chronic condition

With thanks to Olivia Wills.

Olivia is an Accredited Practising Dietitian and member of Dietitians Australia’s. She completed a Bachelor of Nutrition and Dietetics (Hons)(Deans Scholar) from the University of Wollongong in 2021. Olivia is now completing a PhD in multiple sclerosis and lifestyle management and is supported by a postgraduate scholarship from MS Australia.

At the heart of Olivia’s research is her commitment to enhancing the lives of those living with MS. Her research focuses on the impact of adopting protective health behaviours to maximise lifelong brain health and she is particularly passionate about translational research, engaging healthcare professionals and people living with MS to support her research findings into actionable strategies. 

Olivia also has experience in providing dietetic counselling services for a range of endocrine, gastrointestinal, metabolic disorders and neurological disorders. She is a firm believer of providing individualised and specific advice and support to all of her patients and is a strong advocate for adopting a holistic approach in the management of medical conditions.

Check out the episode transcript here.

Check out the Brain Health: time matters in multiple sclerosis report here.

Views expressed on the MS Podcast, including any discussions or reference to medications or treatments by podcast guests, do not necessarily represent the views of MS Plus and should not be seen as either an endorsement or rejection of a treatment.  

MS Plus does not recommend any specific treatment for people living with MS. Decisions about any treatments, taking into consideration the potential benefits and side effects for each individual’s circumstances, should be made in careful consultation with the person’s neurologist or health care professional. 

Kristen Hutchison is a writer, patient advocate, and a passionate supporter of healthcare reform. She's received her bachelor's of science in biology and psychology from Santa Clara University, and recently completed a year-long medical writing program through Harvard Medical School. She has also completed certifications in somatic therapy, and trauma-informed yoga. 

Kristen was diagnosed with ulcerative colitis when she was in high school, and has lived with the condition for over 15 years. During one of the lows points in her medical journey, when the UC was flaring severely, Kristen started journaling. She felt isolated as a young woman with an invisible chronic illness, and needed an outlet to express herself. Kristen knows of the healing power of sharing our stories, and gathering in community to be seen and understood.  

Kristen's inaugural writing group starts on February 15th from 6-7:30 pm CST. Virtually or in-person at Sankalpa in Bloomington. We plan to meet monthly!

• Link to register for group: https://www.khutchison.com/patientadvocacy
• Website: https://www.khutchison.com/
• LinkedIn: https://www.linkedin.com/in/kristenhutchison/
• IG: @khutchdiggity or @peace.with.chronic.illness

Resources mentioned in the podcast: 

• The Healing Power of Storytelling by, Annie Brewster (https://magazine.hms.harvard.edu/articles/healing-power-storytelling)
• The Nap Ministry - Tricia Hersey (https://thenapministry.wordpress.com/)
• Girls With Guts - https://girlswithguts.org/

Well Connected Twin Cities is connecting you with local health and wellness professionals in your community. Discover what's possible by surfing the directory, taking a class, or attending the next event.

http://wellconnectedtwincities.com/
Follow us on instagram https://instagram.com/wellconnectedtwincities

In this episode we explore a critical issue - the alarming rates of chronic diseases, presenting challenges for both individuals and our broader healthcare system. Join us as we discuss how research becomes the catalyst for the evolution of healthcare practices, transforming our perspective on preventative medicine and chronic disease management.

Find our transcript here: https://www.researchns.ca/beyondresearch-prescribing-wellness-the-evolution-of-chronic-disease-management

In Season 3, Episode 4 – Prescribing Wellness: The Evolution of Chronic Disease Management, we cover:

02:44 – Chronic disease rates and the challenges
03:42 - The research that started it all
08:30 – What is Exercise is Medicine
10:02 – Research impact for healthcare providers and patients
11:10 – People, places, and programs for individuals living with chronic disease
12:40 – Impact of physical activity and exercise on the healthcare system
14:43 – Research impact for individuals living with chronic diseases
17:47 – Next steps
19:48 – Impact on healthcare costs

Thank you to our guests:

Dr. Jonathon Fowles is a Professor in the School of Kinesiology and Director of the Centre of Lifestyle Studies at Acadia University.

Joy Chiekwe is the General Manager of Health Management at the John W. Lindsay YMCA in Halifax, Nova Scotia and the Provincial Lead for the LiveWell YMCA program.

Verna MacKinnon is an Operations Consultant with a focus on physical activity for Nova Scotia Health’s primary health care and chronic disease management provincial network. 

The Beyond Research Podcast is produced by Podstarter. It is available wherever you get your podcasts. 

If you like this episode, be sure to hit the subscribe button and leave us five stars. You can also follow us on social:
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We sat down with Justine Martin to discuss the lengths they've gone through fighting for an accurate diagnosis within the Canadian healthcare system. Justine has been active on social media under the username @hottie.autie.autie sharing advocacy tips and tricks, research on different chronic conditions and advice to her followers/community. In this episode, we learn about the primary care shortage in Canada and how that is impacting diagnostic timelines for those who need it most. 

If you are in Canada, also check out Justine's incredible bakery, Guilty Pleasure Bakeshop + Catering (@gpbakeshop on social media). 

Let's be honest. Does anyone really like going to the doctor? What if you have a chronic health condition and need to see your doctor more often than the average person? Now imagine getting the care you need from the comfort of your own home.

"Now we're really bringing those technologies, using AI, using digital platforms, not just to replicate traditional care, but to care for patients more longitudinally and to gather data and information from patients using those digital technologies, on a more frequent basis."

That's Brandy Clark, Vice President of Digital Care for OSF OnCall. And I'm Shelli Dankoff, your host of Health Accelerated, brought to you by OSF Healthcare. 

Learn more: https://www.youtube.com/watch?v=6lt2RYMxyPc&feature=youtu.be

ಕುಷ್ಠರೋಗವು ಮೈಕೋಬ್ಯಾಕ್ಟೀರಿಯಂ ಲೆಪ್ರೇ ಎಂಬ ಬ್ಯಾಕ್ಟೀರಿಯಾದಿಂದ ಉಂಟಾಗುವ ದೀರ್ಘಕಾಲದ ಸಾಂಕ್ರಾಮಿಕ ರೋಗವಾಗಿದೆ. ಇದು ಮುಖ್ಯವಾಗಿ ಚರ್ಮ ಮತ್ತು ನರಗಳ ಮೇಲೆ ಪರಿಣಾಮ ಬೀರುತ್ತದೆ, ಉಂಡೆಗಳನ್ನೂ ಉಬ್ಬುಗಳನ್ನೂ ವಿಕಾರಗೊಳಿಸುವುದರ ಜೊತೆಗೆ ಪೀಡಿತ ಪ್ರದೇಶಗಳಲ್ಲಿ ಮರಗಟ್ಟುವಿಕೆಗೆ ಕಾರಣವಾಗುತ್ತದೆ. ರೋಗವನ್ನು ಪ್ರತಿಜೀವಕ ಚಿಕಿತ್ಸೆಯಿಂದ ಚಿಕಿತ್ಸೆ ನೀಡಬಹುದು, ಇದು ಸಂಪೂರ್ಣವಾಗಿ ಗುಣಪಡಿಸುವಲ್ಲಿ ಹೆಚ್ಚು ಪರಿಣಾಮಕಾರಿಯಾಗಿದೆ.

ಸಾಂಕ್ರಾಮಿಕ ಸ್ವಭಾವದ ಬಗ್ಗೆ ತಪ್ಪು ಕಲ್ಪನೆಗಳಿಂದಾಗಿ ಕುಷ್ಠರೋಗಿಗಳ ಸುತ್ತ ಇನ್ನೂ ಬಹಳಷ್ಟು ಕಳಂಕವಿದೆ. ಕುಷ್ಠರೋಗವು ಒಂದು ಕಾಲದಲ್ಲಿ ಹೆಚ್ಚು ಸಾಂಕ್ರಾಮಿಕ ಮತ್ತು ಗುಣಪಡಿಸಲಾಗದು ಎಂದು ಭಾವಿಸಲಾಗಿತ್ತು, ಆದರೆ ಆಧುನಿಕ ಔಷಧವು ಈ ನಂಬಿಕೆಗಳನ್ನು ನಿರಾಕರಿಸಿದೆ. ರೋಗಿಯು ತಮ್ಮ ನಿಗದಿತ ಚಿಕಿತ್ಸೆಯನ್ನು ಪೂರ್ಣಗೊಳಿಸಿದ ನಂತರ, ಅವರು ಇನ್ನು ಮುಂದೆ ಬ್ಯಾಕ್ಟೀರಿಯಾದ ವಾಹಕಗಳಲ್ಲ ಮತ್ತು ಅದನ್ನು ಇತರರಿಗೆ ರವಾನಿಸಲು ಸಾಧ್ಯವಿಲ್ಲ.

ಇಲ್ಲಿ ನಾವು ವಿವರಿಸುವ ಮಾಹಿತಿ ಕೇವಲ ಶೈಕ್ಷಣಿಕ ಉದ್ದೇಶಕ್ಕಾಗಿ ಮಾತ್ರ. ಹಾಗು ನಾವು ವಿವರಿಸುವ ಮಾಹಿತಿಯನ್ನು ಯಾರಾದರು ಅನುಸರಿಸುವ ಮೊದಲು ಪರಿಣಿತ ತಘ್ನರನ್ನು ಅಥವಾ ಪರಿಣಿತ ವೈದ್ಯರನ್ನು ಬೇಟಿ ನೀಡಿ.  ಹಾಗೂ ನಾವು ಚರ್ಚಿಸುವ ಅಥವಾ ವಿವರಿಸುವ ಮಾಹಿತಿಯಿಂದ ಆಗುವ ಅನಾನುಕೂಲಗಳಿಗೆ "ಆರೋಗ್ಯ ಕನ್ನಡ ಪಾಡ್ಕಾಸ್ಟ್ ಆಗಲೀ, "ಆರೋಗ್ಯ ಕನ್ನಡ"  ಪಾಡ್ಕಾಸ್ಟ್ ನ ಮಾಲೀಕರಾಗಲಿ ಜವಾಬ್ದಾರರಲ್ಲ .

In this episode, we talk to Tonya Ingram, a poet and mental health advocate living with Lupus. During our conversation, we discuss Tonya’s experience being on the kidney transplant waiting list, the darker side of the organ transplant process and OPOs, her poetry practice, and choosing to blossom — despite the conditions of the soil.

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In this episode, Nora talks about her illness, what happened when she went into liver failure and her subsequent liver transplant surgery. Speaking to her friend and former colleague Christine Cestaro she talks about why she wanted to start So, Life Wants You Dead, the power of community and what this show is all about.

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In this episode Coach Jenny talks to thyroid disease advocate and fellow Strong Girl Ebony Williams, who has been featured previously in Strong Fitness Magazine and is a wellness specialist. Ebony takes us through her personal story of how she moved from studying neuroscience to including an exercise degree in her studies after her journey with thyroid disease. Jenny and Ebony talk about the importance of really listening to your body and being an advocate for your wellness, the necessity of proper diet and sleep patterns, and how to take care of your thyroid NOW vs reactively. Thyroid health is crucial to supporting our overall body system management, and in this episode we get snapshots of what can help us accomplish that goal.

Ebony Williams Resources:

• Ebony on IG
• Ebony on FB
• Ebony’s Tweets
• Thyroid Warrior Podcast
• Souls Beauty
• Join the Thyroid Warriors Club

If you are interested in a Body Transformation, please use this link and fill out the Questionnaire

If you enjoyed this episode, make sure and give us a five star rating  and leave us a review on iTunes, Podcast Addict, Podchaser and Castbox.

STRONG Fitness Magazine Subscription Use discount code STRONGGIRL

Resources

• STRONG Fitness Magazine
• STRONG Fitness Magazine on IG
• Team Strong Girls
• Coach JVB

Follow Jenny on social media

• Instagram
• Facebook
• YouTube

DISCLAIMER: The opinions, beliefs, and viewpoints expressed by the hosts and guests on this podcast do not necessarily represent or reflect the official policy, opinions, beliefs, and viewpoints of Disenyo.co LLC and its employees.

In this episode I brought on fellow Ulcerative Colitis warrior, Tati Skomski. I first discovered Tati from her guest appearance on another podcast in 2019 where she shared her journey with UC- she gave me hope when I was in the midst of my severe flare that I would be able to thrive one day. 

Whether you are a chronic illness warrior or not- I think bringing awareness around chronic illness is extremely important- PLUS you possibly have someone in your life who does have a chronic illness so SHARE this message with them please! :)

We chatted about the REAL TALK that is not talked about enough when it comes to being diagnosed and handling a chronic illness... the mental hurdles, denial, grieve, and the reality for people with a chronic condition. We also talked about tips for self care, building confidence, and taking care of our health while also being ambitious women. 

TATI'S AFFIRMATIONS: "This is not my forever" & "I can do hard things!"

To connect with Tati: her Instagram is @thetatiskomski
To connect with your host, Court: @journeytolimitless_ on Instagram! 

DON'T FORGET TO HIT SUBSCRIBE! :) 

Today joining us is Dr. Crisamar Anunciado, board certified by the Association of Diabetes Care and Education. She shares her expertise in her field, as well as gives tips on how to naturally boost the immune system and reduce chronic inflammation. Dr. Anunciado addresses some chronic inflammation and common root causes and discusses symptoms management, as well. We will focus on the two main types of inflammation:  acute versus chronic. Lastly, we touch base on how chronic inflammation affected those exposed to Covid-19.

Dr. Crisamar Anunciado, Ph.D., FNP-BC, BC-ADMDr. Crisamar Anuciado currently works as a nurse practitioner at Sharp Chula Vista. She holds a Ph.D. in Nursing, Master’s of Science as a Family Nurse Practitioner, and is board certified in Advanced Diabetes Management by the Association of Diabetes Care and Education. Dr. Anuciado is a faculty lecturer at the University of San Diego and Senior Medical Science Liaison for AstraZeneca. She is CEO and Founder of Critical Essentials, an information blog about health, education, and more. 

How can we find peace in the midst of turmoil? Whether it's a health diagnosis, life change, trauma, or tumultuous event, we all deserve to find peace. In today's episode I share about my experience with Hepatitis C and how finding peace with my diagnosis helped me heal. This can relate to anyone who has ever felt the urge to put on a 'strong' front in the midst of struggle. As I say, covering our wounds is not a solution in the long term. That's why I believe it's through expressing our emotions and letting it all out that prompts true 360 healing. 

In this episode I discuss: 

• Finding peace in the midst of a health diagnosis, life change, trauma, or tumultuous event
• My experience with Hepatitis C
• Working through my fears
• Releasing shame and sharing my story
• Seeking clarity and self awareness amongst turmoil
• Accepting support and surrendering the 'strong' front

Connect with me: @emilyfeikls @letsthrivepodcast 

Read my article on Healthline! 

Photo credit for Lene’s photo: David Govoni. 

Speaker bios:

Lene (pronounced Lena) is an award-winning writer and rheumatoid arthritis advocate living in Toronto, Canada. Born and raised in Denmark, Lene has had autoimmune arthritis since childhood and has used a power wheelchair since her teens. She has a Masters Degree in Social Work and writes books about living well with RA and other types of chronic illness. Lene shares her home with a cat and too many books.  

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources. 

Links to things discussed in this episode:

• Lene’s website: The Seated View https://theseatedview.com/
• Lene’s Twitter @TheSeateView
• Lene’s Facebook https://www.facebook.com/LeneAndersenwriter/
• Lene’s Instagram  @TheSeatedView
• Cheryl on Instagram
• Cheryl’s website: Arthritis Life
• Cheryl’s Tiktok: @ArthritisLife 
• Arthritis Life Facebook Page
• Cheryls Handout: Cheryl’s Master Checklist for Managing RA
• Cheryl’s Facebook group: Arthritis Life Podcast, Practical Tips & Positive, Realistic Support
• This episode is brought to you by the Rheumatoid Arthritis Roadmap, an intensive online education and support program Cheryl created to empower people with the tools to confidently manage their social, emotional and physical life with rheumatoid arthritis.
• Medical disclaimer: All content found on the Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Here's the show breakdown:

·       01:50 – Lene shares her diagnosis story with Juvenile and Rheumatoid Arthritis

·       02:32 – Lene shares some tips for managing the holidays with a chronic illness. 

·       05:00 – How Lene learned to embrace “imperfect moments” that create the family legends to make the holidays special.

·       11:45 – Lene’s reflections about navigating the holiday season this year during COVID-19. 

·       20:55 – Lene shares her journey of creating her first book while battling major hurdles living with her Juvenile and Rheumatoid Arthritis.

·       26:45 – Anyone battling chronic illness with big aspirations just take it one step at a time – remember: thinking and planning counts as moving in the right direction. 

·       31:40 – Lene gives insight about using her power wheelchair at age sixteen empowered her to live life to the fullest.

·       36:25 – Lene discusses human right principles by understanding employment and accommodations for people with chronic illness.

·       42:40 – Lene’s advice for newly diagnosed patients. 

“Lament is simply pouring out your anxieties and pain to God…in the expectation that God hears you and He is willing to do something about it.”

2020 has been a year of heightened heartache. Unpredictable circumstances, isolation, and extreme loss have left many people wondering how to process their grief through the lens of Scripture, and in relationship to God’s goodness and sovereignty.  

This week on the podcast, Crystal has invited Jennifer Ji-Hye Ko to join her in focusing on the biblical practice of lament. Jennifer, who lives with a number of chronic conditions, is walking through the cleansing and healing process of crying out to God through seasons of deep grief. If you are feeling weighed down today by emptiness or loss, be encouraged by Jennifer’s insight and guidance for the important practice of lament. 

Resources:

• Download Jennifer's Poem, Vision Through Blood
• Follow Jennifer on Instagram
• Send the hope of Christ and practical help to individuals and families impacted by disability. Give the Perfect Gift! 

Questions or comments? Email Crystal at podcast@joniandfriends.org
Support Joni and Friends to help make this podcast possible.

*Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Join us in answering the call in Luke 14:21-23... until his house is full! 

Founded by author and international disability advocate Joni Eareckson Tada, the ministry provides Christ-centered care that serves needs and transforms hearts through Joni's House, Wheels for the World, and Retreats and Getaways. Joni and Friends also equips individuals and churches with disability ministry training and provides higher education courses and internships through the Christian Institute on Disability. Find more encouragement through Joni's radio podcast, daily devotional, or by following us on Facebook,  Instagram, and YouTube.