#fasdeducation

Imagine having your life shaped by trauma before drawing your first breath.  That's the reality for people living with Fetal Alcohol Spectrum Disorder (FASD), a misunderstood and stigmatized condition. I had the honor of hosting RJ Formanek, a tireless advocate for people with FASD, who also happens to be a person living with the disorder. Together, we confront the misconceptions about FASD and share our personal experiences to shed light on its profound impact. With September being  FASD Awareness month, this is a perfect time to have this discussion.

Wrapping up the conversation, we underscore the crucial role of spreading awareness and education about FASD. Governments, regulatory agencies, and families have a significant role to play in shifting the narrative from blame to understanding. We recognize the pioneering efforts of Brian Philcox, Bonnie Buxton, Teresa Kellerman, and others in raising FASD awareness, and pledge to continue this crucial dialogue. With RJ as Ann's co-pilot, for this episode, they are committed to advocating for FASD through their conversations and the platform, Flying with Broken Wings. Join us in this ongoing, vital conversation to foster a better understanding of FASD and its effects.

Vital links: Flying with Broken Wings on Facebook. Started by R.J. Formanek

Red Shoes Rock is a global awareness. campaign giving voice and. support to those affected by. prenatal alcohol exposure. Building FASD Awareness Through Grassroots Efforts.
https://redshoesrock.com/

You can find us at  Tina and Ann's Podcast website: https://www.realtalktinaann.com/
Facebook:Real Talk with Tina and Ann | Facebook
or at:  realtalkpodcastwithtinaann@gmail.com
Apple Podcasts: Real Talk with Tina and Ann on Apple Podcasts
Spotify: Real Talk with Tina and Ann | Podcast on Spotify
Amazon Music: Real Talk with Tina and Ann Podcast | Listen on Amazon Music
iHeart Radio: Just google Real Talk with Tina and Ann on iHeart.
Castro: Real Talk with Tina and Ann (castro.fm)

ann's website: Mental Health and Disabilities (annkagarise.com)
Real Talk with Tina and Ann website: Annkagarise - Mental Health, Real Talk With Tina and Ann, Disabilities, Trauma, Healing,

Welcome to Season 4, episode 22 of the FASD Family Life Podcast. This is the only show about FASD hosted by an FASD Specialist and parent with 30 years lived experience.  I am Robbie Seale, your host and mom to five incredible people; including three teens diagnosed with Fetal Alcohol Spectrum Disorder.  It is my passion to help families thrive.  To learn more about me and my work check out my website,  https://fasdfamilylife.ca/

Fetal Alcohol Spectrum Disorder (FASD) refers to a constellation of disorders resulting from prenatal exposure to alcohol; the manifestations include birth defects, developmental disabilities, and neurological and behavioral problems.

Fetal Alcohol Spectrum Disorder is a common disability impacting 1 in 20 people in the general population in the US, which is nearly 3 times more common than Autism.

This week I am in the Netherlands where it is estimated that 2000 babies annually are born with FASD.

I am speaking with Nienke Peters and Luke Schut to learn about an innovative photo book project that they have been involved in to raise awareness of Fetal Alcohol Spectrum Disorder in Holland.

Luke Schut is the Project coordinator of the FAS-project. Her background is in pedagogics. She came in contact with the FAS-project through her Masters program.  Luke says "I am the most inspired by all these parents and caregivers, and the warm and caring FASD community. Let’s keep sharing stories with each other to make FASD more visible."

Nienke Peters is mother of 4 bio kids and grandmother of 4. Fostered 12 children with FASD and still fostering a boy with FASD and NAS. Met Allard de Witte in 2014 when he photographed one of our foster sons. Her family has been part of the Buddy Project of Witte Bos for over 4 years now.

‘Het Witte Bos’ is a non-profit organization, which initiates transmedia project on the cutting edge of journalism, art and society. The FAS-project started as a journalistic initiative, but eventually developed into a big multimedia awareness campaign, showing the potentially dangerous consequences of alcohol consumption during pregnancy. By storytelling, the project raises attention to a relatively unknown problem in a personal way. The FAS-project started in 2013 and launched with the book FAS-kinderen (Children with FAS).

After this the fas-project continued under the name FAS2025. In the past years the project developed and gained a wider reach & more impact. FAS2025 tells the story of Isiah, Lorenzo, Marcella, Mila and Jasmijn, following their journey towards adulthood for ten years. Their stories are told by a collection of stories, portraits and mini-documentaries. To give children with FAS(D) a face, make FAS(D) less abstract and to tell what FAS(D) means to them and how it impacts their lives. The project also consists of expositions, books, a podcast, a college tour to inform future professionals about FAS, readings at professional organizations who (may) come in contact with FAS(D), and a buddy project in which children/youngsters with FAS(D) are matched to a buddy to have a nice time together.

Link to purchase the book Children with FAS/Kinder mit FAS
https://fasproject.nl/en/product/children-with-fasd/
The English website: https://fasproject.nl/en

Have a comment or question about the show, email me at fasdfamilylife@gmail.com

Welcome to FASD Family Life, the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD.  I know the struggle is real, but so is success.  Whether this is your first episode, or your 75th, I invite you to settle in and  join me for a cup of coffee.
 
Research & Resource Editions of the FASD Family Life podcast are designed to give you information on a variety of FASD networks, resources, training events, and conferences, as well as fascinating FASD studies for your participation and interest.

SUBSCRIBE NOW to make sure you never miss an episode!

In this Research & Resources Edition of FASD Family Life Research & Resources edition I am delighted to speak with Audrey McFarlane, Executive Director of The Canadian FASD Research Network, about TOGETHER FOR FASD - an Atlantic Canada Conference.  

Audrey McFarlane has been the Executive Director for CanFASD since 2015. Previously, Audrey served as the Executive Director of the Lakeland Centre for FASD (LCFASD) for two decades. Before becoming ED, Audrey had been on the board of CanFASD since 2005. Her interest in FASD began in the 1990s while she was working as a behavioral specialist for people with developmental disabilities. Upon anomalies in responses to her behavioral plans, Audrey began to learn more about FASD. She began to build a team of link-minded community leaders to develop responses to the folks with FASD she was helping, and her passion for the field was born. 

TOGETHER FOR FASD - AN ATLANTIC CANADA CONFERENCE
This is a one-day event that brings together experts, community members, and service providers to share knowledge, empower collaboration, and inspire action to address the complexities of Fetal Alcohol Spectrum Disorder (FASD) in the Atlantic provinces.

The conference will host 2 keynote talks by Dr. Jaqueline Pei and 4 sessions that will cover local services, lived experiences, FASD projects across the globe, and the Claudette Bradshaw FASD Innovation Award recipient presentation.

The cost for this conference is $75.00 plus taxes and fees and lunch is included in the price of admission. This presentations will be held in English with translation services available for French-language speakers.

This event is hosted in partnership with CanFASD, the New Brunswick Child and Youth Advocate, The New Brunswick FASD Centre of Excellence, the Fredericton FASD Support Group and the Moncton FASD Support Group.

REGISTER:
https://canfasd.ca/conferences/together-for-fasd-atlantic-2022/


NATIONAL STRATEGY:
Fetal alcohol spectrum disorder (FASD) is the leading cause of neurodevelopmental disability in Canada, affecting 4% of the population. The prevalence of FASD is greater than Autism, Down Syndrome, and Cerebral Palsy combined. Not solely a healthcare issue, FASD intersects with homelessness, substance use, education, criminal justice, mental health, child welfare, social services, family health, and more. The statistics are alarming.
LEARN MORE:
https://canfasd.ca/?s=national+strategy

Welcome to FASD Family Life, the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD.  I know the struggle is real, but so is success.

I am grateful to be spending this time with you!  Please join me with a hot cup of coffee for part two of our conversation with CJ Lutke and Kat Griffin, two extraordinary women with FASD, members of the Adult Leadership Committee of the FASD Change Makers. 

Our conversation is punctuated by laughter and infused with hope. Kat and CJ share about adulting and benefits of interdepence. We also take a deeper dive into some of the topics covered in the FASD Health Survey that was done by the ALC of the FASD Changemakers in conjunction with UBC. If we want to learn more about living with Fetal Alcohol Spectrum Disorder who better to learn from than those who live with its limitations and its gifts. 

"When we know better we can do better."

Welcome to FASD Family Life the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD.  I know the struggle is real, but so is success. I hope that sharing my experiences can help you feel that you are not alone and that there is hope for you and your child with FASD.

I welcome you to join me with a hot cup of coffee and your notebook as we settle in and listen to Jerrod Brown, Ph.D., MA, MS, MS, MS  talk about Alexithymia. Alexithymia is a broad term to describe problems with feeling emotions.  While the condition is not well-known, it’s estimated that 1 in 10 people in the general popultion has it and 67%  among individuals with neurodiversity. Jerrod explains alexithymia and provides strategies for skill building for individuals with this condition.

Jerrod Brown is a regular guest on the FASD Family Life podcast. Jerrod is an assistant Professor for Concordia Univerity, St. Paul, Minnesota and has extensive expereience teaching courses at the undergraduate and graduate level. Jerrod has also been employed with Pathways Counselling Centre in St. Paul for the past 17 years. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST).  To learn more about Jerrod's work, or to contact him click the link below.
HTTPS://www.aiafs.com/Jerrod-Brown-asp

Do you have a question you would like me to address on the show or a topic suggestion? Email your comments, questions and topic suggestions to FASDfamilylife@gmail.com.

What to show me some love? Click the link below to Buy Me A Coffee for $5.00
Support the show (https://ko-fi.com/fasdfamilylifepodcast)

EPISODE RESOURCES:
Jerrod Brown, Ph.D.
HTTPS://www.aiafs.com/Jerrod-Brown-asp

Hear more from Jerrod Brown on these other podcasts:
FASD Hope with Natalie Vecchione
https://www.fasdhope.com

Spotlight on FASD with Clare Devaney-Glynn & Jessica Rutherford
https://podcasts.apple.com/ca/podcast/spotlight-on-fasd/id1536192816

Join the FASD Family Life Community today!
Message me on facebook: https://www.facebook.com/robbie.seale.1/

Welcome to FASD Family Life, the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD.  I know the struggle is real, but so is success.

I am grateful to be spending this time with you!  Please join me with a hot cup of coffee, or two, as we learn about adulting with FASD from two extraordinary women, CJ Lutke and Kat Griffin of the Adult Leadership Committee of the FASD Change Makers.

FASD Changemakers

The Adult Leadership Committee (ALC) of FASD Changemakers is a renowned group of citizen researchers and experts who each have diagnosed FASD. It is made up of CJ Lutke, Myles Himmelreich, Katrina Griffin, Justin Mitchell, Anique Lutke and Emily Hargrove, a group who have experienced all the events commonly associated with FASD but have learned how to overcome obstacles, maximize potential and re-define success. They use their combined lived experience to work together as consultants, advisors, trainers, presenters, mentors, group moderators, bloggers, and as various university research project team members.   As well, they develop and lead their own survey research, which has received wide attention from researchers, institutions, agencies, organizations, and government and is currently being used to help focus research directions and questions.

 This is the group that also organized and ran the annual 3 day international conference for teens and adults with FASD in British Columbia for 15 years as part of the larger 4 day international FASD research conferences until the university closed the department handling all this last fall after 2 years of covid restrictions. 

CJ Lutke, who is 38, was diagnosed with full FAS as an infant and adopted by her foster family at age five, along with an older brother and sister who also have FASD.  She is a well-known speaker on FASD, having presented at and participated in many conferences, seminars, training sessions and other events over 20 years.  CJ actively provides advice and consultation and participates both as an advisor to and working member on research projects.  She has just been appointed to a high-level Access to Justice Committee chaired by the Chief Justice of the Supreme Court of British Columbia.  She is the author of an on-line blog that is hosted by NOFASD Australia and followed globally.  As well, CJ has been a member of the Adult Leadership Committee (ALC) of FASD Changemakers for 15 years.  She was the co-lead on their first ground-breaking Lay of the Land Survey on the health and physical issues of over 500 adults with FASD that has received wide international attention and was published in 2020.  CJ is currently the lead author on their second Lay of the Land Survey on the Quality of Life of 468 Adults with FASD, preliminary results which were released in March of 2021 and has been widely presented including to the ICCFASD Executive Committee of NIAAA and will be presented again at their global open meeting in April of 2022.   CJ believes that those with FASD must challenge perceptions about possibilities and outcomes and change the future.  Her goal is to help others with FASD find their voice and to understand that we are greater when we work together.

Katrina (Kat) Griffin, who is 32, was diagnosed with full FAS in infancy and raised in foster care.  She is a well-known speaker on FASD, having presented at many conferences, seminars and events over the past 10 years.  She was also part of a team of teens and adults with FASD providing training on FASD for second year medical students at the University of British Columbia for over 10 years and will be joining that team again this summer.  She also acts as an advisor to and working member on research projects and

Welcome to FASD Family Life, the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD.  I know the struggle is real, but so is success.

Whether this is your first episode, or your 65th, I am grateful to be spending this time with you.  Please join me with a hot cup of coffee as we listen to the remarkable story of Paul Thompson and Glenda Jansen and the power of relationship to transform lives.  

Paul Thompson and Glenda Jansen candidly share their lived experience; that of an individual who navigated homelessness from the age of 16 for thirty years with an undiagnosed disability (FASD), and that of the person who came into his life with unexpected advocacy and support. Resiliency, the power of relationship, and connection are woven throughout Paul and Glenda’s back-and-forth style presentation as they combine facts with story, humour, and love through tumultuous times. Listeners will leave with a sense of hope, and the understanding that it is never too late for a diagnosis or a new beginning! This promises to be an evening of laughter and learning for all.

 Paul Thompson lived for more than 40 years with the undiagnosed effects of Fetal Alcohol Spectrum Disorder, of which 30 were spent on the streets or incarcerated. He also experienced severe childhood trauma which affected many areas of his life. In 2009 Paul’s life turned around with unexpected advocacy and support; he willingly walked through the open doors and hasn’t looked back. Paul exemplifies why it’s never too late for a life to change.

Glenda Jansen worked with individuals who have special needs before she retired; as a care aide for three years, and then as a special education assistant at an independent school for fifteen. Glenda is passionate about FASD and believes relationship is key to success. In 2009 Glenda and her husband, Pete, met Paul at a Sunday dinner outreach to the homeless, and a couple of months later he moved into their home and they were instrumental to Paul’s life turning around. People often ask Glenda “Why Paul?” As they share their life experiences you’ll understand why!

Glenda Jansen's message is clear about what works: 

• Relationship
• Grace
• Advocacy
• Diagnosis
• Self Care
• Hope

"Hope is passion for what it possible." Søren Kierkegaard

The FASD Family Life podcast is the podcast for parents and caregivers who want to learn more about Fetal Alcohol Spectrum Disorder.  I am your host, Robbie Seale, FASD educator and mom of four individuals with FASD. I know the struggle is real and so is succes.

 SUBSCRIBE NOW to make sure you never miss an episode!

In this Research & Resources Edition of FASD Family Life Research & Resources edition I am delighted to speak with  Aby, Janine and Leah of the DiG FASD study.  DiG FASD is a fetal alcohol research study at the Indiana University School of Medicine. DiG FASD stands for "Disscenting the Genetic Contributions to Fetal Alcohol Spectrum Disorder." Everyone with FASD has a different expereince and we thing genetics might play a role in these differences. By understanding how genes make FASD different, we can help improve treatments and internvetions.

I invite you to settle in with a nice hot cup of coffee as we learn about this important research project and how we can get involved.

LEARN MORE or REGISTER FOR THE STUDY:  https://digfasd.org/

EXCITING oppurtunity for listeners of the FASD Family Life podcast.....
Join the FASD Family Life Virtual Community for access to LIVE sessions, dive deeper into episodes of the FASD Family Life Podcast and exclusive member only content.
Direct Message me on facebook to join   https://www.facebook.com/robbie.seale.1/


EPISODE RESOURCES:

Study Website: https://digfasd.org/
Facebook: https://www.facebook.com/FASDResearch/
 Twitter: https://twitter.com/FasdResearch
Instagram: https://www.instagram.com/fasdresearch/

Robbie Seale:
Facebook: https://www.facebook.com/robbie.seale.1/
LinkedIn: https://www.linkedin.com/in/robbie-seale-92954b169/
Email: fasdfamilylife@gmail.com

Welcome to FASD Family Life, the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD.  I know the struggle is real, but so is success.  Whether this is your first episode, or your 60th, I invite you to settle in and  join me for a cup of coffee.
 
Research & Resource Editions of the FASD Family Life podcast are designed to give you information on a variety of FASD networks, resources, training events, and conferences, as well as fascinating FASD studies for your participation and interest.

SUBSCRIBE NOW to make sure you never miss an episode!

In this Research & Resources Edition of FASD Family Life Research & Resources edition I am delighted to speak with  Nancy Lockwood and Pascal Gagne about the importance of creating communities of support for parents/ caregivers and individuals with FASD.

Nancy Lockwood is an FASD Consultant/Educator with 25+ years of work/lived experience supporting individuals of all ages with FASD. Current work includes building capacity at provincial/national agencies to increase their ability to support people with FASD and their families. Previously, Nancy managed ABLE2’s Fetal Alcohol Resource Program, a program she helped to design. Nancy has provided customized FASD education workshops to thousands of professionals and front-line workers in multiple sectors.

Pascal Gagné is a Ph.D. Candidate at the Institute of Feminist and Gender Studies at the University of Ottawa. He has recently joined Health Nexus as the FASD Team Lead. Prior to this position, Pascal has been the FASD Research Lead at ABLE2. He also teaches classes at various universities and colleges. One of Pascal's responsibilities at Health nexus is to manage their Family and Caregiver Support Group Program.
For more info:    https://fasdinfotsaf.ca/

Information about all the Ontario groups funded through Health Nexus grants. https://fasdinfotsaf.ca/wp-content/uploads/2021/08/FASDSupportGroups_ListForWebsite_2021-222.pdf


You are invited to join the FASD Family Life Virtual Community for access to monthly LIVE virtual support group, dive deeper into episodes of the FASD Family Life Podcast and exclusive member only content.
https://www.facebook.com/robbie.seale.1/

Welcome to FASD Family Life the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD.  I know the struggle is real, but so is success. I hope that sharing my experiences can help you feel that you are not alone and that there is hope for you and your child with FASD.

I welcome you to join me with a hot cup of coffee and your notebook as we settle in and listen to Jerrod Brown, Ph.D., MA, MS, MS, MS  talk about the importance of RESILIENCE as a protective factor for families; and how to build it for parents and children alike.

Jerrod Brown is a regular guest on the FASD Family Life podcast. Jerrod is an assistant Professor for Concordia Univerity, St. Paul, Minnesota and has extensive expereience teaching courses at the undergraduate and graduate level. Jerrod has also been employed with Pathways Counselling Centre in St. Paul for the past 17 years. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST).  To learn more about Jerrod's work, or to contact him click the link below.
HTTPS://www.aiafs.com/Jerrod-Brown-asp

Do you have a question you would like me to address on the show or a topic suggestion? Email your comments, questions and topic suggestions to FASDfamilylife@gmail.com.

What to show me some love? Click the link below to Buy Me A Coffee for $5.00
Support the show (https://ko-fi.com/fasdfamilylifepodcast)

EPISODE RESOURCES:

Jerrod Brown, Ph.D.
HTTPS://www.aiafs.com/Jerrod-Brown-asp

The FASD Collaborative
Across the Lifespan Series | FASD Collaborative

Join the FASD Family Life Community today!
Message me on facebook: https://www.facebook.com/robbie.seale.1/

With more than 20 years lived experience I know it can be a struggle to find resources and research to support you, your family, and your child with Fetal Alcohol Spectrum Disorder. That's why I have embarked on a new initiative to interview the movers and shakers in the FASD Research and Resources community and bring you Research & Resource Editions of the FASD Family Life podcast.  These Research & Resource Editions of the FASD Family Life Podcast will give you information on a variety of FASD networks, resources, training events, and conferences, as well as fascinating FASD studies for your participation and interest.

In this Research & Resources Edition of FASD Family Life Research & Resources edition I am delighted to speak with Dan Dubovsky about raising children with FASD as well as effective interventions for individuals with FASD and a substance use disorder.  Dan Dubovsky and I had so much ground to cover that we ran out of time in this episode. You can hear the rest of our conversation in a future Research and Resources Edition of the FASD Family Life podcast. SUBSCRIBE to make sure you never miss an episode!

Dan Dubovsky is a clinician working in behavioral heath in a variety of systems including residential treatment, outpatient services, HIV/AIDS, medical social work, and training in a variety of positions including direct care staff, therapist, supervisor, and instructor in psychiatry. 25 years experience in addressing FASD from a personal and professional point of view. Providing consultation in a number of areas to agencies, systems of care, communities, states, and provinces to improve outcomes for individuals, families, and the programs that provide services to them. Formerly the FASD Specialist with the SAMHSA FASD Center for Excellence. Now working independently.

LIMITED TIME OFFER
Join the FASD Family Life Virtual Community for access to LIVE sessions, dive deeper into episodes of the FASD Family Life Podcast and exclusive member only content. Direct Message me on facebook to join   https://www.facebook.com/robbie.seale.1/


EPISODE RESOURCES:

Dan Dubovsky:
https://www.youtube.com/watch?v=67aHbIAXvYY
LinkedIn: https://www.linkedin.com/in/dan-dubovsky-761aa415/
Facebook: https://www.facebook.com/dan.dubovsky.3
Email: ddubovksy@verizon.net 

Robbie Seale:
Facebook: https://www.facebook.com/robbie.seale.1/
LinkedIn: https://www.linkedin.com/in/robbie-seale-92954b169/
Email: fasdfamilylife@gmail.com

Welcome to FASD Family Life the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD.  I know the struggle is real, but so is success. I hope that sharing my experiences can help you feel that you are not alone and that there is hope for you and your child with FASD.

Have you ever dreamt of lauching your own FASD Awareness campaign? You are going to want to grab your coffee before you settle in  hear how one Canadian Pro Wrestler did just that!

Martial arts instructor and pro-wrestler, Jeremy Elliott is the Godfather to 15 year old William Gibson of Ontario, Canada.  According to Jeremy, William is a super hero! You, too, will soon be cheering for William as he pursues his dreams of playing high school football, powerlifting and maybe, just maybe pro-wrestling. Building strength and resilience through relationships, advocacy and sports is the theme of this awe inspiriting conversation. 

From this foundation the Embrace Our Journey, FASD awareness champaign was born complete with the RED WRESTLING boots which will be debuted on March 13th at a local pro wrestling event.

FOLLOW JEREMY & WILLIAM on Twitter & Instagram

@ufmaniagra (Jeremy)

@williamgibsonnf (William)


Subscribe to the FASD Family Life Podcast to catch every episode!  Please like, comment and share the podcast on social media so others hear about the FASD Family Life Podcast.

Do you have a question you would like me to address on the show or a topic suggestion?
Email your comments, questions and topic suggestions to http://fasdfamilylife@gmail.com

What to show me some love? Click the link below to Buy Me A Coffee for $5.00
https://ko-fi.com/fasdfamilylifepodcast

REGISTER HERE for the Insight Virtual Conference, March 23 & 24, 2022
by The Honestly Adoption Company
https://honestlyadoption.samcart.com/referral/OrxPU0dF/JzfSgWlDMX4iMlcz

Welcome to FASD Family Life the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD.  I know the struggle is real, but so is success. I hope that sharing my experiences can help you feel that you are not alone and that there is hope for you and your child with FASD.

I welcome you to join me with a hot cup of coffee and your notebook as we settle in and listen to Jerrod Brown, Ph.D., MA, MS, MS, MS  talk about the HPA Axis. Prenatal alcohol expoure is an assult to fetal development. In this episode of Dr. Jerrod Brown will explain the damage to the body's stress response system by prental alcohol exposure which often results in HPA Axis Dysfunction.

"The hypothalamic-pituitary-adrenal (HPA) axis is the system of interactions among the hypothalamus, pituitary gland, and adrenal glands. The primary role of the HPA axis is to
regulate a person’s response to stressful events and situations. Specifically, the HPA axis is
critical is assessing potential threats, initiating neuroendocrine responses when appropriate, and facilitating recovery after any potential threats have receded. Unfortunately, exposure to severe and/or repeated trauma, particularly during childhood, can result in HPA axis dysfunction across the lifespan." - Jerrod Brown

Jerrod Brown is a regular guest on the FASD Family Life podcast. Jerrod is an assistant Professor for Concordia Univerity, St. Paul, Minnesota and has extensive expereience teaching courses at the undergraduate and graduate level. Jerrod has also been employed with Pathways Counselling Centre in St. Paul for the past 17 years. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST).  To learn more about Jerrod's work, or to contact him click the link below.


Do you have a question you would like me to address on the show or a topic suggestion? Email your comments, questions and topic suggestions to FASDfamilylife@gmail.com.

What to show me some love?
Support the show (https://ko-fi.com/fasdfamilylifepodcast)

EPISODE RESOURCES:
Jerrod Brown, Ph.D.
Email: aiafsassoc@gmail.com
 
Below are a few FASD articles found in the literature that mention the HPA axis:

Mead, E. A., & Sarkar, D. K. (2014). Fetal alcohol spectrum disorders and their transmission through genetic and epigenetic mechanisms. Frontiers in Genetics, 154.

Kobor, M. S., & Weinberg, J. (2011). Focus on: epigenetics and fetal alcohol spectrum disorders. Alcohol Research & Health, 34(1), 29.

Kleiber, M. L., Diehl, E. J., Laufer, B. I., Mantha, K., Chokroborty-Hoque, A., Alberry, B., & Singh, S. M. (2014). Long-term genomic and epigenomic dysregulation as a consequence of prenatal alcohol exposure: a model for fetal alcohol spectrum disorders. Frontiers in genetics, 5, 161.

Wieczorek, L., Fish, E. W., O'Leary-Moore, S. K., Parnell, S. E., & Sulik, K. K. (2015). Hypothalamic-pituitary-adrenal axis and behavioral dysfunction following early binge-like prenatal alcohol exposure in mice. Alcohol, 49(3), 207-217.

Reynolds, J. N., Weinberg, J., Clarren, S., Beaulieu, C., Rasmussen, C., Kobor, M., ... & Goldowitz, D. (2011, March). Fetal alcohol spectrum disorders: gene-environment interactions, predictive biomarkers, and the relationship between structural alterations in the brain and functional outcomes. In Seminars in Pediatric Neurology (Vol. 18, No. 1, pp. 49-55). WB Saunders.

Gangisetty, O., Bekdash, R.

With more than 20 years lived experience I know it can be a struggle to find resources and research to support you, your family, and your child with Fetal Alcohol Spectrum Disorder. That's why I have embarked on a new initiative to interview the movers and shakers in the FASD Research and Resources community and bring you Research & Resource Editions of the FASD Family Life podcast.  These Research & Resource Editions of the FASD Family Life Podcast will give you information on a variety of FASD networks, resources, training events, and conferences, as well as fascinating FASD studies for your participation and interest.

In this Research & Resources Edition of FASD Family Life Research & Resources edition I am delighted to speak with Cathy Cross, Executive Director of The WRaP 2.0: FASD Coaching Partnership Project.   https://wrap2fasd.org/

The WRaP 2.0: FASD Coaching Partnership Project is a five-year collaboration (February 2021 to January 2026) between the Ministry of Education, Ministry of Community and Social Services and Alberta’s 12 FASD Service Networks.

Through the services of FASD Instructional Coaches, including at-the-elbow assistance and professional development, school authority staff will be supported to enhance their capacity to meet the education needs of students with FASD (Early Childhood Services – Grade 12).

Objectives
• Increase the capacity of teachers and schools to meet the educational needs of children and youth (ECS to Grade 12) with FASD.
• Teachers and school leaders will increase their knowledge and skills regarding how to support students with FASD by engaging in current best practices as shared by the FASD Networks through FASD instructional coaches.
• Schools will enhance their capacity by incorporating FASD-informed approaches into their classroom communities, as part of a continuum of supports and service.

EPISODE RESOURCES:
WRaP 2.0  Website
https://wrap2fasd.org/

ROBBIE'S SOCIALS:
https://www.facebook.com/robbie.seale.1
Robbie Seale | LinkedIn
Robbie Seale (@robbie.seale) • Instagram photos and videos

"The struggle is real, and so is success."

Support the show (https://ko-fi.com/fasdfamilylifepodcast)

With more than 20 years lived experience I know it can be a struggle to find resources and research to support you, your family, and your child with Fetal Alcohol Spectrum Disorder. That's why I have embarked on a new initiative to interview the movers and shakers in the FASD Research and Resources community and bring you Research & Resource Editions of the FASD Family Life podcast.  These Research & Resource Editions of the FASD Family Life Podcast will give you information on a variety of FASD networks, resources, training events, and conferences, as well as fascinating FASD studies for your participation and interest.

In this Research & Resources Edition of FASD Family Life Research & Resources edition I am delighted to speak with Gilberto Spencer, producer and host of his own podcast,
Wired Differently: FASD, ADHD, Chronic Stress, Anxiety & Depression.

"After unknowingly living all my life with FASD and all the other conditions, I can tell you that the worst part of having them, specially FASD is not having it but not knowing that you have it. I love the saying "If you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid." because I couldn't explain it any better. It was horrible not knowing I was a fish because I will be hating myself every day for not being able to climb the tree no matter how hard I try. I'm not gonna lie. Finding out I had FASD was devastating. When I read " Irreversible and permanent brain damage caused by alcohol," I felt hopeless and I fell into a deep depression. It was BAD, to say the least, but I was determined to improve and I wasn't going to give up on myself.

 With that determination in mind, I tried it all, different accommodations, interventions, strategies, as well as therapy and counseling. They were helpful, but I wasn't getting where I wanted and knew I could be. I thought I had exhausted all my options until someone suggested coaching. Thinking I had nothing to lose, I gave it a try and I'm so thankful to have done it because it changed my life! Through coaching, I was able to improve in a way I never thought possible. I found out that my brain was the cause of all of my challenges and struggles but it was the solution to all of them too!"

Join me for a cup of coffee and and inspiritational conversation with my friend Gilberto.


Interested in supporting the work of the FASD family Life podcast?
Support the show (https://ko-fi.com/fasdfamilylifepodcast)

ABOUT GILBERTO SPENCER:
https://www.wired-differently.com/about-me
GILBERTO'S SOCIALS:
https://www.facebook.com/gilbertoxspencer
GILBERTO'S PODCAST:
https://music.amazon.it/podcasts/be0c7a3e-2b34-4755-92b4-f8b13e92235d/wired-differently-fasd-adhd-chronic-stress-anxiety-depression

ROBBIE'S SOCIALS:
https://www.facebook.com/robbie.seale.1
Robbie Seale | LinkedIn
Robbie Seale (@robbie.seale) • Instagram photos and videos

"The struggle is real, and so is success."

Welcome to FASD Family Life the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD.  I know the struggle is real, but so is success. I hope that sharing my experiences can help you feel that you are not alone and that there is hope for you and your child with FASD.

I welcome you to join me with a hot cup of coffee as we settle in and listen to Jerrod Brown, Ph.D., MA, MS, MS, MS  talk about TOXIC STRESS.  This is a hot topic of conversation for nearly all parents raising a child with FASD.

Jerrod Brown is a regular guest on the FASD Family Life podcast. Jerrod is an assistant Professor for Concordia Univerity, St. Paul, Minnesota and has extensive expereience teaching courses at the undergraduate and graduate level. Jerrod has also been employed with Pathways Counselling Centre in St. Paul for the past 17 years. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST).  To learn more about Jerrod's work, or to contact him click the link below.
HTTPS://www.aiafs.com/Jerrod-Brown-asp

Do you have a question you would like me to address on the show or a topic suggestion? Email your comments, questions and topic suggestions to FASDfamilylife@gmail.com.

What to show me some love? Click the link below to Buy Me A Coffee for $5.00
Support the show (https://ko-fi.com/fasdfamilylifepodcast)

EPISODE RESOURCES:

Jerrod Brown, Ph.D.
HTTPS://www.aiafs.com/Jerrod-Brown-asp

The Canadian FASD Research Network
https://canfasd.ca/

The FASD Collaborative
Across the Lifespan Series | FASD Collaborative

With more than 20 years lived experience I know it can be a struggle to find resources and research to support you, your family, and your child with Fetal Alcohol Spectrum Disorder. That's why I have embarked on a new initiative to interview the movers and shakers in the FASD Research and Resources community. Every Monday I will drop a Research & Resource edition of the FASD Family Life podcast to give you information on a variety of FASD Networks, resources, training events, and conferences. I will also bring you information on fascinating FASD studies for your participation and interest.

In this Research & Resources Edition of FASD Family Life Research & Resources edition I am priviledged to speak with Katharine Dunbar Winsor of the FASD NL Network. Please join me for a hot cup of coffee as we learn about FASD NL.  Fetal Alcohol Spectrum Disorders matter. The team at the FASD NL educate, network and share resources to improve the lives of individuals with Fetal Alcohol Spectrum Disorder, families and communities across Newfoundland and Labrador, on Canada's East coast.

Interested in supporting the work of the FASD family Life podcast?
Click the link below to see how.
Support the show (https://ko-fi.com/fasdfamilylifepodcast)

Episode Resources:

Keep upto date with news, training and events by fasdNL
https://www.fasdnl.ca

CBC The National: "Alcohol can cause cancer, so why don't most Canadians know that?"
https://www.cbc.ca/player/play/1989925955975

"Alcohol is one of the top three causes of preventable cancer, so why aren’t Canadians being informed about the risks? Health experts say it's time to put warning labels on alcohol — something the industry has pushed back against"

With more than 20 years lived experience I know it can be a struggle to find resources and research to support you, your family, and your child with Fetal Alcohol Spectrum Disorder. That's why I have embarked on a new initiative to interview the movers and shakers in the FASD Research and Resources community. Every Monday I will drop a Research & Resource episode to give you information on a variety of FASD Networks, resources, training events, and conferences. I will also bring you information on fascinating FASD studies for your participation and interest.

This episode of FASD Family Life Research & Resources edition I  speak with Judy Smith; experienced parent of three children, former classroom teacher, homeschooler, and parenting coach. Judy Smith  is the founder of Judy's Coaching and the creator of the Facebook group: Supporting Moms of Children with Prenatal Drug Exposure, FASD and/or Autism. Judy's mission is to help moms bring calm to their homes using a brain based approach.

Interested in supporting the work of the FASD family Life podcast? 
Click the link below to see how.

Support the show (https://ko-fi.com/fasdfamilylifepodcast)

Episode Resources:
Facebook Group: Supporting Moms of Children with Prenatal Exposure, FASD and or Autism
https://www.facebook.com/groups/supportingmomsofchildrenwithbrainbaseddifferences

Facebook: Judy Smith
https://www.facebook.com/judy.smith.395669

Welcome to FASD Family Life the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD.  I know the struggle is real, but so is success. I hope that sharing my experiences can help you feel that you are not alone and that there is hope for you and your child with FASD.

Here we are, my friends, the third episode of season 2 of the FASD Family Life podcast. Whether this is your first episode or your 49th, I am grateful to be spending this time with you today.  I welcome you to join me with a hot cup of coffee as we settle in and spend some time together parent to parent.  In this episode I answer emails from parents, who just like you and me, need someone to talk to when things are chaotic at home. I understand the struggle because I have been there with my own family. I hope that by sharing my experiences and what I have learned in my 30 years of parenting you will be encouraged and better equipped to parent from a brain based, trauma informed, attachement focussed perspective. 

Subscribe to the FASD Family Life Podcast to catch every episode!  Please like, comment and share the podcast on social media so others hear about the FASD Family Life Podcast.

Do you have a question you would like me to address on the show or a topic suggestion?
Email your comments, questions and topic suggestions to FASDfamilylife@gmail.com

What to show me some love? Click the link below to Buy Me A Coffee for $5.00
Support the show (https://ko-fi.com/fasdfamilylifepodcast)

Thank you! You're support means a lot to me.


Episode Resources:

eMentalHealth.ca  Fetal Alcohol Spectrum Disorders (FASD)
"Fetal Alcohol Spectrum Disorders (FASD) is an umbrella term that describes the wide range of effects that can occur in a child whose mother drank alcohol during pregnancy. Prenatal alcohol exposure can cause significiant brain damage. The effects of FASD typically include physical, mental, and learning disabilities as well as behavioral deficits and problems with socialization."
https://www.ementalhealth.ca/British-Columbia/Fetal-Alcohol-Spectrum-Disorders-FASD/index.php?m=article&ID=14858&r=bc-fraser

Welcome to FASD Family Life the podcast for families by families where we get real about raising children and youth with Fetal Alcohol Spectrum Disorder. I’m your host, Robbie Seale, FASD Educator, advocate and mom of four children with FASD.  I know the struggle is real, but so is success. I hope that sharing my experiences can help you feel that you are not alone and that there is hope for you and your child with FASD.

Here we are, my friends, the second episode of season 2 of the FASD Family Life podcast. Whether this is your first episode or your 48th, I am grateful to be spending this time with you again today.  I welcome you to join me with a hot cup of coffee as we settle in and listen to a true Pheonix, JJ Dunham Reed. Rising from the ashes of domestic violence and substance use disorder,  JJ recently has stepped on to the stage of FASD Advocacy after learning that one of her 7 children has Fetal Alcohol Spectrum Disorder. JJ DunhamReed is the founder of FASDtastic Families; Fetal Alcohol Spectrum Disorder(s) Education, Trainings & Advocacy.
 www.FASDtasticFamilies.com 

Subscribe to the FASD Family Life Podcast to catch every episode!  Please like, comment and share the podcast on social media so others hear about the FASD Family Life Podcast.

Do you have a question you would like me to address on the show or a topic suggestion? Email your comments, questions and topic suggestions to FASDfamilylife@gmail.com.

What to show me some love? Click the link below to Buy Me A Coffee for $5.00
Support the show (https://ko-fi.com/fasdfamilylifepodcast)

Thank you! You're support means a lot to me.

Resources referenced in this episode:

JJ Dunham Reed
FASDtastic Families
Fetal Alcohol Spectrum Disorder(s) Education, Trainings & Advocacy
http://www.FASDtasticFamilies.com
#StopTheStigma
#StopTheStigmaFASD

Aubrey Page
The Change Starts Here Collaborative
https://www.theschcollab.com/aubreypagefasd

Natalie Vecchione
FASD Hope Podcast
https://www.fasdhope.com/

Shannon Iacobacci
FASCETS Trainer & IEP Specalist
https://www.shannoniacobacci.com