cancer patient

To continue our discussion on sleep health, Damian simplifies melatonin for us.

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Vitamin D again?! Yep, it's that important!

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https://jenmfit.ehealthpro.com/t/jenmfit/mental-health-support

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Low levels of B vitamins have been linked to depression - so how do we get enough?

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Vitamin D we associate with the sun, but did you know many people are actually deficient? Vitamin K is another important nutrient Damian covers here.

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Music:  Take My Time by The Sun Tones

Produced by SciencetoLife

Un manga autobiografico estremamente sincero scritto da Hilnama, autrice di boy's love di 38 anni, a cui dopo un mal di pancia viene diagnosticato un cancro al colon.

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In this episode, Monica Dean, AONN+ Director of Patient Navigation Programs, is joined by Cancer Support Community’s Susan Ash-Lee, MSW, LCSW, Vice President, Clinical Services and Education, and Kelly Hendershot, LGSW, LMSW, LSW, Senior Director, Institute for Excellence in Psychosocial Care, to discuss the emotional responses experienced by patients and caregivers during cancer treatment and beyond.

Read more about this episode on AONNonline.org.

Gaz shared how he’s dealing with a terminal diagnosis as a young adult and why for a practical person like him, living from scan to scan takes on a different meaning.

You can connect with Gaz on Instagram @Gaz_Emmerson where you will see that he’s still biking to his chemo appointments and enjoy concerts with his friends. You will also find the link to his fundraiser for Sarcoma UK there, which now stands at a whopping $111K pounds!

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Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. 

Thank you for listening!

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My reflections on the conversation:

I really appreciate having the opportunity to talk to Gaz about his cancer experience, because it’s a bit like an anti-thesis to this podcast, where I promote talking about and processing the challenging emotions we have as a way for us to move forward. Gaz showed me that that’s not necessarily the right answer for everyone and that for him, taking action - like being present and making memories with loved ones and finding ways to give back to others - has been a better way for him moved forward through each setback. I thank him for that gentle reminder. 

Also, it was upsetting to hear that the first-line treatment for Ewing Sarcoma has not progressed in 40 years and thus leaving people living with this cancer with very few treatment options. It brought back memories of the awful countdown I used to do in my head - each time a type of therapy failed for my dad, I would panic silently in my own head about having only x number of options left. At the time, I never thought about what a luxury it was that we even had that many options to try. But again, cancer and luxury aren’t two concepts that often go together. 

Sue gave us a glimpse into the struggles of caring for a loved one who is fully dependent on her and how in an extreme situation like this, self-care may just mean grabbing a few Oreos.

Please follow the podcast if you are enjoying the show. Would also be awesome if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.

Have topic suggestions or feedback about the show?  Contact me on Instagram or email me at talkaboutcancerpodcast@gmail.com. 

Thank you for listening!

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My reflections on the conversation:

A big “thank you” to Sue for giving me a precious hour from her day to share her caregiving experience with us. Her situation with her husband is pretty extreme but there were actually many elements I could connect with, such as having a very short horizon and only being able to focus on getting through each task at hand or having a sense of being in a “secret society” where your own life seems so far away from “normal” that you feel like an outsider. 

I know Sue reminded us to not try to be superwoman or superman, but I have to say, she comes pretty close to it in my book. Navigating the bureaucratic healthcare system with the ombudsman’s office is not a walk in the park, let alone for someone who is dealing with the emotional, financial, and logistical challenges of becoming a full-time caregiver. She also talked about the importance of making therapy work for her and not accepting services that weren’t effective. Rather than giving up, she managed to tackle each of these hurdles one at a time. It’s an incredible example of how resilient we can be when we need to care for the people we love. 

Emily talked about the importance of listening to your body and not being afraid to question your doctor when his or her guidance is contrary to what you believe is the right answer for you. She also shared what it was like to deal with an unexpected disability after surgery.

You can find Emily @wonkyarm on Instagram and at her blog. 

Please follow the podcast if you are enjoying the show. Would also be awesome if you can leave an honest rating and review so I know if I am serving the interests and needs of you listeners out there.

Have topic suggestions or feedback about the show?  Email info@talkaboutcancerpodcast.com or come say hi on Instagram, Facebook, Twitter, or Linkedin!

Thank you for listening!

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My reflections on the conversation:

You probably heard me talk more during this episode than most others because I was feeling pretty frustrated by the experiences Emily had to go through with her doctor. I know she was being very diplomatic about not discounting his professional abilities completely, but to not have changed his ways given what happened the first time tells me that he did not take ownership of the situation. This honestly is a sign that he is not very focused on improving patient care and it’s so dangerous for patients who are medical outliers like Emily is. 

I also want to thank Emily for highlighting the experience of living with a disability after cancer. In addition to feeling isolated from her peers (because cancer can be rather foreign to people in that age range), she had to navigate an extra layer of complexity when it came to school, sexual intimacy, and work. Just thinking about how nerve-racking interviews still are for me today, I can only imagine how hard it was for Emily to have had to not only manage her own insecurities but also quickly learn to direct conversations with strangers in a way that didn’t reduce her to just cancer and the disability. 

I hope Emily is super proud of what she has accomplished given all the barriers she has had to overcome and continues to share her experiences through her creative writing because there is so much strength in her words and it will be an inspiration to others who are dealing with similar challenges. 

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