kidney transplant

In most cases, when someone steps forward as a living donor, nobody actually asks them to donate a kidney.  Usually, the donor hears the story of someone needing a kidney and makes the decision to donate without being asked.  

The Living Kidney Donors Network (LKDN) is a non-profit 501(c)3 organization established in 2007 by Harvey Mysel whose primary mission is to educate people in need of a kidney transplant about living kidney donation and help them communicate their need to family members and friends. LKDN also has a program that educates the public about the need for living kidney donors.

Harvey is a 2-time kidney transplant recipient. After proactively managing an inherited kidney condition, PKD (Polycystic Kidney Disease) for over 20 years he had his first kidney transplant in February 2007. He was fortunate that his wife Amy was a compatible donor. 

Harvey contracted a virus, (BK Virus,) 2 years after his transplant and after years of battling this virus, in August 2012 he had his second kidney transplant. Harvey and his donor, Stephen Liegghio, who was introduced to Harvey by an advocate, were involved in a 3-way kidney paired exchange.

Most kidney donors donate to someone they know and patients need to first have the knowledge about living kidney transplants and learn how to develop their kidney campaign so they could be effective in communicating their need. The FREE online program Having Your Donor Find YOU! does just that. 

In addition to the work he does at the LKDN, Harvey is a tri-athlete, competing in a triathlon 5 months after his first transplant. He is a 3-time Gold Medal winner and Silver medalist in the Transplant Games. Harvey is an accomplished bicycle rider, tennis player, platform tennis player, bowler, hiker and rock climber.

Episode Links

Donor Diaries
Living Kidney Donors Network
Northwestern Kidney Champion Program
National Kidney Donor Organization
Johns Hopkins COVID/kidney Recipient Study

Donor Diaries Website
Donor Diaries on Facebook

To Learn More About Lional’s Situation:

http://newkidneyforjellyroll.com/

Here are all the segments:

00:00 – 00:38 – Previously on Chief Concerns

00:38 – 01:22 – Chief Concerns Opener

01:22 – 02:00 – BetOnline.AG advertisement

02:01 – 25:47 – The crew talks to former Chiefs Defensive Tackle Lional Dalton, who is waiting for a life-saving kidney transplant. Lional goes into detail about what he has been dealing with, also discusses the cause of this disease, as well as his relationship formed with another former NFL player Albert Haynesworth who recently had a kidney transplant.

25:47 – 57:26 – For our #ChiefsKingdom Concerns segment we invite Fatima (Jason’s sister-in-law) from Kansas City on to talk about the decline of the Full Back in the NFL, social media’s impact on modern day athletes, and if NFL stadiums would be better off having domes.

57:26 - 59:36 – Goodbye!

See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Today I have Gabrielle Davis meeting me on the mat.  Gabrielle and I  align on advocating and amplifying Black women living with Lupus and talk tools to cope with the physical, mental and emotional impact of auto-immune illness.  Slide on into the Lupus Sistas Ohmies Studio. 

https://www.instagram.com/lupussistas/

Kidney Donors, please email: GabrielleGDavis@Gmail.com 

• Podcast Produced by Manny Faces Media www.mannyfacesmedia.com
• Original Logo Design by Omelly https://www.instagram.com/yella.views/
• Original Music Engineered and Produced: BassFourFive Productions Bassfourfive@gmail.com
• Transcripts: https://www.gratitudegriot.com/podcast

Who shall live?

Meet senior transplant coordinator Doug Penrod.  Each of our podcasts feature either a living donor, or a transplant expert.  Doug is both an expert and a living donor which makes him the first Donor Diaries Double Dipper!  Join Doug and Laurie as they discuss the controversial aspects of dialysis in America and what is being done to ensure that dialysis patients understand their option to get a kidney transplant.  Find out what a “God Committee” is and learn how they determined who would live or die in the early years of dialysis machines.  Find out what compelled Doug to become a living kidney donor himself after over 20 years of working with organ donors and recipients.

Episode Links
Donor Diaries
Organ Donor Registry (deceased donation)
National Kidney Donor Organization (NKDO) (living donation)
Who Shall Live? (God Committees)
Dialysis:  Last Week Tonight with John Oliver

Donor Diaries Website
Donor Diaries on Facebook

How do you ask somebody for a kidney?

Meet Johnna, a Chicago area woman with Polycystic Kidney Disease (PKD).  Johnna is in stage 5 kidney failure and needs a kidney transplant.  She can wait 5-7 years for a deceased donor kidney to become available, or she can find a friend or family member to become a living kidney donor on her behalf, and get a new kidney right now.  Find out what happens when Johnna’s longtime friend Mary decides to step forward to be tested as a match!

Episode Links
Johnna Needs a Kidney
PKD Foundation
Donor Diaries
Organ Donor Registry (deceased donation)
National Kidney Donor Organization (NKDO) (living donation)

Donor Diaries Website
Donor Diaries on Facebook

Donor Diaries is a podcast about the beauty and messiness of living organ donation.  Get ready for some amazing stories about what happens when people decide to share their organs with other people, when people chose to share life.  The sharing of kidneys and other organs is an incredibly fascinating topic that teaches a lot about kindness, love, and life!

There are over 100,000 people on the kidney transplant waitlist today, and sadly about 13 people die each day waiting for a kidney that they never receive.  One in three Americans are at risk for developing chronic kidney disease and one in nine already have kidney disease.  Most don’t even know it.   

Donor Diaries shares unfiltered stories of kidney donation through the voices of living donors and straight talk from transplant experts who are committed to bringing the conversation of living organ donation to the forefront of society, so patients no longer have to die or suffer while waiting for a transplant.

Episode Links
Donor Diaries
Organ Donor Registry (deceased donation)
National Kidney Donor Organization (NKDO) (living donation)

Donor Diaries Website
Donor Diaries on Facebook

It is estimated that 8.5% of adults in today's society will be affected by Chronic Kidney Disease. In today's episode, one of our Education Officers, Radhika Gulati, discusses some of the important causes of Chronic Kidney Disease, including Diabetes, followed by diagnosis and management from the perspective of a Medical Student. 

Want to help us grow the show? Leave us a Rating and Review!

We talk with soccer coach and kidney disease survivor Jeremy Bedig about his experience with FSGS.

Jeremy’s Kidney Disease Diagnosis and First Transplant
- His passion for soccer as a kid and the path he was on prior to his diagnosis with FSGS at the age of 14
- The weird swelling and symptoms that caused him to go to the doctor and get diagnosed with fast-acting variant FSGS
- The first time he really felt sick, not because of kidney disease but because of the treatment
- His experience trying to keep up with school and soccer while undergoing chemotherapy and taking multiple drugs to battle his condition
- The mental challenge of dealing with a life-threatening diagnosis, and how you struggle to process what it means as you go through the day-to-day experience, especially as a high school student
- The amazing support he received from his parents and grandparents, and how important that support system is for patients
- His experience with dialysis and having a double nephrectomy (where both kidneys are removed) as a junior in high school
- The unique opportunity he got that most of us will never experience

Jeremy’s Second Transplant
- The legal battles he had to fight with his school to allow him to study based on his health situation, and how difficult some teachers made his experience
- How unprepared he was to be a college student, and why he dropped out
- What led him to try being a soccer coach, and how quickly he progressed in his first couple years
- The staph infection that destroyed his new kidney and sent him back onto dialysis for 3 1/2 years, and the emotional toll that took to be back where he was years earlier
- The experience of finding a donor but having it fall through because of a failed test
- The role coaching played in giving him something outside his condition to focus on
- His eventual transplant from a family relative and the special bond that created between them

What Jeremy is Doing Today
- One of the scary realities of being a kidney disease patient: going into the surgery not knowing if you'll have a kidney at the end
- His new coaching career with Diablo Valley College and Contra Costa FC, and the process of receiving his official US Soccer licensing
- His role as a Peer Team Lead with the Nephrotic Syndrome Foundation, and the podcast they are creating
- His desire to spread the word about mental health, and his continued struggles to deal with the PTSD associated with his kidney experience
- Why even though he received amazing care and had an amazing support network, he still often felt alone, which is an opportunity for improvement in the current health care system
- His founding the for the Amplify Athletic Alliance to support the LGBTQ community to share their experiences
- And of course, what Go Be More means to Jeremy

If you liked this episode, check out Jon’s Kidney Disease Story and our interview with Kidney Fighter Marc Coronel.

And, you can now get these show notes sent directly to your email. Sign up here!

Recorded August 26, 2020.

References:

Amplify Athletic Alliance - coming soon

Nephrotic Syndrome Foundation - website

Contra Costa FC - website

Diablo Valley College Soccer - dvc.edu

Guest:

Jeremy Bedig - @coachjeremyb, @ysarb_mot

Hosts:

Bryan Green - @sendaibry, Go Be More Blog

Jon Rankin - @chasejonrankin, Go Be More

Links:

Go Be More website

Go Be More YouTube Channel

Feedback

Subscribe on your favorite player:

Simplecast

We talk with Marc about boxing, his kidney disease, and the what you learn from nearly losing your life:

Early Life and Intro to Boxing
- Marc was an academically strong student who socially couldn't get along with other kids, resulting in fighting and altercations
- How Marc was the first test case for the "Scared Straight" program
- The way boxing changed the way he navigated interactions with others and learned to balance himself and his emotions
- The many life lessons he gained from boxing, including his mentality to stick and move, being prepared each and every day, and staying focused on the task at hand

Marc's Approach to Life
- His father's experience in the ICU with covid-19 and what he appreciates from that experience
- Why you can't bring your problems to every situation you're in
- What it means to get the championship belt in life
- Why so many of us keep digging the holes we are digging and fail to stop a problem in its tracks
- Why what success can't show you, rock bottom can
- Why your grit needs to be stronger than your passion or your dreams
- His focus on daily prayer and giving back thanks and why we need to keep doing what we did to achieve success once we get what we wished for
- His belief that cause and effect works one way: what you cause in your body affects the world around you, not the other way around
- What his brand LIFESTYLE athletics means to him and what it represents
- The poor thought processes and habits we accept in our lives that lead us to have poor health outcomes, including getting diagnosed for kidney disease

Marc's Diagnosis and Kidney Disease Experience
- A random physical at 26 years old identified his FSGS despite the fact that he was in prime shape
- Why it is difficult to reconcile the diagnosis when you don't look, feel, or act sick
- All the questions that challenged him when he was first diagnosed, and how he dug himself into a hole for six months before he refocused on boxing and regained his footing
- The kidney disease forced him to pursue coaching instead of boxing, which led to new avenues for success and helped him to develop into a more well-rounded person
- The experience of fighting kidney disease as a constant battle with himself, not just the medications and bills and other requirements
- How Marc used social media to make people aware of his situation and to find 32 potential donors, which helped him get a transplant 9 years faster than the average
- The lengths his donor went through to donate her kidney, and how strong and committed she was to doing it and seeing it through
- What people don't know about the process of being a living donor
- How hard it is to deal with kidney disease, dialysis, and transplants, and why it's essential to care about yourself to get through it
- Jon and Marc's new motto: "I wasn't given this disease to die from it. I was given this disease to show other people how to beat it."
- Why he now feels kidney disease was the best thing that happened to him in his life, because it showed him what he is made of and the impact he can make on his community
- And, finally, what the words Go Be More mean to Marc!

If you liked this episode, check out Jon's Kidney Disease Story and our interview with Ron Sarmiento.

And, you can now get these show notes sent directly to your email. Sign up here!

Recorded August 17, 2020.

References:

A New Kind of Fight - Huffington Post

Former Boxer Knocks Out Kidney Disease - FoxLA

The Living Donation Process - OrganDonor.gov

Guest:

Marc Coronel - @kidney_fighter, MarcCoronel.com

Hosts:

Bryan Green - @sendaibry, Go Be More Blog

Jon Rankin - @chasejonrankin, Go Be More

Links:

Go Be More website

Go Be More YouTube Channel

Feedback

Subscribe on your favorite player:

Simplecast

"Hey God, do you even hear me?"

Have you ever asked that question or wondered why God can seem silent at times?  You are not alone.  In fact in this episode, Darren Hughes, Stage/Production Manager for Casting Crowns and church planter, has a conversation with me about times when he wondered what his next step should be.

Just because it SEEMS like God is silent doesn't necessarily mean He is being silent. God has a purpose for your life just like He has a purpose for Darren.  We don't always know why things happen the way they do, but if we trust that God is in control and live our lives that way, He WILL guide us according to His purpose.

Darren went to Mark Hall, lead singer for Casting Crowns, and his wife, Melanie Hall, tour manager for the band, for their insight into where God might be leading Darren and his family.  Their advice was basically to keep moving forward until God said otherwise.

Ultimately, God led Darren right where He wanted him and that place essentially saved Darren's life.

Hear as Darren talks about his work with Casting Crowns, sharing the gospel in a remote village in Alaska, and planting a church in the Atlanta, GA area.

Bridgepoint Church at Toco Hills
Casting Crowns

MORE ABOUT THE PODCAST:

Behind The Mike website:
https://BehindTheMikePodcast.com

Email:
Mike@BehindTheMike.net

SUPPORT THE SHOW

SUPPORT OUR SPONSORS:

Covenant Eyes
Get 30-days FREE using promo code: BEHINDTHEMIKE
https://covenanteyes.com

Watch these podcasts on YouTube!

Follow Us!
YouTube: @behindthemikepodcast
Instagram: @behindthemikepodcast
TikTok: @behind_the_mike_podcast
Facebook: @behindthemikepodcast

On this episode we have David Pollack, a chef in the Philadelphia, Pennsylvania region. After experiencing kidney failure in 2003, and undergoing dialysis, David finally received a kidney transplant. Like all people with kidney issues, he had to change the way he cooked and ate. Taking what he learned about his new diet, and combining it with his knowledge of cooking, he’s created Cooking Without Kidneys. David is in the early stages of creating this non-profit organization. Currently, he’s sharing recipes on his website https://cookingwithoutkidneys.wordpress.com/. You can also find him on Twitter, Facebook and Instagram. 

Listen to Dave tell his story about trying to continue working as a line cook and sous chef as he was undergoing dialysis. He also shares some of his favorite recipe ideas.

Some of the people and businesses mentioned are: Guillermo Veloso, Jose Garces, Caffe Gelato, Cuba Libre, Marc Vetri, Jeff Michaud, Chef’s Table, The Mind of a Chef, Epicurious.com

=========================== 

CONNECT WITH US

 =========================== 

SUPPORT US ON PATREON https://www.patreon.com/chefswithoutrestaurants

Get the Chefs Without Restaurants Newsletter https://mailchi.mp/fe0d8a0cc7a6/chefs-without-restaurants-email-list

Visit Our Amazon Store (we get paid when you buy stuff) https://www.amazon.com/shop/perfectlittlebites?isVisitor=true

Check out our websites (they have different stuff) https://chefswithoutrestaurants.org/ & https://chefswithoutrestaurants.com/

Like our Facebook page https://www.facebook.com/chefswithoutrestaurants

Join the private Facebook group https://www.facebook.com/groups/chefswithoutrestaurants

Join the conversation on Twitter https://twitter.com/ChefsWoRestos

Check our Insta pics https://www.instagram.com/chefswithoutrestaurants/

Founder Chris Spear’s personal chef business Perfect Little Bites https://perfectlittlebites.com/

Watch on YouTube https://www.youtube.com/channel/UCHXxixMxjf05XxUIbz6ER-Q

If you want to support the show, our Venmo name is ChefWoRestos and can be found at https://venmo.com/ChefWoRestos. If you enjoy the show, have every received a job through one of our referrals, have been a guest, been given complimentary Chefs Without Restaurants swag, or simply want to help, it would be much appreciated. Feel free to let

Dr. Christie Thomas, a nephrologist at the University of Iowa and the Iowa City VA Healthcare System, joins us on this episode to discuss his favorite organ, the kidney, and why Veterans come to need transplants. He discusses with us the functions of the kidney in the body, some of its surprising roles in human health, as well as how and why kidneys fail. Additionally, he shares with us some details about dialysis and the Hepatitis C positive kidney transplant program we highlighted in our previous episode.

In adults, the most common cause of kidney disease in the United States is diabetes and the second most common cause is presumed to be high blood pressure or hypertension.  The most common hereditary cause of kidney disease in the United States is polycystic kidney disease which affects between 1 and 500 to 1 and 1,000 people. Overall, about 37 million adults in the United States are estimated to have chronic kidney disease with most being undiagnosed. Blood tests are the most common method for detecting kidney disease by looking at kidney function.  Other health consequences of chronic kidney disease include increased occurrence of infections, low red blood cell count, loss of appetite, and depression.  Dr. Thomas highlights all this in detail and more.

Dr. Thomas was born and raised in India, having come to the United States at the age of 2 and returning to India at the age of 4. He did his undergraduate studies in India and postgraduate studies in England. He returned to the United States in his early thirties and was drawn to Iowa City, which had the largest public hospital in terms of the number of beds in the country at the time, as well as Iowa City VA Healthcare System, which was known for the strength of its research.  Since then, Dr. Thomas has come to love Iowa and working with Veterans who he describes as some of the best patients he’s ever had. 

Millions of lives are saved each year with the vaccines developed by these two Nobel Prize recipients.  Their discoveries were some of the  greatest medical achievements of the 20th century.    Gertrude Elion was a biochemist, who unraveled the mysteries and mechanisms of leukemia, herpes, gout, malaria & meningitis in order to create effective medications. She transformed kidney transplantation, by creating the first immune suppressant to prevent rejection by organ recipients.   And her work led to the first successful HIV/AIDS drug.  Baruch Blumberg was a physician who traveled the world studying the interplay of genetics and environment on disease response, and along way discovered the virus that was causing Hepatitis B - a leading cause of fatal kidney disease and cancer.  He then created a vaccine for it, and is believed to have prevented more cancer deaths than any other human being. 

(c ) American Academy of Achievement 2020

We made it to season 2! Thanks for sticking with me and welcome to anyone that is checking out the show for the first time.

This episode is a bit different in that, I was the one being interviewed. You may remember Jay Perry who was a guest on episodes 6 & 7 in season one who is the host in this episode. Back when Jay was on the show he had the idea of interviewing me for the season two premiere and I thought that would be cool. I briefly shared my story in the first episode of the show and have shared little bits in other episodes but in this one, we dive a little deeper into the details.

We talk about how I started my career by going to film school and then dropping out when I found out I was sick. How I kept working in the industry while I was on dialysis which is ultimately what put me on the path that I am on today.

We go into detail about my kidney transplant and how that affected my life and in many ways, continues to affect and influence the decisions that I make.

This was a lot of fun and I'm glad that Jay was on board to host the show for an episode. Maybe I'll bring him back!

Here are a few links to thinks that I mentioned in the show:

My bands promo video that helped me get accepted to film school way back in the day.
https://www.youtube.com/watch?v=CxEHTsu87s0&t=2s

The first music video and first real director job that I did while on dialysis.
https://www.youtube.com/watch?v=o_6JQDsbtlM

The documentary that CBC did on my kidney donor, my dad and I.
https://vimeo.com/72361700

If you are interested in becoming an organ donor (you really should):
https://beadonor.ca/
 

Listen to season one:

Website
iTunes
Spotify
YouTube

We all make lists. Grocery lists, lists of goals, and just regular to do lists.  But for some people a list can actually save a life.  On today's episode of the Live. Learn. & Play podcast we talk with Ruby Peeler's Mom, Betsy, about her daughter's story and about a list she never expected to be on. 

Amanda is one of those people that you can’t help but love.  She is a living reminder to never take life for granted; especially our health and how we should rejoice each day.

Never one to complain she has a bubbly positive personality so it’s hard to imagine what she’s been through.  Amanda has had not one but three  kidney transplants; the first one as a delicate 7 year old has meant a life of uncertainty, challenges and guts.   

You will love listening to Amanda tell me how to weigh up decisions and not look back to get out there, stop feeling sorry for ourselves  and live.  She also touches on how she had made the decision not to have love in her life but life had a lot of love to give.