Logo
    Search

    Podcast Summary

    • TikTok and Involuntary Reactions in ChildrenMedical professionals and educators have observed unusual tics among kids, both online and offline, which may be linked to TikTok. Further investigation is needed to understand the extent and cause of these tics.

      TikTok, the popular social media app, is under scrutiny for its potential influence on children's involuntary reactions, such as sudden, repetitive, and uncontrollable movements and sounds, which are being referred to as "TikTok ticks." These ticks have been observed among different groups of kids, both online and offline, raising concerns and sparking rumors. However, it's important to note that the full explanation and extent of this phenomenon are not yet clear. The discussion in the podcast episode suggests that medical professionals and educators have noticed these tics among their patients and students, respectively. The rumors about TikTok's role in this issue have gained traction in recent months, with some journalists amplifying the concerns. However, it's crucial to approach such rumors with caution and report them in a responsible manner. The podcast emphasizes the need for further investigation and a clearer understanding of the issue.

    • TikTok and TikTok-related tics: More complex than it seemsWhile TikTok may influence speech patterns, it's not directly causing tics. Underlying factors like stress, anxiety, and neurological conditions may be contributing to the issue. Further research is needed, and creating a safe online environment can help young people cope with challenges related to social media use.

      While there is a connection between TikTok and TikTok-related tics, the relationship is more complex than it seems. Some young people, particularly Gen Z, are using TikTok audios and phrases as part of their daily speech, leading to concerns about potential health risks. However, after investigating the issue, it was found that the tics are not directly caused by the app or the audios. Instead, they may be linked to other factors such as stress, anxiety, or underlying neurological conditions. It's important for parents and concerned individuals to understand that the hysteria around TikTok tics may be exaggerated, but the issue is still a valid concern that requires further research and attention from medical professionals. Additionally, creating a supportive and safe online environment can help young people cope with any challenges they may face related to social media use.

    • A woman's experience with adopting Tourette Syndrome tics and the increase in cases during the pandemicTourette Syndrome is a complex neurological disorder affecting 1% of boys and 1 in 200 girls, with symptoms including physical and vocal tics that can significantly impact daily life. Misunderstandings and stigma can be reduced through accurate information and acceptance.

      Tourette Syndrome is a neurological disorder that affects both children and adults, with approximately 1% of boys and 1 in 200 girls being diagnosed. The condition, which can present with various involuntary physical and vocal tics, was a subject of discussion when a woman named Adele shared her personal experience. Adele had been exposed to Tourette's through social media and later found herself involuntarily adopting some of the tics she had seen. Her symptoms included clicking sounds, head jerks, and even whistling. Adele's experience was not unique, as doctors reported an increase in cases during the pandemic, with some seeing up to 6 referrals a week. Tourette Syndrome is not just about swearing or saying weird things loudly; it's a complex disorder that can significantly impact an individual's daily life. Adele shared how her tics could last for extended periods and leave her feeling drained. She also mentioned experiencing other symptoms such as hitting herself or throwing objects. Despite the challenges, Adele has come to accept her condition and is now more open about discussing it. Dr. Tamara Pringle, a clinical neurologist, emphasized the importance of understanding the nuances of Tourette Syndrome and the need for accurate information to help reduce stigma and misunderstanding.

    • Sudden increase in tick-like behaviors linked to TikTokFunctional neurological disorders, characterized by tick-like behaviors, have been linked to TikTok. These disorders can lead to physical symptoms and have disproportionately affected adolescent girls and young women, with symptoms often more frequent, complicated, and intense than Tourette Syndrome.

      The sudden increase in tick-like behaviors, which are distinct from Tourette Syndrome, has been linked to social media platforms like TikTok. These functional neurological disorders, which are considered "software problems" rather than "hardware problems," can lead to physical symptoms such as verbal and motor tics. These disorders are rare and tend to appear overnight, with symptoms often being more frequent, complicated, and intense than those seen in Tourette Syndrome. The outbreak of these behaviors has disproportionately affected adolescent girls and young women, and the level of disability has been much higher than that of patients with Tourette Syndrome. Despite initial assumptions that there might be something on YouTube, it was actually TikTok that contained the viral content related to these behaviors. The sudden popularity of these behaviors on TikTok remains a mystery.

    • Authentic TikTok experiences of people with Tourette'sWhile TikTok can provide a platform for authentic representation and challenge stereotypes, it may trigger anxiety in some individuals, particularly adolescent girls and young women with underlying mental health conditions.

      The popularity of Tourette TikTok, a corner of the social media app where people with Tourette's share their experiences, lies in the authenticity and positivity of its creators. They challenge stereotypes by openly sharing their tics and living their lives, attracting massive followings. However, for some, like our concerned dad Ben, the content can be triggering, leading to anxiety about the potential impact on children. Research suggests that adolescent girls and young women, who often have underlying mental health conditions like anxiety or depression, are more susceptible to developing symptoms after watching such content. It's important to remember that while millions have watched these videos without developing symptoms, understanding who is at risk and why is a crucial area of ongoing research.

    • Social Media and Tic Disorders in Young PeopleSocial media can act as a trigger for tic disorders in young people, potentially exacerbating underlying mental health concerns. Studies suggest that mass sociogenic illness, where individuals exhibit similar symptoms due to social influence, may be a significant factor in this phenomenon.

      The pandemic and other stressors can contribute to the development of tic disorders in young people, and social media can act as a trigger for these symptoms. For some individuals, watching others exhibit tics on platforms like TikTok or YouTube can provide an outlet for unprocessed trauma or stress. Neurologists have observed an increase in young people presenting with tick-like symptoms, which may be linked to popular social media influencers who exhibit similar behaviors. This phenomenon, known as mass sociogenic illness, represents a new and significant area of research in understanding the complex relationship between mental health, social media, and tic disorders. These studies suggest that underlying mental health concerns are often present in individuals who exhibit functional tics, and that social media can exacerbate or even cause these symptoms. It's important to note that while social media may be a trigger, it is not the sole cause of tic disorders. Further research is needed to fully understand this complex issue.

    • Mass Sociogenic Illnesses: A Psychological Phenomenon Spread Through Social MediaMSIs, such as meowing or ticcing, are psychological in nature, not caused by somatic diseases. Social media can act as a catalyst for their spread, even if the original patient and affected individuals are not physically close to each other.

      There have been documented cases of Mass Sociogenic Illnesses (MSIs) throughout history, from the Middle Aages to the present day. These illnesses, which can include symptoms like meowing or ticcing, are not caused by somatic diseases but are psychological in nature. Experts are still trying to understand the cause of these MSIs, but it is believed that social media can now act as a catalyst for their spread, even if the original patient and the affected individuals are not physically close to each other. This new phenomenon, which can lead to functional tick-like behaviors, has been observed in recent years and is not the same as Tourette syndrome. It's important to note that while social media may play a role in these MSIs, they are not the sole cause, and underlying emotional or psychological distress may also be a factor. The media's reporting on these cases can sometimes exaggerate the role of social media and overlook the underlying emotional distress. It's crucial to approach these stories with a balanced perspective.

    • Social Media: A Double-Edged Sword for Individuals with Functional Neurological DisordersSocial media, particularly TikTok, can provide a sense of community for those with neurological disorders but can also trigger symptoms. Proper diagnosis and treatment are crucial, and addressing triggers without stigmatization is essential. Social media doesn't cause brain disorders, but it can contribute to their manifestation in vulnerable individuals.

      Social media, specifically TikTok, can act as a double-edged sword when it comes to individuals with functional neurological disorders like Tourette's Syndrome. On one hand, it can provide a sense of community and help people feel less alone. On the other hand, certain content on the platform can trigger tics and exacerbate symptoms. The experts we spoke to emphasized the importance of proper diagnosis and treatment for those affected, and noted that most patients showed significant improvement within a relatively short period of time. However, it's crucial to pay attention to what is triggering these issues and address it without stigmatizing those affected. Social media is not causing random brain software glitches, but it can contribute to the spurring of these disorders in vulnerable individuals. Ultimately, it's essential to strike a balance and encourage a healthy use of social media while also being aware of its potential impacts.

    • Exploring online communities: The blurred lines between digital and real lifeBeing part of online communities can lead to amazing discoveries and connections, but beware of potential negative effects like developing tic-like behaviors. Seek professional help if needed and prioritize mental health.

      While exploring online communities can lead to fascinating discoveries and connections, it's important to be aware of the potential negative effects, such as developing tic-like behaviors. If you find yourself experiencing such behaviors, it's crucial to seek professional support. Endless Thread, a podcast by WBUR in Boston, dives into the blurred lines between digital communities and real life. If you have an untold history, an unsolved mystery, or a wild story from the Internet, consider sharing it with them. Remember, the Internet can be a source of wonder and connection, but it's essential to prioritize your mental health. Tune in to Endless Thread for more intriguing stories from the digital world. To get in touch, email them at wbur.org.

    Recent Episodes from Endless Thread

    This is Not a Pyramid Scheme

    This is Not a Pyramid Scheme

    Every year, thousands of Americans lose money participating in multi-level marketing (MLM). So, last year, when a new business idea that promised to correct MLM's sins bubbled up on Instagram and TikTok, a lot of people hopped off the MLM train, and onto this new one, lured by the promise of a low-lift and lucrative side hustle.

    This new business idea is called "master resell rights." But what exactly is it? Where did it come from? And does it actually solve any of MLM's problems? Endless Thread investigates.

    *****

    Credits: This episode was produced by Grace Tatter. Mix and sound design by Emily Jankowski. It was hosted by Ben Brock Johnson, Amory Sivertson, and Grace Tatter.

    Endless Thread
    en-usJune 27, 2024

    Worm Wars

    Worm Wars

    When Endless Thread producer Nora Saks learned that a "toxic, self-cloning worm that poops out of its mouth" was invading Maine, she started sounding the alarm about the impending eco-doom.

    Until, that is, state experts clued her into the "real threat" : A different creepy crawly wriggling towards The Pine Tree State's gardens and precious forests, and fast. In this rebroadcast from January 2023, Endless Thread tunnels down a wormhole, encountering a long history of xenophobic rhetoric about so-called invasive species, and some hard truths about the field of invasion biology itself.

    Endless Thread
    en-usJune 21, 2024

    Looking for a Man, Finding a Record Deal

    Looking for a Man, Finding a Record Deal

    In April, a TikTok creator mused, "Did I just write the song of the summer?" Girl on Couch's "Looking for a man in finance" song spawned hundreds of remixes, and won her a record deal. While it might seem remarkable that a five-second TikTok sound can command the attention of pop music kingmakers, the industry has been capitalizing on internet memes for decades. Endless Thread takes a crash course in internet meme pop music history.

    Credits: This episode was produced by Grace Tatter . Mix and sound design by Emily Jankowski. The hosts are Amory Sivertson, Ben Brock Johnson, and Grace Tatter.

    Endless Thread
    en-usJune 14, 2024

    Scamming the Scammers

    Scamming the Scammers

    Border Patrol is calling: A drug cartel has your bank information, so you need to transfer all your money to a safe Bitcoin account—right now!

    Millions of people will be familiar with calls like this, in which scammers, often in other countries, use threats or promises to rob you. In 2023, individuals and businesses lost an estimated $485 billion to fraud schemes, according to Nasdaq's Global Financial Crime Report.

    Law enforcement will only do so much to recover losses. That is why some online streamers are taking matters into their own hands. And they have become famous for fighting back.

    Endless Thread's Ben Brock Johnson and Amory Sivertson explore the complicated, criminal world of scambaiters.

    *****

    Credits: This episode was produced by Ben Brock Johnson and Dean Russell. Mix and sound design by Emily Jankowski. It was hosted by Ben Brock Johnson and Amory Sivertson.

    Endless Thread
    en-usJune 07, 2024

    SwordTube, En Garde!

    SwordTube, En Garde!

    Sword influencers abound on YouTube. Those who specialize in the historic European martial arts, or HEMA, have gained legions of fans showcasing the fantastic, bladed techniques of yore.

    But talk of parries and pommels has recently given way to bigotry. Endless Thread's Ben Brock Johnson speaks with co-host Amory Sivertson about one valiant influencer fighting back.

    *****

    Credits: This episode was produced by Ben Brock Johnson and Dean Russell. Mix and sound design by Emily Jankowski. The hosts are Amory Sivertson and Ben Brock Johnson.

    Endless Thread
    en-usMay 31, 2024

    Gen Z wants you to take political action, one TikTok at a time

    Gen Z wants you to take political action, one TikTok at a time

    Gen Z is over it. The youngest generation of adults is inheriting a climate crisis, the ongoing fallout from a global pandemic, a polarized political landscape, and a tenuous economic reality.  And many Gen Z members, a generation more likely to identify as progressive than conservative, are ready for something to give.

    Enter: Gen Z for Change — a youth-led non-profit that brands itself as, "the place where the creator economy and progressive politics intersect on social media." The group leverages a hundreds-deep network of social media creators to spread calls to action over TikTok. They've also pulled on the programming expertise within their team to develop a caché of semi-automatic tools that take the guesswork out of engaging with their political agenda.

    Their latest tool, "Ceasefire Now!!" takes these efforts one step further — resulting in, by Gen Z for Change's count, two million emails calling for a ceasefire in Gaza hitting the inboxes of elected representatives in Washington every day.

    Show notes: 

    Endless Thread
    en-usMay 24, 2024

    Catfish for dinner

    Catfish for dinner

    After Taylor Paré was stood up on a date, she turned to TikTok. In a now-viral video, she claimed to have uncovered a new scheme to scam to singles looking for love on the internet. Endless Thread investigates.

    =====

    Credits: This episode was written and produced by Grace Tatter. Mix and sound design by Paul Vaitkus. The hosts are Ben Brock Johnson and Grace Tatter.

    Endless Thread
    en-usMay 17, 2024

    Hype Cycle

    Hype Cycle

    The Vision Pro is Apple's new $3,500 virtual reality headset.

    Since its debut in February, users have found new ways to use this latest iteration of a decades-old technology: scrolling TikTok at work, driving Tesla's Cybertruck, recording their kid's birth.

    But can VR truly integrate into our daily lives? Or will it forever remain a niche technology for geeks and gamers?

    Endless Thread dives into the history of VR and its potential for the future.

    =====

    Credits: This episode was written and produced by Cici Yongshi Yu. Mix and sound design by Emily Jankowski. The hosts are Ben Brock Johnson and Amory Sivertson.

    Episodes We Love: Doom Jelly

    Episodes We Love: Doom Jelly

    Imagine sitting in a hospital room for 24 consecutive hours in the most agonizing pain you can possibly imagine. You feel a sense of impending doom. You have a feeling this won’t end well. Then, the pain subsides and you walk away. Jamie Seymour has had that experience eleven different times. He’s a leading expert on one of the world’s most frightening creatures and he’s paid the price.

    This episode originally aired on Oct 12, 2018.

    The Jackie Show

    The Jackie Show

    Our interactions with nature are increasingly mediated by technology. We scroll through wildlife feeds on TikTok. We use Instagram to plan hikes. Even in the wilderness, we religiously bring our phones to document the experience. And then there are animal cams.

    Since the 1990s, people have fawned over livestreams of cute pandas and colorful fish. One could argue that animal cams another example of how we’ve jammed a screen between ourselves and the wild. But the story of Jackie the bald eagle presents a different perspective: one in which technology might bring us closer to our fellow creatures.

    Producer Dean Russell speaks with Endless Thread co-host Ben Brock Johnson about the potential upsides of technonaturalism.

    =====

    Credits: This episode was written and produced by Dean Russell. Mix and sound design by Emily Jankowski. The hosts are Ben Brock Johnson and Dean Russell.

    Related Episodes

    MOOD SWINGS IN ISOLATION 7 w/ NATHAN HAGUE

    MOOD SWINGS IN ISOLATION 7 w/ NATHAN HAGUE

    Hello! Episode 7 of MOOD SWINGS in Isolation is here and my guest is body piercer and tattoo artist NATHAN HAGUE. We discussed Nathan's new studio UTOPIA BODY ARTS, the challenges of opening a business during lockdown, UFC and combat sports, Anthony Bourdain as well as discussing some conspiracy theories surrounding coronavirus! Thanks Nathan! 

    Instagram: utopiabodyarts

    Facebook: www.facebook.com/utopiabodyart
    .com/ 

    Episode 29 - Pets

    Episode 29 - Pets

    Episode 29 - Pets

    In this episode, Dan, Þórhallur, and Charlotte Curry talk about the effect animals have on Mental Health and Neurodiversity, animals with Tourette Syndrome, gorillas, and more.

    Have any questions or suggestions for the podcast?

    Check out MVHT Podcast Discussion Group on Facebook

    Support the show - patreon.com/mvhtshow

    This episode is sponsored by:
    Geymsla StudioThe Secret Cellar, and Smari's Volcano Sauce

    Mental Health Awareness Tips

    Mental Health Awareness Tips

    This week's episode is sharing Mental Health Awareness Tips so that you can:

    -Identify mental health issues
    -Understand behaviours and and spot common signs
    -Know how to converse with employees and understand needs
    -Have confidence to handle difficult conversations
     

    When pressure gets too much, outcomes are not positive – for the employee, their family, other team members and in your organisation as a whole. Therefore pro-active management of emotional health and wellbeing needs to be a priority so that it enables higher levels of performance – more easily.

     

    Listen in as I share some of the causes of stress and pressure.

    I advise you to think of a situation when you felt stressed or under pressure.  Then think about the areas impacted on how you were feeling.  What might it have been like for your line reports?  I cover some causes that might be helpful for you.

     

    Some of the signs of stress and pressure and poor mental health are covered too. Listen when I share some ideas of areas that indicate signs that you might see in your people.

     

    Mental Health struggles can produces a range of signs and symptoms and one person’s symptoms may differ greatly from another’s.  In recognising the impact, the focus is on changes in how the person usually is.  Symptoms can be categorised into physical, behavioural, psychological and emotional some of which are talked about on the podcast.

    Remember there’s still a stigma about mental health.

    It vitally important that you actively look out for opportunities to initiate a conversation with a team member, if you suspect that they may be struggling, so that you can start to offer support sooner.

    On the podcast I share key ways that you can start the conversation and handle it well.

    I share other key ways to support your people with 

    open questions

    active listening

    using silence

    providing reassurance

    Signposting without feeling the need to fix things.

     

    Talk to me if you want to know about my training on support individuals or managers on Mental Health or even stress awareness.

    Any questions on this, drop me an email at emma@emmalangton.com

    For further information on 1:1, group coaching or training get in touch.

    Please do make sure you hit ‘subscribe’ so that don’t miss an episode.  

     

    If you haven’t yet  left a review, please do go and find the little button to leave a review and let me know your thoughts, key take-aways and what you value from the podcast.

     

    Join my corporate leadership and wellbeing newsletter HERE

     

     

    Conquering Anxiety: Mantras for Strength and Resilience

    Conquering Anxiety: Mantras for Strength and Resilience
    Today's Affirmations:
    I am a warrior in my world, battling my anxieties, and I am winning.
    I am not my mistakes or my struggles, I am my ability to overcome.
    I let go of the illusion of control and surrender to the flow of life.
    I choose to embrace uncertainty as an opportunity for growth and transformation.
    I am grounded in the present moment, finding stability and strength in each breath I take.
    I am more than the sum of my anxieties, I am a being of resilience and courage.
    My anxiety is not a prison; it is a challenge I am capable of overcoming.
    I have faith in my ability to overcome obstacles and grow stronger from them.
    I release my worries and anxieties, allowing them to pass like clouds in the sky.
    I am more chill than a penguin on a snow day, no matter how many 'what ifs' my brain tries to throw at me.

    Special Episode - The Old Guard - Talking with the Late Steve Bachner

    Special Episode - The Old Guard - Talking with the Late Steve Bachner

    The Tourette community lost a hero Dec. 15, someone I named on the very first episode (Season 1, Episode 0) of Tourette's Podcast. Steve Bachner was my first frame of reference for TS. Seeing him on an episode of 20/20 in the late 1980s was my first time seeing someone else with the disorder, and there he was, Steve, being followed by John Stossel and cameras, in a shopping mall, Steve ticcing to the fullest. I remember being a little kid guffawing at people's reactions to Steve, with a least one citizen observer telling the show he assumed he was probably high on drugs. The observer wouldn't have guessed Steve was living with a disorder that throws involuntary sounds and movements. I knew all about it.

    I met Steve not long after at a national Tourette Association of America (then called the Tourette Syndrome Association) conference and confirmed his heroism to me. Steve was kind, funny, witty, and willing to be talk to me like a human being. I never forgot it.

    We reconnected after I started Tourette's Podcast in 2018 and always talked about doing an interview. Sadly, Steve's health was declining; scheduling would be hit or miss, with very wide latitude granted to all the rest and recuperation time he needed. But we eventually, in May 2020, found the chance to record. It wasn't our dream interview; it would have been but the phone line was noisy and made listening a challenge. But, after some audio cleanup, and now in Steve's memory, it's here and it covers a lot of amazing ground.

    This is old-school Tourette Syndrome, with critical cracks at sensational coverage from Stossel, Geraldo, Springer and others who orbited Steve's disorder. They got to know his Tourette (or maybe a thin dimension of it) but did they ever get to know him as a person? (His friend Robin Williams did; Steve describes him here as a "soulmate.")

    I'm so lucky to have counted him a hero and saddened at his absence now. So this one is dedicated to the loving memory of Steve Bachner.