complex regional pain syndrome

When Kento was 11 years old, he hurt himself while doing marital arts, leading to a diagnosis of complex regional pain syndrome. Kento along with his parents Minako and Robert, talk to Ken Connors.

Conversation with Said Isayed and his patient, Susan Smith, about his practice in Traditional Chinese Medicine and his use of the whole person approach to treat a wide variety of complex conditions.

Topics of Discussion:
-Eastern medicine success through multi-faceted approach and whole person connection
-Different tools within Traditional Chinese Medicine
-Health equity and community health

Said Isayed is a Traditional Chinese medicine doctor who graduated from Tianjin University of Traditional Chinese Medicine after a six year Bachelor’s program in Acupuncture and Chinese Medicine and Allopathic medicine. Said spent five years interning in several Chinese hospitals and clinics, training under some of the most well-respected doctors of Chinese medicine. He focused strongly on the treatment of neurological diseases, auto immune disorders, men’s and women's health, orthopedic injuries, mental health and painful musculoskeletal conditions. 

In addition to acupuncture, Said is well versed in several types of bodywork including Chinese fire cupping, hijama (traditional Arabic cupping), tuina (Chinese medical massage) and guasha. He also practices Chinese and Arabic herbal medicine and grows and processes his own herbs.

In 2016, Said relocated from Hebron, Palestine to Minneapolis, MN. He is fluent in English, Arabic and Mandarin Chinese.

Susan Smith is his patient who was able to find him after years of struggling with Complex Regional Pain Syndrome (CRSP). For 25 years, she existed in a wheelchair, only getting worse with treatments and medications, living in constant pain, basically being in bed 20 plus hours a day.

Now, after years of treatment with Said, she is out of her wheelchair, engaged in her community and sharing all that she's learned from Said about Traditional Chinese medicine to support others who have Complex Regional Pain Syndrome.

Minnesota Integrative Health Studio Website: www.mnintegrative.com
Susan Smith's Facebook Group: Positivity with RSD-CRPS

Well Connected Twin Cities is connecting you with local health and wellness professionals in your community. Discover what's possible by surfing the directory, taking a class, or attending the next event.

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In this podcast episode, we meet Bonnie Tarbert, a self-published children's book author from Baltimore, Maryland. With over 25 years of experience in childcare and teaching, Bonnie has a special connection with children that she incorporates into her writing. She is also an illustrator and holds degrees in Art Education and Painting.

Bonnie shares her journey of becoming a children's book author and discusses her passion for art and teaching. Despite starting her writing and illustrating career in 2022, she has already written multiple titles that can be found in libraries worldwide.

Additionally, Bonnie opens up about her personal experience with Complex Regional Pain Syndrome (CRPS), a condition characterized by prolonged and excessive pain following an injury to an arm or leg. She describes the symptoms and challenges of living with CRPS, emphasizing the difficulty of finding effective treatments.

Despite the obstacles she faces, Bonnie remains resilient and continues to inspire others through her creativity and storytelling. Her story serves as a reminder of the power of art, teaching, and personal resilience in making a positive impact on children's lives.

Here are links for you to bookmark, save, follow, memorize, write down, and to share with others:
Bonnie Tarbert Children's Book Author - Home (weebly.com)
Bonnie Tarbert | Barnes & Noble® (barnesandnoble.com)
Bonnie Beth (@bonnietarbert) • Instagram photos and videos
Bonnie Tarbert | L

In-Person: Saturday, April 13th ::: Virtual: All April!

Click here to learn more

Rage Against Addiction 
Rage Against Addiction is a non-profit organization dedicated to connecting addicts and their famili

Follow the Conversations with Rich Bennett podcast on Social Media:
Facebook – Conversations with Rich Bennett & Harford County Living
Facebook Group (Join the conversation) – Conversations with Rich Bennett podcast group | Facebook
Twitter – Conversations with Rich Bennett & Harford County Living
Instagram – Harford County Living
TikTok – CWRB (@conversationsrichbennett) | TikTok

Sponsors, Affiliates, and ways we pay the bills:
Recorded at the Freedom Federal Credit Union Studios
Hosted on Buzzsprout
Rocketbook
SquadCast

Contests & Giveaways

Subscribe by Email

...

In this podcast episode, we meet Bonnie Tarbert, a self-published children's book author from Baltimore, Maryland. With over 25 years of experience in childcare and teaching, Bonnie has a special connection with children that she incorporates into her writing. She is also an illustrator and holds degrees in Art Education and Painting.

Bonnie shares her journey of becoming a children's book author and discusses her passion for art and teaching. Despite starting her writing and illustrating career in 2022, she has already written multiple titles that can be found in libraries worldwide.

Additionally, Bonnie opens up about her personal experience with Complex Regional Pain Syndrome (CRPS), a condition characterized by prolonged and excessive pain following an injury to an arm or leg. She describes the symptoms and challenges of living with CRPS, emphasizing the difficulty of finding effective treatments.

Despite the obstacles she faces, Bonnie remains resilient and continues to inspire others through her creativity and storytelling. Her story serves as a reminder of the power of art, teaching, and personal resilience in making a positive impact on children's lives.

Here are links for you to bookmark, save, follow, memorize, write down, and to share with others:
Bonnie Tarbert Children's Book Author - Home (weebly.com)
Bonnie Tarbert | Barnes & Noble® (barnesandnoble.com)
Bonnie Beth (@bonnietarbert) • Instagram photos and videos
Bonnie Tarbert | L

In-Person: Saturday, April 13th ::: Virtual: All April!

Click here to learn more

Rage Against Addiction 
Rage Against Addiction is a non-profit organization dedicated to connecting addicts and their famili

Follow the Conversations with Rich Bennett podcast on Social Media:
Facebook – Conversations with Rich Bennett & Harford County Living
Facebook Group (Join the conversation) – Conversations with Rich Bennett podcast group | Facebook
Twitter – Conversations with Rich Bennett & Harford County Living
Instagram – Harford County Living
TikTok – CWRB (@conversationsrichbennett) | TikTok

Sponsors, Affiliates, and ways we pay the bills:
Recorded at the Freedom Federal Credit Union Studios
Hosted on Buzzsprout
Rocketbook
SquadCast

Contests & Giveaways

Subscribe by Email

...

This week @TellinSeasonThePodcast sit with Teresa @Wazhappen_TT (IG and TikTok)

Muhva_T ( twitter) as we discuss 

National Complex Regional Pain Syndrome Month. We delve into what is (CRPS)  the significance of bringing awareness to the month.  As well as hearing Terasa’s story and the day to day struggles of coping with the disease. 

Be on the lookout for the upcoming Documentary “The CRPS in Me “ detailing Teresa’s complete story along with more information in the fight against Complex Regional Pain Syndrome. 

Follow The Crew: 
@TellinSeasonThePodcast 
@CoolChrisSmith
@Thats_Chubbs
@IGot2BeSteph

After decades of living with the ups and downs of chronic pain caused by CRPS, author and Nutritionist Darci J. Steiner wants to give a message of hope to people facing disability and chronic suffering. Her book, Beauty Beyond the Thorns, and its companion study guide, include personal stories of suffering and biblical stories to demonstrate how God can turn unexpected curveballs into victorious home runs. 

Key Questions:

• What is it like to live with chronic pain?
• How does God help you when your pain feels like too much to bear?
• Where have you seen God bring good or beauty out of your suffering?

Key Scripture:

• “She gave this name to the Lord who spoke to her: ‘You are the God who sees me,’ for she said, ‘I have now seen the One who sees me.’” Genesis 16:13
   

Resources:

• Learn more about Darci
• Get your copy of Beauty Beyond the Thorns

Send Crystal a message. 

Find more encouragement through Joni Eareckson Tada's radio podcast  and daily devotional.
Follow us on TikTok, Instagram, Facebook, and YouTube.

Your support  makes this podcast possible!

Joni and Friends envisions a world where every person with a disability finds hope, dignity, and their place in the body of Christ. Founded by international disability advocate Joni Eareckson Tada, we provide Christ-centered care through  Joni's House, Wheels for the World, and Retreats and Getaways, and offer disability ministry training and higher education through the Christian Institute on Disability. 

Angel Rowe of Pain to Pleasure Coaching and I sit down and talk about living with Chronic Pain, how pain affecting one partner affects the relationship, and what you can do about it. He shares his experience with CRPS (Complex Regional Pain Syndrome), and I talk about living with my partner who has Hip Dysplasia.

You can find Angel at the following locations:
Pain to Pleasure Coaching: www.albertasexcoach.com
Harmonious State Dog Services: www.harmoniousstate.ca



Private Coaching: Royally Screwed Coaching (royallovecoach.com)

Support the Show:
www.patreon.com/royallyscrewed
Paypal.me/royallyscrewed

FB: Royal Love Coaching | Facebook
TikTok: https://www.tiktok.com/@kincaidmcminn
Twitter: Kincaid McMinn (@kincaidmcminn) / Twitter

Brandenburg Concerto No4-1 BWV1049 - Classical Whimsical by Kevin MacLeod is licensed under a Creative Commons Attribution 4.0 license. https://creativecommons.org/licenses/by/4.0/

Source: http://incompetech.com/music/royalty-free/index.html?isrc=USUAN1100303

Artist: http://incompetech.com/

TAA 024: Meet Josephine Bridges, the chair and trustee of Positive Bones
Josephine just completed the three peaks challenge - that is summitting the three highest peaks in England, Wales, and Scotland - to raise money for her charity Positive Bones. She tells us about this adventure, the motivation that drove her to set up her own charity, and other issues of the wider limb difference community.

To learn more about the organization, check out the Positive Bones homepage.

For more information, visit The Active Amputee.

The music - as always - is Urbana-Metronica (wooh-yeah mix) by spinningmerkaba (c) copyright 2011 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/jlbrock44/33345 Ft: Morusque, Jeris, CSoul, Alex Beroza

To learn more about The Active Amputee, check out the following links

The Active Amputee Blog

The Active Amputee on Instagram

The Active Amputee on YouTube

The Active Amputee on Twitter

The Active Amputee on LinkedIn

The Active Amputee on Pinterest

TAA 023: Meet Hope Gordon, who crowdfunded the costs of her amputation
Hope was suffering from Complex Regional Pain Syndrom for years when she decided to have her leg amputated. As an amputation was against the guidelines of the National Health System, she needed to cover the costs by herself. That's when she decided to launch a crowdfunding campaign. Five years later, Hope is a happy young woman living a life free from pain. She is a member of the British National Canoe Team and has her eyes on this years' world championship.

For more information, visit The Active Amputee.

The music - as always - is Urbana-Metronica (wooh-yeah mix) by spinningmerkaba (c) copyright 2011 Licensed under a Creative Commons Attribution (3.0) license. http://dig.ccmixter.org/files/jlbrock44/33345 Ft: Morusque, Jeris, CSoul, Alex Beroza

To learn more about The Active Amputee, check out the following links

The Active Amputee Blog

The Active Amputee on Instagram

The Active Amputee on YouTube

The Active Amputee on Twitter

The Active Amputee on LinkedIn

The Active Amputee on Pinterest

Specific topics include:

• Julie’s experience with multiple knee surgeries 
• Avascular Necrosis leads to Complex Regional Pain Syndrome and Julie is bedriddenfor 6 months
• How a trip to Disney World led to Julie’s epiphany that she should share her story and start a blog
• How Julie put her Information Technology (IT) degree to use while tracking her symptoms and discovering her unique inflammation triggers
• How Julie discovered the most important tools for living a healthy, full life with PSA
• Julie’s current role as a patient advocate with WEGO health
• How PSA affected Julie’s dating life and how she met her now husband
• Julie’s experiences with pregnancy and parenting with PSA

This episode is brought to you by the Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.

Speaker Bios:

Julie Croner, a psoriatic arthritis patient leader, is on a mission to advocate for ALL advocates. She's the Vice President of the Patient Leader Network at WEGO Health and was named to MM&M's inaugural class of 40 Under 40 in 2020. Julie has been featured by Stanford Medicine X, the National Psoriasis Foundation, Everyday Health, WebMD, HealthLine, and more. 

Cheryl Crow is an occupational therapist who has lived with rheumatoid arthritis for seventeen years. Her life passion is helping others with rheumatoid arthritis figure out how to live a full life despite arthritis, by developing tools to navigate physical, emotional and social challenges. She formed the educational company Arthritis Life in 2019 after seeing a huge need for more engaging, accessible, and (dare I say) FUN patient education and self-management resources.

Episode links:

• Julie’s sites:
  • Blog: Itsjustabadday.com 
  • Twitter: twitter.com/justagoodlife 
  • Facebook: Facebook.com/itsjustabaddaynotlife
  •  Instagram: Instagram.com/itsjustabaddaynotlife 
  • LinkedIn: www.linkedin.com/in/juliecerrone  
  • Blog Email: justabaddaynotlife@gmail.com 
  • Work email: Julie.croner@wegohealth.com  
• Organizations mentioned in this interview:
  • WEGO Health
  • MothertoBaby - research studies of medications and pregnancy / breastfeeding
  • Mindful Mamas App
• Arthritis Life Podcast, Practical Tips and Positive, Realistic Support - Facebook group
• Cheryl’s Arthritis Life freebies:
  • Free Handout: Cheryl’s Master Checklist for Managing RA
  • Free Training: Arthritis Life Hack Crash Course
• Arthritis Life Program Links
  • Join the waitlist for Rheum to THRIVE, a membership community Cheryl created to help people with rheumatic disease go from overwhelmed, confused and alone to confident, supported and connected. 
  • Rheumatoid Arthritis Roadmap, an self-paced online course Cheryl created that teaches people with RA how to confidently manage their physical, social and emotional life with this condition.
• Cheryl’s Arthritis Life social media pages:
  • Cheryl &  Arthritis Life on Instagram
  • Cheryl’s website: Arthritis Life
  • Arthritis Life Tiktok: @ArthritisLife 
  • Arthritis Life Facebook Page
  • Cheryl’s Twitter: @realcc 
  • Arthritis Life Youtube channel

Medical disclaimer: All content found on Arthritis Life public channels was created for generalized informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.

Here's the show breakdown:

1:00 - Introduction to Julie.

2:00 - Julie’s winding journey to a psoriatic arthritis diagnosis: knee surgeries / swelling from fifth grade until after college and during work as an Information Technology (IT) consultant.

4:55 - Julie gets the adult diagnosis of psoriatic arthritis (PSA) and her rheumatologist helps get it under control. She’s able to connect the dots of her chronic health issues in retrospect and see how it all relates to psoriatic arthritis (PSA).

8:24 -  Julie also experiences avascular necrosis in the femur bone (leg) which led to complex regional pain syndrome (CRPS). She started connecting to other patients online, got medication for PSA and started exploring diet and lifestyle. 

9:48: Julie researches anti-inflammation lifestyle approaches, and uses her IT consultant skills to make an excel spreadsheet to track everything (food, movement, mood, medications, etc) for 6 months and discovered her unique inflammation and flare  triggers.

 10:55 The BEST thing she did in her journey!

11:20 - Julie discovers that her body is sensitive to food triggers. She discovers that gentle movement, meditation and mindfulness helps her. She continues going on and off medications when needed. 

12:40 - Cheryl reflects on the importance of discovering your own unique triggers and not thinking there is a one size all solution. 

14:00 - Julie’s worst food triggers for joint inflammation. (15:12) 

15:44 - Julie is bedridden for 6 months due to her Avasular Necrosis and is depressed. Her parents take her to DisneyWorld and she has an epiphany after doing a singing competition!  She decides to share her story through starting a blog: “It’s just a bad day not a bad life.”

19:20 - After being on disability for four years, she decides to focus on a career in patient advocacy rather than IT consulting.

20:30 - Julie starts working for WEGO Health, a network of patient leaders. She helps patients and loved ones use their story and get connected to companies wanting their insights.

23:40 - Why Julie thinks it’s so important for patients to share our stories: how she found an answer to her avascular necrosis due to seeing another patient’s story online.

26:50 - How Julie’s health conditions affected her dating life, and how she met her husband. Her husband said, “You talk like you USED to be great, and the person I see IS really great! (28:13)”

30:00 - How did PSA affect her family planning with her spouse who is in the army. When pregnant she felt very nervous and overwhelmed.  She signed up for a MothertoBaby study.

33:45 - During her first pregnancy PSA went into remission, psoriasis in 1st trimester. Second pregnancy didn’t go into remission. 

35:15 - What helped her when babies were little: asking for help, planning ahead, pacing yourself. 

37:15: How Julie copes with big emotions while parenting: Headspace app and Mindful Mamas app. 

39:36 - Julie’s best advice for newly diagnosed patients - empower yourself and be a partner with your medical team.

40:45 - Cheryl and Julie’s advice to patients who are overwhelmed when “doing their own research” - how to evaluate which resources are high quality information and which are low quality or dangerous. Reflections on how to navigate disease-specific Facebook groups.

44:15: Julie’s concluding thoughts: if you are dealing with an autoimmune disease, you are not alone.

At age 38, Amberly Lago’s life was turned upside down. Hit by an SUV while riding her motorcycle, 34 surgeries to save her leg from amputation, and diagnosed with Complex Regional Pain Syndrome (CRPS) dubbed “the suicide disease,” she knows about resilience and how to practice resilience because she has lived it. 

She is a leading expert in resilience, transformation, fitness, and wellness and has been a certified personal trainer, NSCA-CPT, and health coach for 22 years. 

 She shares her passion for turning tragedies into triumphs at exclusive workshops, public events, corporate summits, and schools. She offers a carefully curated set of practical tools to teach others how to tap into their superpower of resilience and persevere through any of life’s challenges. She offers hope and solutions for anyone feeling stuck or living in chronic pain and has been featured on NBC’s TODAY Show, The Doctors, Hallmark Channel, TEDx, Good Morning Lalaland, and featured in magazines such as Health, Fit Pregnancy, Shape, and Disability Magazine. She is a Texan living in California with her husband and two children and is out to change the world.

 She has a great website where you can learn more about her courses and her book True Grit and Grace.

You can reach her personally at the website: www.Amberlylago.com

In this episode I cover neuropathic pain.

If you want to follow along with written notes on neuropathic pain go to https://zerotofinals.com/medicine/neurology/neuropathicpain/ or the neurology section in the Zero to Finals medicine book.

This episode covers presentation, diagnosis and management of neuropathic pain. I also discuss complex regional pain syndrome.

The audio in the episode was expertly edited by Harry Watchman.