sketches, and convincing Billy Connolly to run round Trafalgar Square in nothing but his God-given fatigues. Kevin joins the Movers and Shakers in the Notting Hill pub to discuss his life, career, and journey with Parkinson's.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parky Profiles: Paul Sinha

    Parky Profiles: Paul Sinha

    In the pub this week, for the latest instalment of our Parky Profiles series, is none other than Paul Sinha: qualified doctor, award-winning comedian, professional Chaser. Paul's journey through Parkinson's hasn't been without its difficulties – to compound things, he had a heart attack at the Edinburgh festival – but over a Diet Coke in the Notting Hill pub, Paul shares his wit and wisdom on living, and thriving, with Parkinson's.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    BONUS: Parky Politics (Not) in the Pub – Victoria Atkins

    BONUS: Parky Politics (Not) in the Pub – Victoria Atkins

    On this bonus election episode of the podcast (don't worry, the politics is over and our Parky Profile series will resume on Saturday!) we're speaking to Victoria Atkins, the current Secretary of State for Health and Social Care. We discuss the impact that the Conservatives are having on the backlog in the health service, the future for neurological provision, and what she can – and can't – promise when it comes to the Parky Charter.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parky Politics in the Pub – with Wes Streeting

    Parky Politics in the Pub – with Wes Streeting

    In just a couple of weeks, Wes Streeting may find himself the Secretary of State for Health and Social Care. If that wasn't a sufficiently daunting proposition, this week he finds himself at the Notting Hill pub surrounded by our group of militant Parkies! What does Streeting make of the Parky Charter? Will he promise an influx of new neurologists? And how will he prevent the NHS succumbing to sclerosis? On this special election edition of Movers and Shakers, the gang put the prospective Health Secretary through his paces!


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parky Profiles: Susie Sainsbury

    Parky Profiles: Susie Sainsbury

    For the second instalment of our summer series profiling extraordinary people with Parkinson's, the gang are joined in the Notting Hill pub by Dame Susie Sainsbury. A note philanthropist and patron of the arts, Susie has spent decades living with PD. But what caused her to spend 3 years keeping the diagnosis totally secret, even from her husband, former Science Minister David Sainsbury? And how does she now find herself involved with an experimental programme building bridges between the Netherlands and, er, Bristol?


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Parky Profiles: Guy Deacon

    Parky Profiles: Guy Deacon

    This week, we're kicking off our summer mini-series, profiling top Parkies who are leading extraordinary lives despite – or because of – the condition. First up: Guy Deacon. Guy has driven from Morocco to South Africa in a VW Camper Van since his diagnoses, which makes him a perfect person to pontificate on how to take big, adventurous risks when living with the illness.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Mailbag #3

    Mailbag #3

    It's the season finale of Movers and Shakers, which means that it's time to answer some of your letters. From discussion about the Charter to playing walking football at the Emirates, this is a diverse mailbag that captures the wit and wisdom of the Movers and Shakers community. And then, at the end of the episode, we have a little treat: music extracted from Parky tremors!


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    Cell Therapy

    Cell Therapy

    From levodopa to Deep Brain Stimulation (DBS) we're all pretty familiar with the treatments for Parkinson's. But could there be something, just around the corner, that could change the whole game, not just stalling but reversing the tide of symptoms? That's the subject the Movers and Shakers are discussing today as they gather in the Notting Hill pub with special guest Professor Roger Barker, a world-leading expert on the application of stem cells as a potentially revolutionary treatment for Parkinson's.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    What Causes Parkinson's?

    What Causes Parkinson's?

    What causes Parkinson's? This is one of the trickiest questions facing researchers and doctors – not to mention patients – and it's the topic being tackled by the Movers and Shakers as they take to the Notting Hill pub today. Is there something atmospheric? Or does the club lie in our DNA? Our guide through this topic is Professor Matt Farrer, one of the leading lights of this research area.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


    The Movers & Shakers Take Downing Street!

    The Movers & Shakers Take Downing Street!

    This week we have a very special episode of Movers and Shakers: live from Downing Street! On World Parkinson's Day, the Movers and Shakers, along with representatives from Parkinson's UK, Cure Parkinson's and Spotlight YOPD took to the streets of Westminster to hand over the #ParkyCharter, a list of 5 demands (well, polite requests) to government. Join Rory, Gillian, Mark, Paul, Nick and Jeremy in that experience, and listen to the testimonies of the many listeners to the show who made the trip down to SW1A to show their support.


    Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.

    Produced and edited by Nick Hilton for Podot.

    Additional production by Ewan Cameron.

    Music by Alex Stobbs.

    Artwork by Till Lukat.

    PR by Sally Jones.


    For more additional information about the show, as well as extra resources and exclusive content, please visit MOVERSANDSHAKERSPODCAST.COM



    Hosted on Acast. See acast.com/privacy for more information.


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