In his episode we talk a bit about Advance care directives. It’s about talking to those we care for about keeping their independence and choices for if there comes a point where they cannot speak and their voices are heard.
Click on the link to read up on more information About advance care planning
https://www.advancecareplanning.org.au/
Caregiving during covid times
https://www.redcross.org/get-help/how-to-prepare-for-emergencies/types-of-emergencies/coronavirus-safety/family-caregivers.html
ways to cope during covid times & caregiving mentally:
https://dailycaring.com/coronavirus-and-caregiver-mental-health-8-coping-tips/
https://www.consumerreports.org/elder-care/coping-strategies-for-family-caregivers/
To listen to Rods My FND Reality : his Caregiving story click below
https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodney
Carer Gateway is an excellent resource provided by the federal government to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :
https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway
For more information on Carer Gateway
https://www.carergateway.gov.au/
their phone number is 1800 422 737
also join their Facebook page to keep updated and their support groups.
For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link below
https://www.facebook.com/groups/588224248292396
For more information about NDIS checkout Carers Australia @ www.carers australia.com.au
https://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/
To listen to our song playlist started by our lovely Maggie on Spotify click on the link below
https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA
FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd
https://imprintmerch.com.au/collections/lets-have-the-chat
from masks to bags hoodies and tshirts check them out!
HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.
https://www.neurosymptoms.org/
Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there.
FND ORGANISATIONS:
https://www.fndaus.org.au/
FND AUSTRALIA SUPPORT SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.
https://fndaus.org.au/
https://www.fndaction.org.uk/
FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives opportunity for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.
http://fnddimensions.org/
A really helpful article and explanation of what FND is:
https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ
MY FND APP is another great tool that can be downloaded at any App Store which can help you monitor your FND symptoms and document it so you can see it for yourself long term and keep a log. Also it can be great to take along for appointment.
Other podcasts to follow:
itsmeitsmeitsfnd
https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1
The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND.