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    carer

    Explore " carer" with insightful episodes like "E121: Nicola Nuttall - Be More Laura Foundation", "Starting Your Own Podcast: Finding Your Voice and Sharing Valuable Information", "Libby Kettlestring Orientation 2024 Interview (Wildlife)", "Improving diagnosis and care in younger onset dementia" and "Episode 3: Feedback" from podcasts like ""Rad Chat", "The Daily Me", "TuneFM", "Health Report - Separate stories podcast" and "Patient Power"" and more!

    Episodes (72)

    E121: Nicola Nuttall - Be More Laura Foundation

    E121: Nicola Nuttall - Be More Laura Foundation

    **Trigger Warning**


    Naman Julka-Anderson and Jo McNamara catch up with Nicola Nuttall as part of the Living With and Beyond Cancer Series (part 33).


    Discussion about Laura Nuttall’s diagnosis and treatment, Nicola’s campaigning and the Be More Laura foundation.

     

    To use this podcast as CPD, look at these reflection points: 

    1. read about the signs and symptoms of a brain tumour: https://www.thebraintumourcharity.org/brain-tumour-signs-symptoms/

    1. reflect on Nicola’s experience as a parent while Laura was diagnosed and had treatment.

    3. consider how you could support someone who during grief and bereavement.


    Complete this form for your accredited digital badge: https://bit.ly/3GbtR1X.


    Links from podcast:

    Be More Laura: https://www.bemorelaura.com/

    Our Brain Bank: https://www.ourbrainbank.org/use-your-brains/

    Brain Tumour Charity: https://www.thebraintumourcharity.org/

    Brain Tumours Macmillan Cancer Support: https://www.macmillan.org.uk/cancer-information-and-support/brain-tumour

    Teenage Cancer Trust: https://www.teenagecancertrust.org/

    Mind Charity - Grief: https://www.mind.org.uk/information-support/guides-to-support-and-services/bereavement/experiences-of-grief/

    Child Bereavement UK: https://www.childbereavementuk.org/

    Make A Wish Foundation UK: https://www.make-a-wish.org.uk/ 


    Please like and subscribe to Rad Chat on your podcast library.


    Our links:

    Link Tree:https://linktr.ee/radchat 

    Facebook:https://www.facebook.com/RadChatPodcast/ 

    Instagram:https://www.instagram.com/rad__chat/ 

    LinkedIn:https://uk.linkedin.com/company/radtalk 

    Tik Tok:https://www.tiktok.com/@rad_chat 

    Twitter:https://twitter.com/rad__chat?lang=en 

    YouTube: https://www.youtube.com/@radchat2259


    Music and jingle credits: Dr. Ben Potts and Adam Cooke.

    Libby Kettlestring Orientation 2024 Interview (Wildlife)

    Libby Kettlestring Orientation 2024 Interview (Wildlife)

    As part of our Orientation content this week, we are presenting a series of interviews with some academics, UNE staff, and UNE Life personnel to help new students learn a little bit more about their study journeys at UNE. In this episode, we'll be talking with UNE Life Executive Officer, Libby Kettlestring, about what students should do if they encounter some of the famous campus wildlife. We also talk about her volunteer work as a wildlife carer and rehabilitator, and the benefits of regional campuses.

    Episode 3: Feedback

    Episode 3: Feedback

    Can feedback be a tool to improve healthcare? 

    In Episode 3, we discuss how to improve our own and other people’s care using our experiences - positive and negative. 

    How can we give and receive feedback? And why do consumers have a unique perspective to identify risks and harms that doctors and nurses may not see? 

    There are informal and formal ways to give feedback. Julie McCrossin, Graeme Slade, Nadine El-Kabbout and Nat and Kai Rataj chat about the range of ways we can give and receive feedback and how to do it in the most effective way possible.

    Patient Power is a Health Consumers NSW podcast and video series, supported by the Australian Commission on Safety and Quality in Health Care.

    Love, Loss, and Living With Dementia

    Love, Loss, and Living With Dementia

    For many people, caring for aging parents is a daunting task. But for Megan and Jason Van Genderen, moving Jason's mother into their home with their young children after she was diagnosed with dementia was a no-brainer. They chat to Cam and Ali about how their journey turned into an internet sensation, what it taught them about communication, and learning to ask for help.

    LINKS 

    Got a question for Cam & Ali? You can email them at separatebathrooms@novapodcasts.com.au

    CREDITS 

    Hosts: Cameron Daddo and Alison Brahe-Daddo. 
    Guests: Megan Van Genderen and Jason Van Genderen.
    Managing Producer: Elle Beattie. 
    Producer and Editor: Amy Kimball. 

    Find more great podcasts like this at novapodcasts.com.au. 

    Nova Entertainment acknowledges the traditional custodians of the land on which we recorded this podcast, the Gadigal People of the Eora Nation. We pay our respect to Elders past and present. 

    See omnystudio.com/listener for privacy information.

    Episode 46 : Unmasking ADHD in the Criminal Justice System: An Exploration with Angela Kirwin

    Episode 46 : Unmasking  ADHD in  the Criminal Justice System: An Exploration with Angela Kirwin

    Angela Kirwin, renowned writer-activist and author of the riveting book, How Prisons Are Failing Us All, takes center stage in this episode, providing some harrowing insights into the world of neurodiversity, mental health, and the criminal justice system.
     
    Join us as we peel back the layers of societal expectations and the challenges they pose in diagnosing ADHD, especially in women and girls.

    This episode mines the groundbreaking work of the ADHD Alliance, shedding light on the invaluable support they provide to neurodiverse individuals within the police force.
     
    Hear first-hand about their collaboration on a pioneering study with the City of London Police, where every arrested individual is screened for ADHD, a potentially game-changing approach in the justice system. 

    Angela emphasizes the urgency of facing the underlying issues faced by women in prisons, especially mental health concerns and the stark absence of safe housing.

    Navigating ADHD can be a profound struggle. Angela draws from her personal journey with ADHD, sharing her frustrations with self-diagnosis, the exorbitant costs linked to a formal diagnosis, and the power of therapy in fostering self-understanding and growth. 

    The episode underscores the importance of acknowledging mental health conditions in prisons, and highlights the potential of creative outlets for neurodiverse individuals while cautioning against self-diagnosis. This is a must-listen episode for those intrigued by ADHD, mental health, and the criminal justice system.

    Support the show

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    Victoria Bennett, Wild Woman, Poet and Author of All My Wild Mothers

    Victoria Bennett, Wild Woman, Poet and Author of All My Wild Mothers

    In this episode, we are simply delighted to be with our beloved bliss sister and dear friend, Victoria Bennett (Vik) who is a poet, author, creative activist, and Wild Woman. 

    When not juggling writing, full-time care, and genetic illness, she can be found where the wild weeds grow…within ALL MY WILD MOTHERS:  her debut memoir of motherhood, loss and an apothecary garden.

    • Hear the mystic tale of a poet in northern England awakened by Troubadours in the middle of the night.
    • We dance on tables... and answer the call to free the wild woman in us.
    • We find when we are our authentic selves in the world, we can create anything and that’s when the magic starts!
    • Find the small thing worth the gift of your hope. And what is courage but hope mixed with love.
    • We plant a herb garden and get more than blooms. We are given myths, healing and wise companions on our journey.
    • We see what can grow in the broken ground of grief and find that life grows not in spite of the broken places, but because of them.
    • Some seeds require disturbance in order to grow. If we try to cut out the things that hurt and that are difficult, then we also cut out all the joy.
    • When we garden wild, we are celebrating a connection, a companionship, an honoring of our place in a vital biodiverse environment.
    • We blow the dandelion with its seeds of wishes out into the world!
    • LIFE arrives, reaching for the light, bathing in tears, reckless and determined to grow wild and lush over what was once barren stone.

    Her writing spans non-fiction, memoir, poetry and games-based storytelling. It was long listed for the inaugural Nan Shepherd Prize (2019), and the Penguin WriteNow (2020) programme, and was a winner of a Northern Debut Award (2020) for non-fiction from New Writing North, and an early extract won the Mother’s Milk Writing Award 2017.

    Vik founded Wild Women Press in 1999 to support rural women writers in her community and curates the global Wild Woman Web project, an inclusive online space focusing on nature, connection, and creativity. 

    Vik shares, “…stone by stone, seed by seed, life grows not in spite of the broken places, but because of them…”

    Join us as we look forward to a story of radical hope, to reclaiming our wild spaces and letting the light into those broken places as we transform the rubble into a garden with her!

    Personal Website

    https://victoriabennett.me

    Social Media link

    @VikBeeWyld. (twitter)

    Social Media link

    @BeeWyld. (instagram)

    Social Media link

    https://linktr.ee/beewyld 

    Support the show

    BECOME A MEMBER
    https://ko-fi.com/caravanoftheheart/tiers

    Your monthly support helps further this outreach and keeps this Caravan moving to amplify love in all things!

    LOVE IS SPOKEN HERE

    How to get a job in fashion before the year ends (I got mine in December!)

    How to get a job in fashion before the year ends (I got mine in December!)

    Are considering pausing your fashion job applications until the end of the year  because YOU:

    • are stressed out because you are applying for so many jobs but you are not hearing back from companies?
    • think that companies will wait till the next year before hiring new members?
    • want to get a new job that starts in 2023 so it's too early to worry about it now?


    Think again.

    I started my first fashion internship at Alexander McQueen on December 13th and in this podcast episode I'll share:

    • my personal story of when I did job interviews in Nov and Dec and started my internship in December
    • why companies are still hiring in December
    • what to do if you cannot find new internships or jobs you can apply by the end of the year.  

    The Black Friday offer is coming, join the VIP waitlist here to be the first to know and get exclusive bonuses  https://glamobserver.com/blackfriday

    Visit our website for more career advice: www.glamobserver.com

    Follow us on Instagram for daily updates: @glamobserver


    So you want to hide from your kids

    So you want to hide from your kids

    We have a question for parents listening: do you ever hide from your kids? Of course you do! Next time you’re hiding in the pantry eating the nice biscuits, try out some of these mindful tricks.

    LINKS   

    CREDITS
    Host:
    Casey Donovan @caseydonovan88
    Writer:
    Amy Molloy @amymolloy
    Executive Producer:
    Elise Cooper
    Editor:
    Adrian Walton

    Listen to more great podcasts at novapodcasts.com.au  

    See omnystudio.com/listener for privacy information.

    Grumpy Gits Vs PDA Dad UK Vs Beer n BS Show - an episode covering PDA, Autism and Disability amongst other things.

    Grumpy Gits Vs PDA Dad UK Vs Beer n BS Show - an episode covering PDA, Autism and Disability amongst other things.

    The 43rd episode of the ‘Beer n BS Show’

    Join us as we talk shit so you don't have to...

    In this episode we are joined by the wonderful Chris and Duncan from the Grumpy Gits Podcast and PDA Dad UK YouTube channel. We discuss all sorts of nonsense and get serious with a chat about autism, PDA and disabilities. In turns in to a bit of busman’s holiday for our guests. Join us as things get messy and our guests are subjected to our brand of freeform recorded discussion.

    No one on the show got the Beer or BS quiz section right – will you?

    Grab a beer, put on your headphones (we are not suitable for children – Rachel’s fault – most of the time) and enjoy the show!

    Ales Tasted:

    • Cursor by Squawk Brewing Company (Fruited Sour) – 5.3% ABV
      Rachel rates 9.1 out of 10
    • Silk Road by BrewDog (NEIPA) – 6.5% ABV
      Aaron rates 6.8 out of 10
    • The Joy of Sesh by New Bristol Brewery (Session IPA) - 4.2% ABV
      Geoff rates 7.9 out of 10
    • Hobgoblin Gold by Wychwood Brewery (Golden Ale) - 4.5% ABV
      Chris rates out 7.2 of 10
    • Gamma Ray by Beavertown (American Pale Ale) - 5.4% ABV
      Duncan rates 5.0 out of 10

    Aaron's Craft Beer Suggestion:

    • Proper Job by St Austell Brewery (English IPA) - 4.5% ABV
      An award-winning modern India Pale Ale, packed full of citrus, pineapple and grapefruit resinous flavours with a fine crisp bitter finish. On cask at 4.5%, bottled and canned at 5.5%, on keg at 4.5% and exported in keg at 5.5%

    Other links:

    Life with Dementia - Dream-Shattering & Life-Altering

    Life with Dementia - Dream-Shattering & Life-Altering
    Lori La Bey talks with Lisa Ronke from Watertown, South Dakota. She worked in Sales, Marketing, Event Planning and most recently retired as a Project Manager/Paralegal from a local law firm. Needless to say she was a good organizer, but when Husband Ed was diagnosed with Early onset ALZ at age 51 she found dementia was not something you could organize once and put into a file, a drawer.  Dementia has a mind of it’s own. Since Ed’s diagnosis,  he lived 6 ½ years and passed away at the age 57, on Nov. 28, 2021.  Today, Lisa will share insight about the disease and how the life-altering, dream-shattering diagnosis affected their lives.

    We are live today so call in and join the conversation.  Ask your questions or make a comment at (323) 870-4602

    Contact Lori La Bey with questions or visit www.AlzheimersSpeaks.com

    Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

    Support this Show: https://alzheimersspeaks.com/donate-now/

    See omnystudio.com/listener for privacy information.

    Life with Dementia - Dream-Shattering & Life-Altering

    Life with Dementia - Dream-Shattering & Life-Altering
    Lori La Bey talks with Lisa Ronke from Watertown, South Dakota. She worked in Sales, Marketing, Event Planning and most recently retired as a Project Manager/Paralegal from a local law firm. Needless to say she was a good organizer, but when Husband Ed was diagnosed with Early onset ALZ at age 51 she found dementia was not something you could organize once and put into a file, a drawer.  Dementia has a mind of it’s own. Since Ed’s diagnosis,  he lived 6 ½ years and passed away at the age 57, on Nov. 28, 2021.  Today, Lisa will share insight about the disease and how the life-altering, dream-shattering diagnosis affected their lives.

    We are live today so call in and join the conversation.  Ask your questions or make a comment at (323) 870-4602

    Contact Lori La Bey with questions or visit www.AlzheimersSpeaks.com

    Alzheimer's Speaks Radio - Shifting dementia care from crisis to comfort around the world one episode at a time by raising all voices and delivering sounds news, not just sound bites since 2011.

    Support this Show: https://alzheimersspeaks.com/donate-now/

    See omnystudio.com/listener for privacy information.

    S01 E01: The history of Myeloma Australia

    S01 E01: The history of Myeloma Australia

    In our very first episode we meet our president Brian Rosengarten. Brian together with his wife Ros, Bob, Glenys, Donald and Judith started the Myeloma Foundation of Victoria. He tells the story of how it all began and the early years of the Foundation. We discuss the growth of the services that are provided and how it has come to what it is today, 23 years later. Brian also gives a beautiful personal account of his role as a carer and how his life changed after Ros’ diagnosis. We also hear about being presented an Order of Australia for his work in the myeloma community.

    David Richman on supporting people when they need us most (#34)

    David Richman on supporting people when they need us most (#34)

    00:01:35 – endurance sport.  

    00:05:04 – Running is meditative.  

    00:06:50 – the life events that motivated David to start endurance sports.  

    00:08:50 – the importance of caring for yourself first instead of impressing people all the time.  

    00:11:03 – adversity can make you better or it can make you bitter.  

    00:13:56 – I have to vs I get to.  

    00:16:55 – receiving help in difficult times.    

    00:20:37 – not worrying what others think of you.  

    00:24:14 – do people know how to deal with grief?  

    00:26:14 – why David's sister was so important in his life.  

    00:31:25 – how did the book, Cycle of Lives, come about?  

    00:35:13 – Just put your feet on the ground and make your bed every day.  

    00:40:07 – how to have open conversations where people were open to talk about trauma and grief.  

    00:44:48 – how can we best support people through difficult times?  

    00:47:15 – what to say when someone is going through a tough time?  

    00:50:25 – you might be the only person who showed care.  

    00:52:58 – asking open questions is more important than saying the right thing.  

    00:55:35 - scared of saying the wrong thing.  

    00:59:45 – we can choose our response.  

    01:00:50 – we are all passer-by's in each other's lives.  

    01:04:55 – get in touch with David.  

    More detailed show notes with links to references can be found at:  https://candourpodcast.com/david-richman/

    The Caregivers Hangout | Debs surgery

    The Caregivers Hangout | Debs surgery

    On this episode we get an update on our lovely Debrus and how she went on her surgery day. Also sending well wishes to Deb xo 
    If you need someone to advocate for you and you are disabled there is the disability advocacy finder:

    Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.


    To listen to Rods My FND Reality : his Caregiving story click below

    https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodney

    Carer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :

    https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway

    For more information on Carer Gateway 

    https://www.carergateway.gov.au/

    their phone number is 1800 422 737

    also join their Facebook page to keep updated and their support groups.

    For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link below

    https://www.facebook.com/groups/588224248292396

    For more information about NDIS checkout Carers Australia @ www.carers australia.com.au

    https://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts check them out!

    What has the team been listening to? What are are their song preferences ? In a flare and would like to listen to some songs? Head over to our playlist! Thank you Maggie for making it :)

    https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=i1RzVbhmQ3GeJ6a3Iu7sHw&dl_branch=1

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts check them out!

    HELPFUL RESOURCES:

    A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

    https://www.neurosymptoms.org/

    Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

    https://www.health.qld.gov.au/news-events/podcast/my-amazing-body-the-brain-2.0

    An excellent podcast episode which explains what Functional Neurological Disorder is. Have a good listeners brilliant!

    https://www.neurokid.co.uk/

    A website for young people and families living with NEAD and neurological symptom

    https://fndportal.org/

    Amazing website with information and links to fnd 

    Information on Non Epileptic Seizures or NEAD

    https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf

    FND ORGANISATIONS:

    https://www.fndaus.org.au/

    FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

    Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is 

    https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

    FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.

    https://www.fndaction.org.uk/

    FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

    http://fnddimensions.org/

    A really helpful article and explanation of what FND is: '

    https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

    Other podcasts/ blogs / vlogs to follow:

    itsmeitsmeitsfnd

    https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

    Bed Life and Beyond by Rach also a lovely FNDer 

    https://pandoralocksmith.wordpress.com/about/

    John McLeans Fnd Journey

    https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

    Lmtd Life with FND

    https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

    FNDer amplified: Meg Jacks

    follow on Instagram @ Meg.jacks_

    TicTok: @megjacks

    Instagram follow Emma’s journey :@emmas_fnd_fun

    The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND

    Top Tip: Teenagers and connection

    Top Tip:  Teenagers and connection

     For modern parents, raising a teen or a tween is NOT easy. Why are today's parents feeling like failures? Ok we won’t solve this issue in 5 minutes lol but over the next few weeks, we will share a couple of winning strategies from the book ‘The New Teen Age’ by Dr Ginni Mansberg and Jo Lamble.

    Links

    Credits  
    Host: Casey Donovan @caseydonovan88 
    Content: Amy Molloy @amy_molloy
    Executive Producer: Elise Cooper
    Editor: Adrian Walton

    See omnystudio.com/listener for privacy information.

    How do we improve disability care?

    How do we improve disability care?

    This episode is not appropriate for children. Listeners discretion is advised.

    This is such a complex question to answer.  

    More information about South Australian disabled woman, Ann Marie Smith and her tragic death. 

    Helplines are always there for you. 

    SANE Australia provides support to anyone in Australia affected by complex mental health issues, as well as their friends, family members and health professionals. Call 1800 18 7263, 10am – 10pm AEST (Mon – Fri), or chat online.

    Lifeline provides 24-hour crisis counselling, support groups and suicide prevention services. Call 13 11 14, text on 0477 13 11 14 (12pm to midnight AEST) or chat online.

    FriendLine supports anyone who's feeling lonely, needs to reconnect or just wants a chat. You can call them 7 days a week on 1800 424 287, or chat online with one of their trained volunteers. All conversations with FriendLine are anonymous.

    Resources used in this episode:

    How to Challenge the Status Quo Successfully

    FIGHTING FOR DISABLED PEOPLE’S HEALTH

     

    You can ask Peta a question via:

    The website: www.icantstandpodcast.com

    Email: icantstandpodcast@gmail.com

    You can follow Peta on Instagram @petahooke

    Episode Transcript 

     

    See omnystudio.com/listener for privacy information.

    The Caregivers Hangout| Preparing for Surgery

    The Caregivers Hangout| Preparing for Surgery

    In this episode we talk about the preparation of surgery as Deb prepares to head into surgery. How they tackle it as it seems to be part of their life more often or not. Update: Deb is well and recovering as we speak.

    information or links to check out:

    legal matters for caregivers ie power of attorney etc from Carers gateway

    https://www.carergateway.gov.au/help-advice/legal-matters

    Preparing for surgery

    https://www.betterhealth.vic.gov.au/health/servicesandsupport/preparing-for-surgery

    Manual Handling Webinar:

    https://youtu.be/QfD457lbTmQ


    If you need someone to advocate for you and you are disabled there is the disability advocacy finder:

    Disability advocacy is acting, speaking or writing to promote, protect and defend the human rights of people with disability. The Australian Government, and some state and territory governments, fund independent advocacy to help people with disability who face complex challenges or are unable to advocate for themselves, and do not have family, friends or peers who can support them as informal advocates, to access advocacy support.


    To listen to Rods My FND Reality : his Caregiving story click below

    https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodney

    Carer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :

    https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway

    For more information on Carer Gateway 

    https://www.carergateway.gov.au/

    their phone number is 1800 422 737

    also join their Facebook page to keep updated and their support groups.

    For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link below

    https://www.facebook.com/groups/588224248292396

    For more information about NDIS checkout Carers Australia @ www.carers australia.com.au

    https://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/

    https://imprintmerch.com.au/collections/lets-have-the-chat

    from masks to bags hoodies and tshirts check them out!

    HELPFUL RESOURCES:
    A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

    https://www.neurosymptoms.org/

    Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

    https://www.neurokid.co.uk/

    A website for young people and families living with NEAD and neurological symptom

    https://fndportal.org/

    Amazing website with information and links to fnd 

    Information on Non Epileptic Seizures or NEAD

    https://www.sth.nhs.uk/clientfiles/File/Epilepsy/pil2072.pdf


    FND ORGANISATIONS:

    https://www.fndaus.org.au/

    FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

    Click below to hear more about FND Australia Support services and who Dr. Katherine Gill is 

    https://thefndpodcast.simplecast.com/episodes/the-fnd-podcast-with-detty-dr-katherine-gill-and-fnd-australian-support-services

    FND Action is a patient-led charity who offer a caring and supporting hand to people living with Functional Neurological Disorder (FND) in the UK.
    https://www.fndaction.org.uk/

    FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

    http://fnddimensions.org/

    A really helpful article and explanation of what FND is: '

    https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

    Other podcasts/ blogs / vlogs to follow:

    itsmeitsmeitsfnd

    https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

    Bed Life and Beyond by Rach also a lovely FNDer 

    https://pandoralocksmith.wordpress.com/about/

    John McLeans Fnd Journey

    https://m.facebook.com/JohnsFND/?ref=page_internal&mt_nav=0

    Lmtd Life with FND

    https://m.youtube.com/channel/UC3xLKpn7gkgvVoH29ulu4IA/videos

    FNDer amplified: Meg Jacks

    follow on Instagram @ Meg.jacks_

    TicTok: @megjacks

    Instagram follow Emma’s journey :@emmas_fnd_fun

    The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND