carer

Today we are joined by Brian Smith-an engineer and professor, a father to a 7 year-old and a caregiver to his wife who has lived with Multiple sclerosis since 2006. In today's episode Brian talks about how he 'balances' (if balance is possible) it all, caregiver burnout, and his coping strategies to make it through each week. Brian is a true superhero- you really don't want to miss this episode!

Find Brian on Instagram @briansmith_nd

Visit us on our website:
www.compassionincaregiving.com

Stephanie currently has openings for one-on-one therapy. To find out more and to see if she is a good fit please visit https://calendly.com/compassionincaregiving/30min?back=1&month=2021-06

Join our FREE Facebook community!

For more visit our instagram! @compassionincaregiving

Today we are joined by Registered Art Therapist and Licensed Mental Health Counselor, Erica Curcio, who discusses the incredible impact art therapy can have both on the care partner and the loved ones they care for. In this episode Erica goes into detail about the type of art modalities that can be used in therapy sessions and the incredible outcomes she has seen both in and after sessions.

Find Erica on Instagram @thetravelingarttherapist or her website at www.ericacurcio.com.

Visit us on our website:
www.compassionincaregiving.com

Stephanie currently has openings for one-on-one therapy. To find out more and to see if she is a good fit please visit https://calendly.com/compassionincaregiving/30min?back=1&month=2021-06

Join our FREE Facebook community!

For more visit our instagram! @compassionincaregiving

In his episode we talk a bit about Advance care directives. It’s about talking to those we care for about keeping their independence and choices for if there comes a point where they cannot speak and their voices are heard. 
 

Click on the link to read up on more information About advance care planning 

https://www.advancecareplanning.org.au/

Caregiving during covid times

https://www.redcross.org/get-help/how-to-prepare-for-emergencies/types-of-emergencies/coronavirus-safety/family-caregivers.html

ways to cope during covid times & caregiving mentally:

https://dailycaring.com/coronavirus-and-caregiver-mental-health-8-coping-tips/

https://www.consumerreports.org/elder-care/coping-strategies-for-family-caregivers/

To listen to Rods My FND Reality : his Caregiving story click below

https://thefndpodcast.simplecast.com/episodes/my-fnd-reality-caregiving-talking-to-rodney

Carer Gateway is an excellent resource provided by the federal government  to help support caregivers by giving resources, support , education, forums and more. We recently had an interview with Catholic care who runs Carer Gateway to learn more about them you can listen to their interview below :

https://thefndpodcast.simplecast.com/episodes/supporting-caregivers-carer-gateway

For more information on Carer Gateway 

https://www.carergateway.gov.au/

their phone number is 1800 422 737

also join their Facebook page to keep updated and their support groups.

For the FND Australian support services Facebook group to talk and share support of other caregivers looking after FNDers / support advocates click on the link below

https://www.facebook.com/groups/588224248292396
 

For more information about NDIS checkout Carers Australia @ www.carers australia.com.au

https://www.carersaustralia.com.au/ndis-carers/what-is-the-ndis/

To listen to our song playlist  started by our lovely Maggie on Spotify click on the link below

https://open.spotify.com/playlist/5lvGhN4Ab3AtwBj42L5DDA?si=IyN0V1ENQdi1_6W6MrNjAA

FND Merchandise to support FND Australia Support services by Chucky from @friendswithfnd

https://imprintmerch.com.au/collections/lets-have-the-chat

from masks to bags hoodies and tshirts check them out!

HELPFUL RESOURCES:
A website all things Functional neurological Disorder written by Professor Jon Stone who is the leading FND researcher and Consultant Neurologist in Edinburgh, Scotland.

https://www.neurosymptoms.org/

Neurosymptoms has an app that you can download now too. Look up neurosymptoms or Jon stone and you will find it there. 

FND ORGANISATIONS:

https://www.fndaus.org.au/

FND AUSTRALIA SUPPORT  SERVICES INC: A wonderful resource for people in Australia with FND: from reasearch into FND, finding medical specialists and services and just information about FND. Solely dedicated to all things FND and helping those with FND in Australia.

https://fndaus.org.au/

https://www.fndaction.org.uk/

FND Dimensions aims to develop a network of ‘peer support groups’ across the UK either in face to face meetings or online via methods such as Skype. By bringing people together on a regular basis, this helps alleviate the isolation that many FND patients feel. It also gives  opportunity  for others to open up dialog and to talk to others in a similar position about the day to day challenges, issues or concerns with one another.

http://fnddimensions.org/

A really helpful article and explanation of what FND is: 

https://threadreaderapp.com/thread/1367576277956370432.html?fbclid=IwAR1GZpXe7IgC9qVlIr7ygA9RslPy6nxhQIumdUw9XMu2fs8MsMf8SwYZeVQ

MY FND APP is another great tool that can be downloaded at any App Store which can help you monitor your FND symptoms and document it so you can see it for yourself long term and keep a log. Also it can be great to take along for appointment. 

Other podcasts to follow:

itsmeitsmeitsfnd

https://open.spotify.com/show/6RSjTADQCw9tA4Udnutf0L?si=JZy4CAfuSB6FWaBCi8Avgg&dl_branch=1

The Fnd Podcast always suggests that you always talk with your gp and or specialist with any treatments in regards with FND. 
 

Email us: talk@richmond.gov.uk

Tweet us: @LBRUT 

For more information on Sara and her book: www.whocares4carers.com

For more information on carer’s assessments: www.richmond.gov.uk/carers_assessments

For more information on the Richmond Carers Centre: Home - Richmond Carers Centre

Host: Ingrid Abreu Scherer, Civil Society Lead at the What Works Centre for Wellbeing. whatworkswellbeing.org

With huge thanks to the project staff and participants who spoke to us for this podcast, and shared their music-making.

Peter and Gina from the Monster Extraction project in My Pockets, an award winning production company based in Hull and East Yorkshire. My Pockets make innovative and heartfelt films, music, digital campaigns and social art projects. http://www.mypockets.co.uk/

Laura Roberts from Jack Drum Arts, a sustainable, locally-based social enterprise providing cultural opportunities for communities in County Durham and the wider region through a range of workshops, courses, theatre, music-making and outdoor events. https://www.jackdrum.co.uk/

Teya-Jean Bawden from the Lullaby Project in Fèis Rois, enables people of all ages to access, participate in and enjoy the traditional arts and Gaelic language through a diverse programme of activities in Ross & Cromarty, across Scotland and beyond.

Ruth Hollis from Spirit of 2012. The Carers’ Music Fund was made possible by funding that Spirit of 2012 received from the Tampon Tax Fund, awarded through the Department for Digital, Culture, Media and Sport (DCMS). 

new section of the show called What do you want to know ??,  also what do you do if a cockroach goes in ya ear

Lovdev talks about the joys of doing self defence classes and a story about a family who decide to do there weekly shop in an ambulance.

this plus more weird puns

paypal me £8 including you're address and I will get the crazy little thing mug sent out to you 
https://paypal.me/lovdevbarpaga?locale.x=en_GB

When you are a caregiver of someone with dementia or any other progressive disease you know how your world can be flipped upside down.  The 24/7 demands can and DO take a toll on you.  This episode is focused on you and your needs.

Until you've been a caregiver, you can't possibly understand what is involved and what you sacrifice in order to care for a loved one.  Being a caregiver for someone with dementia is one of the most selfless tasks someone can ever take on.  Spend a few minutes and hear what it's all about.

Articles featured on page 11, 12 and 13 of The Carlow Nationalist on August 11th 2020.

Penney is a carer, supporting vulnerable adults in their own homes. Many of those she visits are fearful and anxious, yet there has been an increase the support and compassion being given by the wider community. At a time when we are supposed to be socially isolating, it is a real challenge to be the one going into people's homes, even to do essential care work. How does her faith give her courage and hope in the situation?
 

Remember to join us every day at 7 pm (BST/UTC+1) for #COVID1900Prayer, a chance to pray for health workers, our nation and the world as we respond to COVID-19

There is a stage in everyone’s life where you realise your parents are not bulletproof. 

For some of us that comes when our mum or dad starts forgetting things or when they go through a period of unexpected turmoil. But for many of us, it often comes when a parent suddenly becomes unwell. 

When journalist, author and screenwriter Amal Awad’s father was diagnosed with kidney failure, she made a surprising decision that changed so much for them and for her.

In this episode, she joins Mia Freedman to talk about how, if we ever are going to truly get to know our parents, as people… it is going to happen in adulthood.

Click here to subscribe to No Filter.

We have a new podcast! If you are looking for love and are opening to trying something new, click here to listen to Eligible: https://mamamia.com.au/podcasts/eligible/

NEXT WEEK 

Gabbie Stroud back in the studio to talk about what she wished parents knew about teaching. Click here to listen to the last time she was on No Filter: https://www.mamamia.com.au/podcasts/no-filter/gabbie-stroud-broke-up-with-teaching/

CREDITS:

Host: Mia Freedman 

With thanks to special guests to Amal Awad

Producer: Bridget Northeast

GET IN TOUCH:

Call the PodPhone on 02 8999 9386.

Email the show at podcast@mamamia.com.au

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Kyro Brooks and James Townsend are entrepreneurs with a passion for supporting people who care for somebody they love.

This is a short trailer for 'Who Cares Wins' - the podcast that will be sharing stories about the amazing work people do in a caring role.

Luke and Samantha Gillett's children had just emerged from their most time consuming phase when they decided to start again from the beginning. Almost. When they realised they had more time on their hands now their girls were teenagers, they decided they had the capacity to help children who needed respite foster care. And so they opened their homes to many different children. They explain the challenges with fostering, and why for them, it's all worthwhile.

See omnystudio.com/listener for privacy information.